Posts - My Ovacome | HealthUnlocked

My Ovacome

17,745 members • 19,983 posts

All posts for January 2020

Allergic reaction to Carboplatin

I’m on my second line of carbo 5 cycles in. Yesterday I had an allergic reaction to it and they had to stop the infusion. I had nausea and a red rash. They...

I’m on my second line of carbo 5 cycles in. Yesterday I had an allergic reaction...

juliamillen

•4 years ago

13 Replies

Integrative? Success with supplements - food choices prolonging remission?

I have been on (and off) chemo for about three or four years, mostly on. The latest was almost a year and a half of Carbo/Gemzar also with Avastin. Now I am...

I have been on (and off) chemo for about three or four years, mostly on. The lat...

carolleigh

•4 years ago

10 Replies

3rd line chemo

Advice please on gemcitabine/carboplatin How have other ladies found this treatment, any advice would be welcome, is it worth Trying a cap for hair loss ?...

Advice please on gemcitabine/carboplatin How have other ladies found this treat...

Mjb49

•4 years ago

15 Replies

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Ascites and permanent stomach drain

I had my stomach drained a week ago, the first time since diagnosis in 2017. I am bloated again and am miserable. Oncologist talked about permanent drain. I...

I had my stomach drained a week ago, the first time since diagnosis in 2017. I a...

Aspin

•4 years ago

7 Replies

Anyone else worn out well after treatment finished?

So I had SCCOHT and TAHBSO 2017 with 6 rounds of cistplatin and etoposide. That finished March 2018. Every day I feel physically worn out. Back pain, neck...

So I had SCCOHT and TAHBSO 2017 with 6 rounds of cistplatin and etoposide. That ...

rareoldme

•4 years ago

7 Replies

High lighting colostomy

Hi all Well done to Eastenders (soap) for bringing in a story line with somebody with a stoma. I know many of us have because of our operation's me included...

Hi all Well done to Eastenders (soap) for bringing in a story line with somebod...

1916

•4 years ago

4 Replies

NICE olaparib announcement today

Hello All This is to let you know NICE have announced today that olaparib will be available as second line maintenance treatment via the Cancer Drugs Fund, for...

Hello All This is to let you know NICE have announced today that olaparib will b...

OvacomeSupport

Partner•4 years ago

34 Replies

QUICK UPDATE

Hi Ladies Just a quick update on what is happening . Last chemo (carbo) for 2nd recurrence on 27th December. Problems with veins both getting blood and putting...

Hi Ladies Just a quick update on what is happening . Last chemo (carbo) for 2nd ...

Hidden

•4 years ago

6 Replies

In focus: stomas - stoma surgery

Hello In our previous post in this series, we gave an overview of what a stoma is and the different types of stoma. In this post, we’ll look at the surgery to...

Hello In our previous post in this series, we gave an overview of what a stoma i...

OvacomeSupport

Partner•4 years ago

4 Replies

CA125 rising already!

Hello all - My CNS nurse tells me that my CA125 has already risen since Friday. I am no wondering if instead of a parb should I ask to continue on...

Hello all - My CNS nurse tells me that my CA125 has already risen since Friday. ...

Hidden

•4 years ago

11 Replies

Who else is dealing with pain and what kind, how often, when?

Just curious- what kind of pain are some of you experiencing through the treatments? I am just trying to work out what this crappy, achy, sort of foggy,...

Just curious- what kind of pain are some of you experiencing through the treatme...

Natsmb

•4 years ago

15 Replies

Anybody know how mad Molly is.

Just wondering if anyone knows how Molly is? I have a feeling her surgery was due soon. Many thanks Ann xx

Just wondering if anyone knows how Molly is? I have a feeling her surgery was du...

1916

•4 years ago

7 Replies

Niraparib funding

Hello ladies In my attempt to research Niraparib as much as possible in case this parb is going to be my next option I read that it is currently funded via the...

Hello ladies In my attempt to research Niraparib as much as possible in case thi...

Hidden

•4 years ago

5 Replies

Hospice

Hi ladies just an update on my hospice visits , I have found my visits very helpful and therapeutic, the crafts and treatments you can have are so relaxing....

Hi ladies just an update on my hospice visits , I have found my visits very help...

Mjb49

•4 years ago

3 Replies

Thank for you suggestions on managing peripheral neuropathy!

Thank you all so much for the valuable advice about managing the effects of neuropathy. I very much appreciate you taking the time to reply. I am definitely...

Thank you all so much for the valuable advice about managing the effects of neur...

Mommoo65

•4 years ago

Be the first to reply

Clear cell stage 2 ovarian - should my mum have chemo?

My mum had a large cyst removed from her right ovary (which was attached to old endometriosis onto the pelvic wall). Also had full hysterectomy too. The cyst...

My mum had a large cyst removed from her right ovary (which was attached to old ...

