Posts - My Ovacome | HealthUnlocked

My Ovacome

17,803 members • 20,044 posts

All posts for August 2017

Signs

Hi Everyone : I was diagnosed 2 years ago 3c low grade .So far I have Been clean my 125 was 10 last week but I'm very worried. I have been feeling twinges and...

Hi Everyone : I was diagnosed 2 years ago 3c low grade .So far I have Been clean...

Shqiperia

•7 years ago

9 Replies

What did they think your cyst/mass was before diagnosis

Was wandering if while having or after us did they tell you you had a cyst or mass or afterwards what did they think your cyst was ie dermoid . Hemorrahgic....

Was wandering if while having or after us did they tell you you had a cyst or ma...

leeanne81

•7 years ago

25 Replies

Celebrating a clear scan 🎉

Yesterday I had my 6-monthly US scan and I'm pleased to report all looks tickety-boo 👍🏻 I'm hot to trot for another 6-months...which is a HUGE relief and...

Yesterday I had my 6-monthly US scan and I'm pleased to report all looks tickety...

Mrs_Atko

•7 years ago

91 Replies

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Results

After all the worry over "suspicious" mri, elevated ca125, and several risk factors I have been given word that my cyst is benign. I am relieved, more than...

After all the worry over "suspicious" mri, elevated ca125, and several risk fact...

otter52

•7 years ago

23 Replies

First recurrence and immunotherapy being offered!

Hi All--updates and info as I love when you all share new and hopeful treatments so wanted to do the same. As some of you know, I was dx in June '16-Stage IV,...

Hi All--updates and info as I love when you all share new and hopeful treatments...

Maxjor

•7 years ago

11 Replies

Update

My sister is still in hospital. She had a caecostomy as opposed to a colostomy or illeostomy. I can find very little information in caecostomies other than...

My sister is still in hospital. She had a caecostomy as opposed to a colostomy o...

Seavccg

•7 years ago

9 Replies

Worried, dismissive doctor

Hi all. I was diagnosed with a 4cm complex ovarian cyst on my right ovary in June after trying to find the cause of my severe lower back pain. Doctor was...

Hi all. I was diagnosed with a 4cm complex ovarian cyst on my right ovary in Jun...

worriedmama09

•7 years ago

7 Replies

Cold cap

Couldn't attach a photo to my reply to Suzanne 333 (? can't tag you, sorry!) who posted about the cold cap. This is what it looks like. Consists of a...

Couldn't attach a photo to my reply to Suzanne 333 (? can't tag you, sorry!) who...

SarahsJourney

•7 years ago

7 Replies

Update

Just to let you all know that my mri report is back but gynae on holiday she is going to speak to her to see if she will gjve me a ring on monday i am trying...

Just to let you all know that my mri report is back but gynae on holiday she is ...

mortigger

•7 years ago

3 Replies

Cold cap.

With the inevitable chemo looming again, has anyone any thoughts, experience etc on cold caps? I can't stand the thought of losing my hair again- not that I've...

With the inevitable chemo looming again, has anyone any thoughts, experience etc...

Suzanne333

•7 years ago

45 Replies

Waiting for new treatment to start getting anxious

Hi. I was diagnosed 2015 have. Had chemo and 12 treatments of avastin. Now waiting to start niraparib treatment. Has anyone taken this. How did you cope...

Hi. I was diagnosed 2015 have. Had chemo and 12 treatments of avastin. Now ...

valo

•7 years ago

16 Replies

Positivity needed.

Hi all. Yesterday I went for my avastin treatment. They've cancelled it indefinitely as they say it's not doing any good. I had a CT scan two weeks ago and...

Hi all. Yesterday I went for my avastin treatment. They've cancelled it indefi...

Suzanne333

•7 years ago

51 Replies

Worried I have overian cancer

I have just had a ct scan I have a mass on my right overary and a mass on my left I have pain every day tummy bloated been like this since last sept doctor...

I have just had a ct scan I have a mass on my right overary and a mass on my lef...

Kaz47

•7 years ago

9 Replies

My doctor has asked for a Urine sample to test for CA125

He did not tell me what the test was for as he thinks that I have IBS however when I googled ca125 it came back as OC however this is a Urine test not a blood...

He did not tell me what the test was for as he thinks that I have IBS however wh...

Hidden

•7 years ago

7 Replies

Icon8b clinical trial.

Hi anybody doing this trial ?

Zena41

•7 years ago

17 Replies

Some time out :)

Little pic of hubby and I last night in Tiger Lilly in Edinburgh. I'm currently sitting in Harvey Nicks having a hot chocolate and relaxing while he's at...

Little pic of hubby and I last night in Tiger Lilly in Edinburgh. I'm currently...

