pathology results tomorrow - nervous!!

[Atai]

So I had my total hysterectomy 4 weeks ago, and I’m pleased to say it was by keyhole.

They removed the uterus, remaining ovary and tube, cervix and omentum layer, and created my ‘vaginal cuff’. I was on an Enhanced Recovery Scheme - had surgery on the Thursday , was gone on the Saturday.

The consultant said he’d call with pathology results last Wednesday; but when he called he said they are re-running them as it looked there they might have been an anomaly in the cervix…… and whether they find something or not I need to go for a smear and bloods in 6 months!

I reallllly wanted this nightmare to be all over, even though I knew that there was a possibility of finding something in the biopsies, BUT, I thought it would be related to the ovarian tumour!

I have been through all the emotions this week, angry, depressed, tearful, etc. I’m just so drained, physically and emotionally.

So I’m going in person tomorrow, to hopefully get full results, and keeping fingers firmly crossed!!!

[0462County]

Hello Atai

I fully understand what you are going through waiting for results. I was the same last year going through all sorts of emotions.

Whatever the outcome of the results please let us know. We are all here for you.

Love and hugs Beth x.

[Atai in reply to 0462County]

Thank you Beth, it’s so reassuring having your support here. I’ll update you once I have my results xx

[Caleda4]

Hi Atai,You will get through this and out the other side. The waiting is always the worst and sometimes it takes forever or seems like it.

I have had hgs ovarian for 8years, and gradually you get to know the routine ,I wouldn't say it is easier, but I have come to the conclusion that if I really worry,it will not change the outcome.

This is a very good forum,with lots of info from different people,with several years experience.

I wish you well with your appointment.x

[Atai in reply to Caleda4]

Thank you 💛 I have had non-Hodgkin ls lymphoma 11yrs ago, I agree about the worry won’t change things theory too However, as they successfully removed the tumour in February, if there were any abnormalities found after my hysterectomy, I had prepared myself mentally for them to be related to the ovaries, not the cervix… it threw me a little!

However, with all cancers , pre cancers and the rest, it is always the waiting that gets you down.

I hope you are getting on ok with your hgs?

xx

[Jennifer1959]

Hello Atai - I hope you have your results by now. I totally agree with the waiting for results. I had my op a couple of months ago - radical hysterectomy with everything gone (including my appendix!). Since then I have kind of settled that I will always be 'in between scans' and I have to learn to live with that. But once I have the scan and then the days following are absolutely awful. Waiting for the phone to ring and waiting to hear your outcome. I can totally identify with your emotions all of the place - I really do. I have had the bumpiest journey since my diagnosis in Feb - having health anxiety and getting a cancer diagnosis is not for the faint hearted. I do find that I am settling a bit better now but the scans always shake me up again and knock me off my perch so to speak. I am not sure what the answer is but one thing I have really tried to do - is firstly, look after myself just like I would look after someone else in my situation. I make a fuss of myself on my good days and on my not so good days - I tend to think ok, you're not great, you have to just get through the day as best you can. Coming on here and reading others stories can be really helpful - there are lots of ladies on here who have some really positive stories of recovery and it always gives me some hope when I read them. x

[Atai]

thank you Jennifer! I agree 🥰 I think it was the unexpected cervix mention that threw me!!

My appointment today for results is at 4pm… I’ll update you all then xxx

[bamboo89]

Hopefully you found out something useful when you went for the results, but one thing is puzzling me; you say they said you'd need a smear and bloods in six months. Bloods, yes, but why a smear? If they removed your cervix as you say they did, where are they expecting to get a smear from, because the cervix is what they normally take those from? Did they only do a partial removal of the cervix perhaps?

[Atai in reply to bamboo89]

Yes it does sound weird doesn’t it! They said they’ll test my vaginal cavity …

[bamboo89 in reply to Atai]

Oh I see, that explains that...quite comforting that they'll test in a few months just to make sure. The problem with OC is not just adjusting to the idea you've got it, but also coping once they decide you're cancer free and can just get on with your life, cos that leaves us to fret over months that something might be happening that's related, going unnoticed., especially during the first year...

[Atai in reply to bamboo89]

Yes, when I had N-H lymphoma 11 years ago, it was always the waiting or the “empty” months which could get in your head! X