Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for November 2013

Lobbying workshop for Ovacome members, Saturday 18 January 2014

Calling all Ovacome members, Ovacome works with national stakeholders to campaign for improvements but we know that through telling your story, you can make...

Calling all Ovacome members, Ovacome works with national stakeholders to campa...

TheOvacomeTeam

Partner•10 years ago

3 Replies

Hyperthermia?

Hi. My sister has just had hysterectomy to remove two large cancerous tumours on her ovaries. Surgery showed cancer has spread to outside of large bowel, and...

Hi. My sister has just had hysterectomy to remove two large cancerous tumours o...

Evana

•10 years ago

2 Replies

Can anybody share the experience of being told 6 months to live with OC, themselves or family members.

My sister was diagnosed with Stage IV OC about two and a half years ago and has had ops and chemo. She has now decided that she does not want any more...

My sister was diagnosed with Stage IV OC about two and a half years ago and has ...

Hidden

•10 years ago

15 Replies

Want to take advantage of all our features? Just log in!

I want to thank you all so much

This board has been priceless to me over these past few scary weeks. Let me tell you my whole background. I had a mirena coil fitted 5 yrs ago for heavy...

This board has been priceless to me over these past few scary weeks. Let me tel...

Langstonelady

•10 years ago

6 Replies

Cin3/cgin off for scan -advice please

Hello I am nearly 28 and have a 15month daughter - since my daughter was born I have had persistent pain in my lower back and tummy, I have always put it down...

Hello I am nearly 28 and have a 15month daughter - since my daughter was born I...

Kooky72

•10 years ago

2 Replies

Cin3/cgin off for scan and have symptoms of OC very very scared

Hello I am nearly 28 and have a 15month daughter - since my daughter was born I have had persistent pain in my lower back and tummy, I have always put it down...

Hello I am nearly 28 and have a 15month daughter - since my daughter was born I...

Kooky72

•10 years ago

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◇◇◇◇Questions to ask if OC is found◇◇◇◇

Good Morning, I have not long to go now, thank goodness for that. Pain in hips, bloated, not able to walk for more than 15 mins, feeling like I am pregnant...

Good Morning, I have not long to go now, thank goodness for that. Pain in hips,...

Langstonelady

•10 years ago

20 Replies

Ideas for building strength for chemo?

My mum came home from hospital last night! They've finally sorted her infections and bladder issues and have told her to get home and start building her...

My mum came home from hospital last night! They've finally sorted her infections...

winni

•10 years ago

15 Replies

All clear !!!!!

Hi all sorry I haven't been on for a while been busy with hospital appointments and visitors. I have been told my results are as follows Borderline Tumour, 99%...

Hi all sorry I haven't been on for a while been busy with hospital appointments ...

brunette0311

•10 years ago

17 Replies

I have a 4cm cyst from 4 years ago in my left ovary, started out at 1cm back then. I am now having it removed but during the pre-surgery ..

They told me my CA125 was only slightly high( didn't tell me number). Should I be worried? Even though Ive had the cyst for 4 years already? The doctor told me...

They told me my CA125 was only slightly high( didn't tell me number). Should I b...

cmd79

•10 years ago

4 Replies

Ovarian CarcinoSarcoma

Hi all. I'm new to this site. In June this summer my mum was diagnosed with stage IIIC ovarian cancer. She's now had lots of chemo and a complete hysterectomy...

Hi all. I'm new to this site. In June this summer my mum was diagnosed with sta...

Mayski

•10 years ago

15 Replies

Here we go again!

Hi people, well got my scan results and things have been progressing since the August scan. I now have ascites again more omental caking, a pelvic mass...

Hi people, well got my scan results and things have been progressing since the A...

hereshoping

•10 years ago

22 Replies

step backwards

Hi every one since my chemo. finished 4 months ago I have developed IBS. Then two days ago i had the most terrible vaginal bleed it seems its related to the...

Hi every one since my chemo. finished 4 months ago I have developed IBS. Then tw...

jennybutler

•10 years ago

23 Replies

New Treatment

Anyone seen the mail on line today.In the health section interesting.?

caz52

•10 years ago

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Pre admission appointment done, being admitted Monday. News today I am being made redundant

I must stress this is NOT because of the operation, nothing has been diagnosed yet, but this is down to overall absence over the past 12 months. I had 6 weeks...

I must stress this is NOT because of the operation, nothing has been diagnosed y...

Langstonelady

•10 years ago

12 Replies

New research on treatment for oc article in the Sydney Morning Telegraph

Hi all, there is an interesting article in the above paper. I get Google alerts from the Telegraph for any article on oc, this came through today, 12th. I...

Hi all, there is an interesting article in the above paper. I get Google alerts ...

trix70

•10 years ago

10 Replies

Hi I was just wondering if anybody going through the same as me? I turned 45 in October haven't seen a period since the end of august.

I'm not menopausal nor pre so was just wondering if anyone has been through the same it's 3months if I miss this month thanks X

I'm not menopausal nor pre so was just wondering if anyone has been through the ...

susanilo

•10 years ago

4 Replies

No scary personal stories - just floating a couple of ideas

Hello - my name is Liz and I've never posted here before though I have been scanning the site for months. I wanted to share a couple of ideas and see if others...

