weekly taxol

[Lookingahead]

hi all, Firstly just want to say to everyone — good luck in your treatments and I hope you are all doing well and keeping positive !

is anyone on weekly taxol ? If so , how are you doing —- and has anyone finished weekly taxol and moved on to another treatment ????

my next option is weekly taxol although I can take part in clinical trials at The Royal Marsden . I just don’t know if there are any options left after weekly taxol ??

. I’ve always been very positive and determined to keep going but I must admit that is getting difficult !!!

🥰🥰🙏

[27-359]

I am on third line chemo, and am now having weekly Taxel. (Three weeks on and one week off. I have very few side effects except tiredness, but am so fed up with such frequent hospital visits. They are so busy that I am waiting around for at least an hour before I get seen.

I too about what next. I get the impression that we are running out of options! I see my oncologist next week, so hopefully the Taxel is working!

Jenny

[Ruebacelle]

i did weekly taxol. It shrank

[Lookingahead in reply to Ruebacelle]

delighted to hear that. ! I hope you are feeling well now . Did you have any extra treatment after ? 🥰

[Ruebacelle in reply to Lookingahead]

well after weekly taxol went on a trial that didn't work am now on endoxan oral 2 weeks on 1 wk off side effects annoying but manageable. Holding tumors stable but not shrinking. Starting 8th year on chemo. Tiresome tiring frustrating it is what it is. Hugs from paris

[Lookingahead in reply to Ruebacelle]

I’m very pleased to hear you have reached 8 years. ! I hope and pray that a proper cure will be found soon . Sending love and thanks for your reply ❤️❤️🙏❤️

[Lookingahead]

thank you for your help . At least I feel that I can cope if just tiredness!! I must admit the idea of weekly visits is putting me off !!! X ❤️

[doodoolatrice]

 Hi, we've communicated before as I'm on the Aliftus trial at the RM in Chelsea. I have taxol 3 weeks out of 4 and and the trial drug and yes i hav really have struggled at times. Not so much the frequency of the visits as I've got used to that, more so the other problems I've had on top of chemo I.e pleural effusion, having a semi-permanent drain fitted that became extremely sore and infected, anaemia, vitamin B12 deficiency and a very bad chest infection. All of these caused me to lose my appetite and a lot of weight which meant I was running on empty, which made everything so much harder. Without all of these issues I'm certain I would have coped much better. The Trials Team have been really good at helping me through these issues and my latest scan showed positive results so I'm really pleased about that. I am going to ask when I have chemo tomorrow if it's possible to have a break from chemo during December to recharge physically and mentally. Like I said it's not the frequency of the visits that has been the problem, or the taxol, its been the other issues for me so my advice could be to give it a go. If it's all too much you can withdraw from the Trial at any time. Hopefully this makes sense Kerry

[Lookingahead in reply to doodoolatrice]

thank you Kerry , my last scan showed stable disease so I have another in about 2 weeks —/ but as you probably understand, I’m expecting the worst !!! If there is progression , then I understand that I will start that trial . I just missed out in the Aliftus trial as they stopped recruiting the day before my appointment. That just meant a 3 weekly trip to hospital — but I am just grateful to still be alive as the prognosis was really bad when I was first diagnosed. — early 2020. Thinking if you and saying prayers for you too 🥰🙏

[doodoolatrice]

Thankyou it's awful isn't it, I always expect the worst as well. Fingers crossed for another stable result for you. This disease certainly messes with our bodies as well as our heads, Kerry