Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for February 2018

Last chemo (second line)

Today is my last chemo (taxol only as I’m allergic to carbo now) I’m just thinking already of third line as I only got 8 months remission after first line....

Today is my last chemo (taxol only as I’m allergic to carbo now) I’m just think...

Suzanne333

•6 years ago

26 Replies

Medication before Taxol

Hi still suffering with blocked bowel and daily sickness. Just praying it will get better. Fed up of spending every night on the sofa because I can't lie down....

Hi still suffering with blocked bowel and daily sickness. Just praying it will g...

Peppertombs

•6 years ago

10 Replies

My fifth surgery since 2011-2018

In june 2016 , i had my third surgery, but it was not a successful one. The surgeon resect an inflamatory fibroid and kept a clear cell reccurent nodule...

In june 2016 , i had my third surgery, but it was not a successful one. Th...

TAROUZA

•6 years ago

7 Replies

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Worried

Hi Guys, It’s me again. Am a bit worried since my last doctor’s visit my husband has distanced himself from me. I told him about it but he hasn’t said...

Hi Guys, It’s me again. Am a bit worried since my last doctor’s visit my husband...

Ramonasumi

•6 years ago

10 Replies

Endometrioid ovarian cancer

Hi all I have just been diagnosed with endometrioid ovarian cancer stage 1c. Lymph nodes were removed & were fine. I have been told that because there were...

Hi all I have just been diagnosed with endometrioid ovarian cancer stage 1c. Lym...

Caryl

•6 years ago

15 Replies

4 down 2 to go on trial drug CANTRIXIL

Hi ladies I've just had my 4th treatment of the trial drug it is given as an infusion via a port located in abdomen, fist the drug then 1 liter of fluid I can...

Hi ladies I've just had my 4th treatment of the trial drug it is given as an inf...

lorraine71-Australia

•6 years ago

52 Replies

Bloating on Chemo?

I'm halfway through my chemo treatment (done 3 of 6), and I'm having terrible bloating. It feels like it did before my hysterectomy. It's all the time, and...

I'm halfway through my chemo treatment (done 3 of 6), and I'm having terrible bl...

Quiggs1982

•6 years ago

5 Replies

MRI results

Hello everyone. So I went for the results of the MRI Dr. Says he suspects the OC has spread to my liver but needs to confirm it with a biopsy. I was not...

Hello everyone. So I went for the results of the MRI Dr. Says he suspects the O...

Unlockes

•6 years ago

20 Replies

Overthinking

Hello lovelies Hope you are all doing ok I have just returned from a wonderful holiday to Miami and the Bahamas with my fantastic husband Kevin, it was to...

Hello lovelies Hope you are all doing ok I have just returned from a wonderful ...

MH500

•6 years ago

31 Replies

BRCA Case Studies wanted by Ovarian Cancer Action

Hello All Jo from Ovarian Cancer Action is looking for people willing to share their stories about finding out they carry a BRCA mutation after an ovarian...

Hello All Jo from Ovarian Cancer Action is looking for people willing to share t...

OvacomeSupport

Partner•6 years ago

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Don’t go breaking my heart

Today back at the hospital to see the clinical trials team. My ejection fraction is now 48% down from 52% last month. I am now on a treatment break to allow...

Today back at the hospital to see the clinical trials team. My ejection fraction...

ScardyCat40

•6 years ago

18 Replies

BRCA Test

Hi ladies, Can any of you tell me how you got your results for the BRCA test? I was told I would receive a letter through the mail and wondered it this was the...

Hi ladies, Can any of you tell me how you got your results for the BRCA test? I ...

ZenaJ

•6 years ago

34 Replies

Here we are again.

Feeling thoroughly miserable waiting for cold cap and chemo to start. I’m normally the one on the ward chatting and smiling but just can’t drag myself out of...

Feeling thoroughly miserable waiting for cold cap and chemo to start. I’m normal...

Beckyjh

•6 years ago

12 Replies

Cr125 abnormal reading

Went to the doctors other day complaining of side effects of ellest cont bleeding stomachache did blood tests including cr125 come back abnormal 55 now my...

Went to the doctors other day complaining of side effects of ellest cont bleedin...

Jaffa10

•6 years ago

4 Replies

From the husband of BeanieJan

Ovarian Cancer took her away from us all yesterday when she was sleeping peacefully at home and with family around her. She found a lot friends on this site...

Ovarian Cancer took her away from us all yesterday when she was sleeping peacefu...

Hidden

•6 years ago

83 Replies

Update on my travels to see Northern Lights

Well, we've just returned from Norway and I said that I'd post an update and a photo here when I got back. We had the most fantastic time, it was absolutely...

Well, we've just returned from Norway and I said that I'd post an update and a p...

Travelmonster

•6 years ago

53 Replies

Liver spots

All, Hope everyone is going as well as they can Just wondering if anyone out there has experience with oc transferring to the liver and how are they getting on...