Hello - my name is Liz and I've never posted here before though I have been scan...

TornacLiz

•10 years ago

11 Replies

First 3 monthly check up,, what to except?

I have my first 3 monthly check up tomorrow and I'm really getting myself worked up about it.. I think it's just down to not knowing what to except from it?...

I have my first 3 monthly check up tomorrow and I'm really getting myself worked...

Belle

•10 years ago

9 Replies

Struggling to walk round for too long

I am so glad 95% of my shopping is complete for Xmas, and my op is in 8 days time. I feel so sore walking round all I can manage now is pottering in the house...

I am so glad 95% of my shopping is complete for Xmas, and my op is in 8 days tim...

Langstonelady

•10 years ago

6 Replies

Paclytaxol side effects?

Snam

•10 years ago

7 Replies

Biopsy trial? Anyone been asked or taken part?

Hi ladies. I have been approached to go on the BriTROC -1 trial. It's a trial for women who have had recurrence and they are looking at why, what, when, who,...

Hi ladies. I have been approached to go on the BriTROC -1 trial. It's a trial f...

Izzystep

•10 years ago

16 Replies

Any experience with stents and recurrent infection?

hello all I had a stent fitted in September from my kidney to my bladder but have been plagued by infection since. I've had one 7 night stay in hospital which...

hello all I had a stent fitted in September from my kidney to my bladder but hav...

sarah1963

•10 years ago

11 Replies

CA 125 levels

Just curious and I know there is advice not to trust the reading as it could be effected by other matters, but honestly would you say my reading of 351 is a...

Just curious and I know there is advice not to trust the reading as it could be ...

Langstonelady

•10 years ago

6 Replies

Surprised and reassured

Following my post yesterday with my op date changing my surgeon phoned me last night at 7.20pm to apologise for this it was an oversight on his and as he...

Following my post yesterday with my op date changing my surgeon phoned me last n...

Langstonelady

•10 years ago

20 Replies

So cross, my surgery is not the 12th as the CNS wrote down for me, its the 19th

So I am mad. Its only that I phoned up chasing when my pre op would be that I found this out. He had not even got a surgery that day.

So I am mad. Its only that I phoned up chasing when my pre op would be that I fo...

Langstonelady

•11 years ago

6 Replies

Blood platelets low couldn't have chemo

Was in for chemo today got bloods taken when they came back all my bloods were good except platelets were low have to go back Friday for new blood test to see...

Was in for chemo today got bloods taken when they came back all my bloods were g...

Mullers2000

•11 years ago

8 Replies

sorry

Hello ladies so sorry I haven't been on here for a while I do read all your posts as they come through on my phone but its hard to write replies on my phone....

Hello ladies so sorry I haven't been on here for a while I do read all your post...

suzannehadenough

•11 years ago

21 Replies

Hi everyone - i'm new to this and just really need some advice regarding my symptoms - am i going mad? i just dont know what to do :(

I had CIN 3 severe dyskaryosis in 2006 and had treatment, smears all clear every year since then. Went on to have several hysteroscopys for suspected polyps...

I had CIN 3 severe dyskaryosis in 2006 and had treatment, smears all clear every...

westygirl

•11 years ago

9 Replies

Press Article about Access to Bevacizumab (Avastin) in Wales

The Western Mail ran an article today on access to Bevacizumab (Avastin) in Wales and my move to England to obtain the drug. For anyone who's interested...

The Western Mail ran an article today on access to Bevacizumab (Avastin) in Wale...

Whippit

•11 years ago

10 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2013

Lobbying workshop for Ovacome members, Saturday 18 January 2014

Hyperthermia?

Can anybody share the experience of being told 6 months to live with OC, themselves or family members.

I want to thank you all so much

Cin3/cgin off for scan -advice please

Cin3/cgin off for scan and have symptoms of OC very very scared

◇◇◇◇Questions to ask if OC is found◇◇◇◇

Ideas for building strength for chemo?

All clear !!!!!

I have a 4cm cyst from 4 years ago in my left ovary, started out at 1cm back then. I am now having it removed but during the pre-surgery ..

Ovarian CarcinoSarcoma

Here we go again!

step backwards

New Treatment

Pre admission appointment done, being admitted Monday. News today I am being made redundant

New research on treatment for oc article in the Sydney Morning Telegraph

Hi I was just wondering if anybody going through the same as me? I turned 45 in October haven't seen a period since the end of august.

No scary personal stories - just floating a couple of ideas

First 3 monthly check up,, what to except?

Struggling to walk round for too long

Paclytaxol side effects?

Biopsy trial? Anyone been asked or taken part?

Any experience with stents and recurrent infection?

CA 125 levels

Surprised and reassured

So cross, my surgery is not the 12th as the CNS wrote down for me, its the 19th

Blood platelets low couldn't have chemo

sorry

Hi everyone - i'm new to this and just really need some advice regarding my symptoms - am i going mad? i just dont know what to do :(

Press Article about Access to Bevacizumab (Avastin) in Wales

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