Gemcitabine and Carboplatin tomorrow

[Welshandproud]

Good evening fellow teal friends.

I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374 from 166 in December and I have the new tumours. I am pleased that I can still have chemo although I'm slightly concerned by comments like "it's worth giving it a try" That doesn't exactly how inspire me with confidence.

The good news is that I saw the palliative care doctor at my local hospice yesterday who took time to listen to me, examined me, studied my ct pictures carefully and has some ideas about bowel issues and pain in my side and hip. She is liaising with my oncologist to prescribe medications which will work alongside my chemo. She gave me so much more hope if being in less pain.

Thank you ladies for your continued support. Sian xxxx

[Birdsong222]

Wishing you well with this combination Sian. This is what they gave me for a first recurrance. I found it very do able and a lot less troublesome than the carbo/taxel for the initial disease. Good luck and shall be thinking of you tomorrow. Sylvia x

[Differentforgirls]

Hi Sian ( my daughter’s middle name),

I have everything crossed that this next line of treatment works for you & you can once again recover from this horrendous disease & get on with your life as you wish.

I’m about to have another major op ( Tuesday ) followed by more chemo after hearing about my first recurrence.

It’s all so daunting at times but there’s always hope.

You’ve got this!

Take good care, Lynne xx

[Welshandproud in reply to Differentforgirls]

Wishing you all the very best for tomorrow xxxxxx

[Artgreen]

Wishing you well with this Sian, I hope it is very successful and that you are pain free very quickly.

Love Alex x

[Tesla_7US]

Sian, I finished carbo/gem for 2nd recurrence in October 2019. It was by far my easiest chemo experience. My hair thinned a bit, but I got to keep most of it. Side effects were minimal. I felt tired. It did the job! CA in normal range. No visible disease on scan. I am now on Lynparza. I am 3C HGSE BRCA1 and HRD+. I feel better than I have for years. You can do this!!!❤

[Lindaura in reply to Tesla_7US]

Dear Tess,

I just did a search for this regime: Carboplatin and Gemcitabine, and your letter came up.

That is very encouraging, as it is my next recommended treatment.

I too am BRCA1 positive, but my cancer keeps progressing.

Are you still clear?

Thanks for your help,

Laura

[Tesla_7US in reply to Lindaura]

Yes I am! I've now been taking Lynparza/Olaparib 4.5 months and still NED.😊 You can do this!

[Katmal-UK]

Hope it goes well for you Sian xx

[Hidden]

Good Luck 🙋‍♀️ xx

[Katiebairdie]

My fingers are crossed for you. Hope your treatment goes well with minimal side effects.

[Spirit22]

Hope all goes well for you Sian xx

[mrstadpole]

Good Luck for your treatment today Sian Ann xx

[JayGeeCee]

I’ve got everything crossed for you Sian.

Joy xxx

[fendweller]

Wishing you well Sian with the new regime , and hoping you will have the pain under control very soon ,sending love and hugs .xx

[Hidden]

Hope all goes well for you today Sian 🤞xx

[Manchesterlady]

Good luck today xxx

[Alifit]

Good morning Sian

I am starting CarboGem today too. My CA125 is now over 1100, but my treatment was delayed by my looking at a trial. It’s good to hear that for many, this regime is manageable. My appointment is at 4:15 today, so I’m going to try to get my house reasonably tidy (we’ve had an amazing builder in doing our bathroom for about 10 weeks now!). I had a PICC line put in yesterday - another interesting experience, but I can’t have a shower until the waterproof sleeve arrives - possibly as late as Monday - euggg !!

I really hope this works for you - I will be with you in spirit all day.

Do let me know how you are doing.

With much love, Ali x

[Welshandproud in reply to Alifit]

Hi Ali

I hope yours went well too and that you're not having to make too much use of the new bathroom!!! Xxxxc

[avid]

This is my next line of treatment but I have decided to delay for a bit as just getting over the flu. Keep us posted on how it goes and good luck. I was originally diagnosed in 2013 and have just been on Zejula which, like many others, has not worked.

