Posts - My Ovacome | HealthUnlocked

My Ovacome

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Would like to meet some friends who also have ovarian cancer, living in London and having treatment at Royal Marsden Chelsea.

Hi I am an ovarian cancer 3B patient, I am Chinese, living in London Fulham, having my treatment at Royal Marsden in Chelsea. Are there any other patients also...

Hi I am an ovarian cancer 3B patient, I am Chinese, living in London Fulham, hav...

JingJingLove

•1 day ago

2 Replies

stage 4b ovarian

Hi everyone, I'll be starting carbo/caelyx next month 6 cycles for 1st recurrence. Does anyone know if this combo doesn't work, what will they offer to me...

Hi everyone, I'll be starting carbo/caelyx next month 6 cycles for 1st recurren...

Pianoanddisco

•1 day ago

3 Replies

Stage 4b Ovarian

Hi everyone, Just curious, did anyone take vitamins such D or B12 or even Omega 3 fish oil while doing the conventional chemo treatments? thanks

Hi everyone, Just curious, did anyone take vitamins such D or B12 or even Omega...

Pianoanddisco

•1 day ago

29 Replies

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Ovacome Walk with Us - Birmingham - 28 September 2024

Hello All 📢 Just under two weeks left to sign up for Ovacome's annual community walk, “Walk With Us”, taking place in Cannon Hill Park, Birmingham on 28...

Hello All 📢 Just under two weeks left to sign up for Ovacome's annual commu...

TheOvacomeTeam

Partner•1 day ago

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tomato

hi I am back having chemo, red devil two days not feeling good. My sister has bought me local honey, but the seller said not for babies, we asked about chemo...

hi I am back having chemo, red devil two days not feeling good. My sister has b...

Balliol15

•4 days ago

7 Replies

Serous Borderine tumor

I have Serous Borderline tumor . Has anyone else got this diagnosis ? Should I be worried

I have Serous Borderline tumor . Has anyone else got this diagnosis ? Should I...

Kyles21

•5 days ago

4 Replies

Avastin

Hello I’ve read on here about self funding for Avastin. Can I ask how you go about this? Is it through your NHS Consultant? Thanks for any help xx

Hello I’ve read on here about self funding for Avastin. Can I ask how you go ab...

Kamloops

•6 days ago

6 Replies

Nariparib question

Hi I recently posted about my CA125 increasing to 23. Over the last few weeks I’ve been feeling pretty ill and this is gradually worsening. The symptoms are...

Hi I recently posted about my CA125 increasing to 23. Over the last few weeks I...

Mintybiscuit

•6 days ago

5 Replies

Book Club

Hi All A few of us from this community forum have recently decided to meet as a Book Club in order to read and learn together about cancer, ovarian cancer,...

Hi All A few of us from this community forum have recently decided to meet as a...

MountainSeeker

•7 days ago

18 Replies

kieran2018

hi everyone, I was diagnosed with stage 4b ovarian cancer in 2020. I underwent surgery had chemo paclitaxel and carboplatin. I commenced on olaparib for two...

hi everyone, I was diagnosed with stage 4b ovarian cancer in 2020. I underwent ...

Kieran2018

•7 days ago

24 Replies

What's on at Ovacome next week? (week beginning Monday 16 September 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

OvacomeSupport

Partner•7 days ago

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Rising CA125, feeling low

Since finishing chemo a year ago for stage 3 OC my CA125 has remained stable at between 6 and 9. I’ve just found out that it has increased to 23 from 6 a month...

Since finishing chemo a year ago for stage 3 OC my CA125 has remained stable at ...

Mintybiscuit

•8 days ago

6 Replies

Caelyx/Carbo & stomach issues

Dear ladies, Hope you are at good place. I had just my second chemo of Caelyx & