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My Ovacome

17,746 members • 19,983 posts

All posts for January 2020

Ovacome Health and Wellbeing Day Liverpool 29 January 2020

Hello All We are running a health and wellbeing day in Liverpool at the end of the month, and it would be lovely to see some of you there. It's a day of talks...

Hello All We are running a health and wellbeing day in Liverpool at the end of t...

Partner•4 years ago

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In focus: stomas - introduction

Hello This month in our Health in Focus series, we’ll be looking at stomas. This introductory post will give an overview of what stomas are and why you might...

Hello This month in our Health in Focus series, we’ll be looking at stomas. This...

Partner•4 years ago

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Travel insurance nightmare!

Now my treatment is over, I want to do a bit of travelling. Just spent half an hour giving details to Insurancewith who insured me before only to be told that...

Now my treatment is over, I want to do a bit of travelling. Just spent half an h...

•4 years ago

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Has anyone had their ca125 go up while on gemzar

Has anyone had their ca125 go up on gemzar

Has anyone had their ca125 go up on gemzar

•4 years ago

Diagnosed - Low Grade Ovarian Cancer

Hi Everyone, I was diagnosed on 17th December 2019 with Low Grade Ovarian Cancer - Hormone Therapy has been my suggested treatment moving forward for the next...

Hi Everyone, I was diagnosed on 17th December 2019 with Low Grade Ovarian Cance...

•4 years ago

Patient rep needed for PhD study on peripheral neuropathy (London area)

Hello All Mary Tanay, a nurse at Kings College Hospital in London, is writing her PhD study on Chemotherapy Induced Peripheral Neuropathy (CIPN). A summary of...

Hello All Mary Tanay, a nurse at Kings College Hospital in London, is writing he...

Partner•4 years ago

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Is this the start?

Hi all I’ve been away for 3 glorious years in remission . My ca125 has always been between 8 - 15. It was 890 at diagnosis. Today it has come back as 41. I’m...

Hi all I’ve been away for 3 glorious years in remission . My ca125 has always be...

•4 years ago

Grace Gawler institute

Hi lovely ladies, Have any of you heard anything about Grace Gawler institute? https://www.gracegawlerinstitute.com/ My husband pressures me to make a contact,...

Hi lovely ladies, Have any of you heard anything about Grace Gawler institute? h...

•4 years ago

New tumours

Hi there everyone. I hope you are all coping with this miserable weather. I have a question. After an emergency admission just before Christmas with a horrible...

Hi there everyone. I hope you are all coping with this miserable weather. I have...

•4 years ago

Endometriosis/ ovarian cancer advice symptoms

Hi everyone, I’m just looking for abit of advice. I’ve been suffering with symptoms of endometriosis for over 4 years now. I’ve finally seen a doctor and they...

Hi everyone, I’m just looking for abit of advice. I’ve been suffering with sympt...

•4 years ago

Still getting symptoms after 6 infusions of Chemo; abdominal pain and groin pain swollen stoma, anyone possibly shed some light on this?

Hello ladies, I hope many of you managed to enjoy a lovely Christmas. Happy New Year to you all. I hope 2020 is a kind year. During chemo I had the usual...

Hello ladies, I hope many of you managed to enjoy a lovely Christmas. Happy Ne...

•4 years ago

When chemotherapy may have come to an end

Carbo/caelyx Chemotherapy. Just nearing the end of my 5th cycle since a recurrence of stage 3c OVC when the CT scan showed 3 large tumours in my upper abdomen....

Carbo/caelyx Chemotherapy. Just nearing the end of my 5th cycle since a recurren...

Gemimablackvelvet

•4 years ago

Christmas in hospital.....

Landed in hospital over Christmas with blockage.....not fun. Thought I had constipation issues until pain increased dramatically. Am learning to manage strict...

Landed in hospital over Christmas with blockage.....not fun. Thought I had const...

•4 years ago

Anyone else on Trametinib?

I have been on trametinib for 2 weeks and I am really struggling with the side effects. I would love to know if anyone else is on this and how they are coping....

I have been on trametinib for 2 weeks and I am really struggling with the side e...

•4 years ago

Letrozole

First of all a happy new year to everyone, & may the year be as good as possible. I see my onc next week. I’ve been taking Letrozole since May 2017, & hope I...

First of all a happy new year to everyone, & may the year be as good as possible...

•4 years ago

Ascitic Drains.

I have so far had two ascitic drains and am filling up again, only now I'm having chemo, I wondered when they would do another drain, at the end of a course,...

I have so far had two ascitic drains and am filling up again, only now I'm havin...

•4 years ago

Happy New Year!

..........Welcome 2020, please be kind to all of us here on Ovacome. xx 🙋‍♀️🥰

..........Welcome 2020, please be kind to all of us here on Ovacome. xx 🙋‍♀️🥰

•4 years ago

2020 Resolutions: Be Patient, Peaceful and Present

It has been my habit to set a few select New Year’s resolution each and every year since I was five or maybe six. They varied between the mundane (lose weight,...

It has been my habit to set a few select New Year’s resolution each and every ye...

•4 years ago

Chemo over...

Hi ladies. Finally chemo is over and i must say it felt good to ring that bell. I have got a CT scan scheduled for January 7th. It’s been 3 weeks since my last...

Hi ladies. Finally chemo is over and i must say it felt good to ring that bell. ...

•4 years ago

Good news for the New Year

Found out my scan results on Monday. My carboplatin chemo for first time recurrence is working. Two tumours have shrunk and two have stopped growing so I can...

Found out my scan results on Monday. My carboplatin chemo for first time recurre...

•4 years ago

christmas 🥰 And a very happy new year to you all ... I wish you all health 😍

My lovely mum on christmas day ❤️ So proud of her.... please let her stay healthy 🙏🏼 happy new year ladies xxxx

My lovely mum on christmas day ❤️ So proud of her.... please let her stay health...

claireRoberts76

•4 years ago

Happy new year.

Let's hope we all have a good year and lets give a thought to all who of our sisters who gained their teal wings last year.

Let's hope we all have a good year and lets give a thought to all who of our sis...

•4 years ago

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