Hi ladies I've just had my 4th treatment of the trial drug it is given as an infusion via a port located in abdomen, fist the drug then 1 liter of fluid I can hardly get off the bed I'm so full. I now have 2 posts one in my chest and on my rib, I feel like going into a service station drive in and fill up.
A few hours arfter the infusion I'm hit with terrible pain that last through the night I don't know if this is the drug or all the fluid washing around in the cavity of my abdomen, has any one else had a IP port and how did it feel?.
I'm so glad I only have 2 more as I don't know if I could continue, I'm not sure the next step I read the notes again and it seems that arfter the 6 treatment it's a scan then it's the drug and chemo together, if this is right I don't think I could handle that my oncologist said I can drop out at any time and go back on Caelyx, which has been good for me,
Hopefully the trial drug will do some good in making the cancer more sensitive to chemo I'll have a good talk to the prof doing the trial next visit.
Take care my friends we need some good results from these trials..Lorraine xx😀