All, Hope everyone is going as well as they can Just wondering if anyone out the...

Westawake

•6 years ago

12 Replies

Question

Has anyone ever had recurrence in the vaginal vault? Just had a strange telephone conversation with consultant it is a recurrence but not sure if it...

Has anyone ever had recurrence in the vaginal vault? Just had a strange telephon...

ellseybellsey

•6 years ago

5 Replies

Circling for ideas & next steps - not ready to give up!

Hi a few weeks ago I posted that instead of moving forward to the LOGS MEK inhibitor trial, my low grade OC had accelerated and broken lose. Suddenly even as...

Hi a few weeks ago I posted that instead of moving forward to the LOGS MEK inhib...

Agility

•6 years ago

10 Replies

Borderline stage 3C and just got great CA125 results

Had my 3 month check up and my CA125 fell from 375 before surgery in Sept 2016 to just 3 in Jan 2017. Doc says it will be a great marker for me. I told the...

Had my 3 month check up and my CA125 fell from 375 before surgery in Sept 2016 t...

Heidi-CA

•6 years ago

2 Replies

Learning to be yourself but in a different way

I was diagnosed with ovarian cancer two weeks ago and I was kind of blind-sided as I was firstly diagnosed with pneumonia. There's a lot of waiting for results...

I was diagnosed with ovarian cancer two weeks ago and I was kind of blind-sided ...

Dorcri

•6 years ago

4 Replies

After op pain

Hi Guys, Has anyone every gotten pelvic pain after bilateral Oophorectomy and also bloated. It’s three weeks after surgery is this normal or should I be...

Hi Guys, Has anyone every gotten pelvic pain after bilateral Oophorectomy and a...

Ramonasumi

•6 years ago

7 Replies

Re Olaparib

Thanks for everyone’s suggestions. It sounds like I need Niraparib since I’m BRCA neg and that is impossible right now.

Thanks for everyone’s suggestions. It sounds like I need Niraparib since I’m BRC...

sandyhopes

•6 years ago

2 Replies

Lump below ear

Has anyone had an enlarged lymph node below ear next to jaw which was spread of OC? Thanks

Has anyone had an enlarged lymph node below ear next to jaw which was spread of ...

Caryl

•6 years ago

11 Replies

Totally confused

I'm 67 years old. I had debulking surgery in January, on the understanding I'd most likely got epithelial serous ovarian cancer which had migrated to the...

I'm 67 years old. I had debulking surgery in January, on the understanding I'd m...

bamboo89

•6 years ago

16 Replies

Ovacome Members Day 3 March - questions for speakers

Dear All As many of you know, it is our Members Day on 3 March. We're really looking forward to seeing so many of you there! As with last year, if any of you...

Dear All As many of you know, it is our Members Day on 3 March. We're really loo...

OvacomeSupport

Partner•6 years ago

7 Replies

Update

Hi Everyone, Just an update to say Mammy is getting her chemo started today :) We were very nervous about her appointment this morning and were worried maybe...

Hi Everyone, Just an update to say Mammy is getting her chemo started today :) ...

DellaTee

•6 years ago

8 Replies

What happens after chemo ends

Hi just wanted to know my mum is just having her last chemo session she was diagnosed to have stage 1c oc what happens how they said they will be in touch...

Hi just wanted to know my mum is just having her last chemo session she was diag...

1lisamac

•6 years ago

13 Replies

Hello anyone at the Marsden Chelsea today???

If anyone of you lovely ladies on here are at the Marsden Chelsea today it would be lovely to say HELLO. I am due at 11.30, will be in the PP chemo unit and...

If anyone of you lovely ladies on here are at the Marsden Chelsea today it would...

antifer1234

•6 years ago

4 Replies

Just a little photo of our first born, my hair growth and the scarf.

Hi girls, I hope you are all feeling as well as you can today. I don't do photos of me much but today I donned the lippy , brushed my hair :-) and stuck some...

Hi girls, I hope you are all feeling as well as you can today. I don't do photos...

Kryssy

•6 years ago

47 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2018

Last chemo (second line)

Medication before Taxol

My fifth surgery since 2011-2018

Worried

Endometrioid ovarian cancer

4 down 2 to go on trial drug CANTRIXIL

Bloating on Chemo?

MRI results

Overthinking

BRCA Case Studies wanted by Ovarian Cancer Action

Don’t go breaking my heart

BRCA Test

Here we are again.

Cr125 abnormal reading

From the husband of BeanieJan

Update on my travels to see Northern Lights

Liver spots

Question

Circling for ideas & next steps - not ready to give up!

Borderline stage 3C and just got great CA125 results

Learning to be yourself but in a different way

After op pain

Re Olaparib

Lump below ear

Totally confused

Ovacome Members Day 3 March - questions for speakers

Update

What happens after chemo ends

Hello anyone at the Marsden Chelsea today???

Just a little photo of our first born, my hair growth and the scarf.

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