Hi All--updates and info as I love when you all share new and hopeful treatments so wanted to do the same. As some of you know, I was dx in June '16-Stage IV, BRCA positive, 6 cycles of carbo/taxol starting in August (debulking after 4 cycles) ending in December '16. I was on a clinical trial with a PARP inhibitor from the start of chemo--could be on a placebo of the real thing (double blind). I just recurred (ca 125 steadily rising 5 then 8, then 15 then 73 (now 85) and my last post stated they did not want me to have the scan until end of August per the clinical trial protocol which made no sense to me. I had the right to come off but even before I said I wanted to, my surgeon saw my numbers and just said "scan tomorrow".
Had the scan which confirmed "nodularity" in my upper left peritoneum. They measure under .7cm and the report actually said "watch and follow up" so it was caught early.
I met my new oncologist yesterday (mine moved away) and he is a GYN oncologist specializing in immunotherapy (I am at Memorial Sloan in NY). He said I had many options and among them, an immunotherapy trial (he is running it). My family was with me and we all agree, this sounds promising and he said he has patients that so far have gone 18 months with no relapse. (The trial lasts almost two years). No chemo, no PARP (so it can be saved for another time) and he said if it doesn't work, the cancer is so small right now, there is time "without worry" to go on chemo. If it is working, this is all I do (infusion every other week or every week depending on the arm of the trial I am on). One arm is one immunotherapy agent and the other arm is two immunotherapy agents. The side effects are two pages long but the most common are fatigue and nausea. Same when I started chemo (list of side effects) but I had almost none (the inevitable WBC count getting too low a couple of times which can happen here too). I think its worth a try and really think starting chemo later (rather than 8 months after the last one ended) is helpful too. The drugs are Nivolumab and Ipilimumab (if you google them together, the trial comes up).
Wishing you wonderful ladies a good weekend! Fingers crossed for many of us that good results are to be had with this!