Good evening ladies... looking for some advice please.... mum is 6 months out of chemo now for ppc grade 3c.... recently she has said she has a few “ twinges”.... Is this normal after a full hysterectomy? we mentioned it in last appt and her dr said it’s knitting pains?... I’m concerned ?
Thank you xxxxx 💗
It is hard not to suspect every twinge as a recurrence, however I did recur after 6 months and had no symptoms what so ever. It is really hard but just try to get on with life and have some fun, if you are destined for a recurrence there are lots of treatments available.
Thanks lyn.... trying to be positive 🥰
I’ve had twinges all the time since my surgery and end of chemo. I’ve had scans, blood tests etc and , thank god, all still ok at the moment. I have never felt the same as before treatment so I’ve now accepted this as the new normal. My stomach has been constantly swollen and a feeling of pressure so I’m guessing it’s just, like your mum, the effects of everything knitting together’. I also had 3b PPC. Sending hugs to your mum x x
Oh thank you for replying to me.... so glad you are doing well too!! that’s cheered me up 🥰
Hi, I had lots of twinges over the years and they have never been linked to a recurrence. x
thank you kathy! think im paranoid about recurrance... she’s just looking so well and its a constant worry 🥰🥰🥰
Over 12 years later and I still worry, I just try to bear in mind that worrying wont change anything but can ruin the present, easier saidthan done not to worry tho ...... xx best wishes to you and your mum xx
Yes kathy im sure you do ! but you are simply amazing and give so much people hope !!! thanks for replying and i will try not too worry as much!! 🥰🥰🥰🥰🥰
Hi Claire, I had my op in 2013 and still get twinges. I won't say that since my diagnosis everything is hunky dory but on the whole I've been well. I did get a bowel blockage 2 - 3 years later as well. Apparently, this can happen at any time.
I think it's natural to think the worst after such devastating news and I think I've got cancer with every ache and pain now where before I used to brush it off as getting older.
I've been told that scar tissue gets tangled inside sometimes as we're moving about and this can cause some discomfort so I tend not to worry so much now. As long as your mum is having her regular check ups she should be in good hands and I'm sure they'd check it out with a scan if an examination showed a problem.
Try not to worry too much (easy to say, I know). I wish you all the best, Zena x
thank you zena so much for replying to me... I pray my mum is like you, next appt is feb 13th so not long to wait .... I feel better now ❤️❤️❤️
Let us all know how it all goes, Claire. We'll be thinking of you. xx
thank you so much 🥰🥰🥰
Hi Claire
I’m nearly 2 years post op and still get twinges regularly, funny aches and pains that make me stop and think ‘is it back?’ But all tests have been normal up to now. The debulking op is major open surgery and the scar tissue can take years to settle down. Also my onc told me that if you have peritoneal stripping (which I did apparently, and had to ask what that was exactly?!), then your body feels different afterwards and long term aches and niggles are normal.
I know it’s not easy, but if you’re mum is really concerned she could have a blood test to put her mind at rest? But I’m sure she is fine, sending hugs to you and your mum,
Liz Xx 💖
Hi liz! Thank you for replying to me, I think because she looks so well we dont know what’s going on inside do we, it’s only been 8 months so i suppose its still early days.... makes so much sense what you are saying and im so greatful to you .... hugs 🥰🥰🥰🥰
Hi. I hate to go against the many reassurances but I had twinges where my main tumor was on my left ovary and they were a recurrence. If it is actually something it will be in a consistent location and become more constant and more painful so I wouldn’t worry unless that becomes a pattern. Most people don’t have that kind of symptom, but for me it resembled how I felt before diagnosis. Random twinges are nothing to worry about.
hello! thank you for replying! We have an appt in less than 4 weeks she says the twinges come n go and are like little needles every now n then but dont really bother her she said... will defo mention it first thing in next appt! wishing you all the best 🥰🥰🥰🥰
Hi Claire and how good to see positive comments from some of us who have been on Ovacome on and off for a while. Just like others, every twinge can trigger worry that it has come back. I hang onto my oncologists words. If symptoms get worse and persist that is the time to get checked out. He was also against CA 125 tests. At my last consultation before being signed off a new oncologist agreed that I could have an annual CA 125 test. I feel this gives me some reassurance that checks are ongoing. I wish your mum all the best. Another positive story as I approach my seventh year cancer free. My best wishes to your mum. Xx
CA125 levels 
Lymphoedema anyone?
Feeling deflated
any advice on what to do next? My mum has just been diagnosed with PPC and the doctors at our Hospital have already given up?! HELP?!
