Let people know how you are doing (Spring 2020) - My Ovacome

My Ovacome
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Let people know how you are doing (Spring 2020)

OvacomeSupport
OvacomeSupportAdministrator

Hello

It's that time of year again in the UK when the clocks change, which means its time for an update post which I will pin to the side bar.

If you haven't posted for a while but would like to let your forum friends know how you're doing, please do leave an update in the comments below. You are of course always welcome to start a new post with your news, but it won't be pinned so may get a bit lost on such an active forum.

It will be great to hear how you're all getting on.

Best wishes

Laura

Support Services

15 Replies
oldestnewest

I'm doing fine, if slowly, because of back problems. I am a 10 year survivor of stage 3c (serous high grade), without a recurrence so far, touch wood. Wish everyone here & at Ovacome all the best xxx

OvacomeSupport
OvacomeSupportAdministrator
in reply to vipervictoria

Hello vipervictoria

Thank you very much for your comment. I'm glad to hear that you're doing fine and wish you all the best as well.

Best wishes

Julia (Support Services Officer)

I’m doing fine. Still no recurrence of stage 3c/4a OC just over 8 years after finishing first line treatment. (No recurrence of stage 2 breast cancer diagnosed in 2015 either.)

Best wishes to you all xx

OvacomeSupport
OvacomeSupportAdministrator
in reply to citrine

Hi citrine

Thank you for letting us know that you're doing fine. It's great to hear!

Best wishes

Julia

Hi I’m fine and still doing well, with no recurrence after 3 years of stage 3a OC and busy working as a carer. I wish everyone well in these awful times, stay safe x

OvacomeSupport
OvacomeSupportAdministrator
in reply to March2017

Hi March2017,

Great to hear that you're doing well and able to provide much-needed care to people during these difficult times.

Best wishes,

Laura (Support Services)

My proposed chemotherapy did not take place because of Covid-19. I am rather left in limbo. I have bought a wig so I am all

Wigged up but nowhere to go! I changed down from The Marsden to Brighton as I didn’t think I would be able to do the train journey up to Sutton and now I’m not having treatment I really regret that decision. Are many others in my position with their chemo cancelled?

OvacomeSupport
OvacomeSupportAdministrator
in reply to juliamillen

Hello juliamillen

I'm sorry to hear that you're feeling regretful.

Treating teams are weighing up the risks and benefits of the different options for each individual person at the local level at that moment in time to help to ensure their safety. You can ask your team to explain further the reasons for not giving the chemotherapy, if that would be helpful for you.

If you would like to hear from other members of the forum about any changes to their treatment, you could post separately about it. That would help them to find it more easily and share their experiences.

If you'd like to talk anything through, please get in touch with our Support Service.

Best wishes

Julia (Support Services Officer)

I am still NED 5 and a half years after de baulking and 6 months Chemo, thank each day, though suffering ( as are we all) during this present crisis.

Missing my grandkids terribly and have twins being born in July, so keeping busy with lots of tasks in the house and looking after hubby who is high risk.

Just want to wish everyone well, stay safe and I’m sure we will appear through the tunnel better people 😘

Carole xx

OvacomeSupport
OvacomeSupportAdministrator
in reply to Caroles1

Hello Caroles1,

Thank you for letting us know how you are getting on.

I hope that you get to meet the new twins in your family as soon as is safely possible, isn't it lovely to have something so positive to look forward to?

Best wishes,

Laura (Support Services)

Hi! It's a year today since my laparotomy, actually. I recently had polyps removed and the biopsies were clear. CA125 is stable for me. Follow up phonecall with the consultant next week. I've been feeling really anxious coming up to a year since the op, but at least the results are positive. Sending love and well wishes to you all! Xx

OvacomeSupport
OvacomeSupportAdministrator

Hello TealSong

Thank you for letting us know how you're doing. It can be an anxious time after finishing treatment. I hope the phone call next week is helpful and you can get answers to any questions that you have.

If there's anything that we can help with, or if you'd like to talk anything through, please get in touch with our Support Service.

Best wishes

Julia (Support Services Officer)

Hi I’m confused whether or not I’m considered ‘safe’ ish to go out for a walk? I’ve received the NHS letter saying I’m at high risk and to fully self isolate. However when I read through the criteria I’m not any of them. I had stage 3 OC last year and finished chemotherapy in August with two NED scans to date. So I don’t technically have active cancer atm.

I know they have got some of these letters wrong ie some very high risk people haven’t even received one?!

So I’m not sure if I’m still counted as immunosuppressed because chemo was within a year ago? Could you give me any advice please? Of course I’m staying in mostly anyway but would so love to get out for a walk with the dog if I’m not actually fully at high risk?!

Many thanks

Claire

OvacomeSupport
OvacomeSupportAdministrator
in reply to Barmycharm

Hello Claire

Thank you for your comment. You can find the Government's guidance on who is defined as extremely vulnerable at:

gov.uk/government/publicati...

You can also find information about COVID-19 and cancer in the advice from the One Cancer Voice group of charities at mcusercontent.com/68b588bc5...

Your team will be able to advise you about the steps that you need to take to keep yourself safe.

If there's anything that we can help with, please get in touch.

Best wishes

Julia

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