Jo2305

•7 years ago

10 Replies

im new here

my husband has had episodes of unexplained extreme incapacitating pain in his left kidney area, he had a recent ct scan that was supposed to be with contrast...

my husband has had episodes of unexplained extreme incapacitating pain in his l...

cathypat

•7 years ago

4 Replies

Sneaky anxiety........

Morning All and I hope you are all well! I didn't really know whether to post this or not but I thought all of you will definitely understand! Over the last...

Morning All and I hope you are all well! I didn't really know whether to post th...

HogwartsDK

•7 years ago

27 Replies

Taken off clinical trial

Hi ladies. Just got back from a fabulous holiday to Las Vegas! I went for my oncology apointment the next day to get scan results. They weren't good. One...

Hi ladies. Just got back from a fabulous holiday to Las Vegas! I went for my o...

Kim1958

•7 years ago

20 Replies

Feeling worried due to high ca125 level.

Hi ladies, i have been reading through all your posts and find you all such a support . Although I have not been diagnosed with anything yet I am still in the...

Hi ladies, i have been reading through all your posts and find you all such a su...

Hacke82

•7 years ago

6 Replies

Rash

Had second taxol yesterday came out in a itchy rash had anybody else had this xx

Had second taxol yesterday came out in a itchy rash had anybody else had this xx...

Friscok12

•7 years ago

10 Replies

HRT

Hi ladies, My friend is having a hysterectomy today (she hasn't got cancer) she's been told that she'll have to take HRT from now on. She's 68. When I asked...

Hi ladies, My friend is having a hysterectomy today (she hasn't got cancer) she'...

ZenaJ

•7 years ago

26 Replies

Leg Pain

Hi everyone just wondered if anyone has suffered leg pain whilst on carbo/caelyx. I'm on a trial drug plus the chemo and I did read that caelyx can cause a...

Hi everyone just wondered if anyone has suffered leg pain whilst on carbo/caely...

SuSue

•7 years ago

12 Replies

Needing Some Advice

Hi everyone, I am a 30yr old new Mommy to an 8month old baby boy. I've been battling with the doctors (and myself) for the last couple of months. In mid...

Hi everyone, I am a 30yr old new Mommy to an 8month old baby boy. I've been ...

Ashtnren

•7 years ago

17 Replies

Granulosa tumour

Sorry to be a pain but i would like to talk to people about granulosa type tumours could someone please inbox me so we can chat if possible ...thanks

Sorry to be a pain but i would like to talk to people about granulosa type tumou...

mortigger

•7 years ago

11 Replies

Primary Perintoneal Cancer

This is my story ... I was diagnosed in June of 2015 My primary dr was treating me for upper respiratory problems and thought I had reflux since January I...

This is my story ... I was diagnosed in June of 2015 My primary dr was treating...

Dbslp1985

•7 years ago

10 Replies

Hope and Encouragement

Hi everyone, Last March I posted my questions and you were all so very kind with your responses. Although I am in the States and I assume most of you are in...

Hi everyone, Last March I posted my questions and you were all so very kind with...

rteeter

•7 years ago

3 Replies

New member

Hi dear ladies I wanted to share my story here. I had ovarian cancer 10 years ago stage 1, I did 4 rounds of taxol, and never had problems anymore until now...

Hi dear ladies I wanted to share my story here. I had ovarian cancer 10 years a...

Christina87

•7 years ago

3 Replies

Weekly taxol

I had my second weekly taxol today ca125 up only by 8 but should it not be coming down anybody on weekly taxol what did your ca125 do xx

I had my second weekly taxol today ca125 up only by 8 but should it not be comin...

Friscok12

•7 years ago

2 Replies

Looking for local support in Worthing

Hello all We have been contacted by a woman who is looking for support from other women with ovarian cancer in her local area, who are around the same age as...

Hello all We have been contacted by a woman who is looking for support from othe...

OvacomeSupport

Partner•7 years ago

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2017

Signs

What did they think your cyst/mass was before diagnosis

Celebrating a clear scan 🎉

Results

First recurrence and immunotherapy being offered!

Update

Worried, dismissive doctor

Cold cap

Update

Cold cap.

Waiting for new treatment to start getting anxious

Positivity needed.

Worried I have overian cancer

My doctor has asked for a Urine sample to test for CA125

Icon8b clinical trial.

Some time out :)

im new here

Sneaky anxiety........

Taken off clinical trial

Feeling worried due to high ca125 level.

Rash

HRT

Leg Pain

Needing Some Advice

Granulosa tumour

Primary Perintoneal Cancer

Hope and Encouragement

New member

Weekly taxol

Looking for local support in Worthing

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