[Welshandproud in reply to avid]

I hope you feel better soon xxxx

[avid in reply to Welshandproud]

I am getting there and I hope your treatment is going okay.

[Welshandproud in reply to avid]

Yes thanks. Sending you a big virtual cwtch x

[Neona]

Good luck- fingers crossed!

[Welshandproud in reply to Neona]

Thank you xxc

[delia2]

Good luck, Siam with the new chemo. Let’s hope it wipes out the cancer! It sounds like going to palliative care was an excellent idea. Let us know how it all works out. Xoxo

[Welshandproud in reply to delia2]

Thanks Delia. The palliative team was absolutely brilliant and they keep checking upon me to see that everything is going well xxx

[mupash]

WISHING YOU THE BEST. IS LYNPARZA OR AVASTIN ALONG WITH CARBO/GEM AN OPTION TO TAKE? HAVE THEY MENTIONED IT? WILL BE THINKING OF YOU.

LEE

[Welshandproud in reply to mupash]

No but I've already had avastin so maybe that's not an option

[Gemimablackvelvet]

Loads of love and good luck with your new treatment.

Angela xxx

[Welshandproud in reply to Gemimablackvelvet]

Thank you Angela xx

[BellmoreBelle]

All my thoughts are with you, Sian! xxx

[Welshandproud in reply to BellmoreBelle]

Thank you so much xx

[carolleigh]

Wishing you well. I was on that combo for over a year. My doctor first put me on for 5 months and it came right back. Then he put me back on for a whole year. I went to NED almost right away and stayed that way. I have been in remission (on no chemo-just avastin) for 5 months. I think everyone tolerates different chemos differently. For me, by half way through my hair thinned. I suspect it activated my arthritis, because a few months after I got off, my arthritis abated. I hear from so many that one can do fine and be on chemo (or not) for at least 10 years and more. I keep hearing from people who do that. So please keep hope. Personally I try to feel that chemo for a decade or more won't be bad. I would love to have along remission, but I am worried about expecting too much and being disappointed.

[Welshandproud in reply to carolleigh]

Sounds good to me xxxx

[carolleigh in reply to Welshandproud]

Yes, really not bad for me. I try to stay positive mentally...remembering gratitude for what I have in life. Good luck to you. There's very many possibilities that things work out well for way longer than I thought when I was first diagnosed...even with chemo. Love and hugs!

[Welshandproud in reply to carolleigh]

Thank you so much Caroleigh. A positive mental attitude is so important when going through treatment.Sending lots of love xxxx

[jools53]

Good luck! Start mine Tuesday caelyx👍🏻 Let’s 🙏 it brings my ca125 back down! Can’t say I not nervous 😬but always hopeful god bless xx

[avid in reply to jools53]

Good luck. Hope all goes well.

[Welshandproud in reply to jools53]

Good luck xxxx

[sticky3006]

I hope your first round went well. You’re Welsh and can do this! Plan your next holiday and good luck x

[Welshandproud]

Think I might xxx

[jools53]

😘😘

[antifer1234]

Hi I follow your posts with interest.

I had Carbo and gem last year. I tolerated it well but found the gem hard on the veins.

I now have a port, I love it it has stopped the vein search and the nurses love them.

Maybe worth a look at.

Best of luck let us know how you are doing please.

Love and hugs Anthea

[Welshandproud in reply to antifer1234]

Thanks Anthea.my veins are holding up at the moment but I won't hesitate to ask for a port when it becomes a problem. How are you doing today?

[jools53]

How’s your pain! Mine is hip & bowels etc 😘😘

[Welshandproud in reply to jools53]

Yes the same. The dexamethasone is certainly helping but you can't stay on them for too long. They also give me the munchies s I'll be having to widen the door frames soon lol xxxxx

[jools53]

😘😂