HannahBee

•4 years ago

10 Replies

Update on the pleural effusion

Well, you all were right. This pleural effusion is coming because there has been a development in the small nodule growing in my right lung. it's very small...

Well, you all were right. This pleural effusion is coming because there has been...

Natsmb

•4 years ago

Be the first to reply

Thank you for all of your lovely supportive messages

Thank you to everyone who took the time to write to me and send me such supportive messages. It means a great deal. I'm sorry that I can't reply to everyone...

Thank you to everyone who took the time to write to me and send me such supporti...

Welshandproud

•4 years ago

23 Replies

ICON9 TRIAL SAGA CONTINUES!

I am beginning to think that being a patient means you need the patience of a saint!! Went to clinic today as planned, agreed to start the ICON 9 trial. Made...

I am beginning to think that being a patient means you need the patience of a sa...

Hidden

•4 years ago

14 Replies

Ova to You.. Manchester 28 January 2020

Dear All We are running one of our regional support events at the end of the month in Manchester, 2pm-6pm at Princess Street Hotel, Princess Street, M1 4LG....

Dear All We are running one of our regional support events at the end of the mon...

OvacomeSupport

Partner•4 years ago

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New non-profit gynaecological cancer organisation in Portugal

Hello All We have been contacted by one of our members who lives in Portugal, to let us know about a new non-profit organisation she has set up to help those...

Hello All We have been contacted by one of our members who lives in Portugal, to...

OvacomeSupport

Partner•4 years ago

Be the first to reply

ideas on managing Chemo induced peripheral neuropathy

Hi ladies, and gents. I have a question to those who suffer from neuopathy. How do you manage or sooth it? Mine isn't horrible but is definitely stopping me...

Hi ladies, and gents. I have a question to those who suffer from neuopathy. How ...

Mommoo65

•4 years ago

16 Replies

Looking for advice

After not finishing final 4th infusion of carboplatin because of bad reaction again ( had reaction on 3 but finished after I was bombarded with antihistamines...

After not finishing final 4th infusion of carboplatin because of bad reaction ag...

Calluv

•4 years ago

6 Replies

Twinges ?

Good evening ladies... looking for some advice please.... mum is 6 months out of chemo now for ppc grade 3c.... recently she has said she has a few “...

Good evening ladies... looking for some advice please.... mum is 6 months out of...

claireRoberts76

•4 years ago

17 Replies

Any thoughts?

Hi - I was diagnosed in Jan 2012 HGSOC stage 3C. I’ve had a lot of chemo lines and two surgeries but had very good quality of life over the years. (Details of...

Hi - I was diagnosed in Jan 2012 HGSOC stage 3C. I’ve had a lot of chemo lines ...

Lynn2012

•4 years ago

16 Replies

Headache whit Avastin infusion

I had my first Avastin infusion and have headache every day.Is this normal?

Erebuni

•4 years ago

7 Replies

First reoccurrence .

Hello lovely ladies, After 9 glorious months In remission my CNS confirmed by phone that a scan has revealed my cancer is ‘ active again’. I have an...

Hello lovely ladies, After 9 glorious months In remission my CNS confirmed by p...

Litchick

•4 years ago

23 Replies

PlasmaJet surgery

Hi is anybody out there familiar with the PlasmaJet surgery available at the Royal Marsden Hospital (and others)?

Hi is anybody out there familiar with the PlasmaJet surgery available at the Ro...

mienvee

•4 years ago

3 Replies

Gemcitabine and Carboplatin tomorrow

Good evening fellow teal friends. I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374...

Good evening fellow teal friends. I saw my oncologist this morning and I am star...

Welshandproud

•4 years ago

47 Replies

Food

Hi ladies.I have a question, what is the best food to eat when in Avastin infusion?

Hi ladies.I have a question, what is the best food to eat when in Avastin infusi...

Erebuni

•4 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2020

Allergic reaction to Carboplatin

Integrative? Success with supplements - food choices prolonging remission?

3rd line chemo

Ascites and permanent stomach drain

Anyone else worn out well after treatment finished?

High lighting colostomy

NICE olaparib announcement today

QUICK UPDATE

In focus: stomas - stoma surgery

CA125 rising already!

Who else is dealing with pain and what kind, how often, when?

Anybody know how mad Molly is.

Niraparib funding

Hospice

Thank for you suggestions on managing peripheral neuropathy!

Clear cell stage 2 ovarian - should my mum have chemo?

Update on the pleural effusion

Thank you for all of your lovely supportive messages

ICON9 TRIAL SAGA CONTINUES!

Ova to You.. Manchester 28 January 2020

New non-profit gynaecological cancer organisation in Portugal

ideas on managing Chemo induced peripheral neuropathy

Looking for advice

Twinges ?

Any thoughts?

Headache whit Avastin infusion

First reoccurrence .

PlasmaJet surgery

Gemcitabine and Carboplatin tomorrow

Food

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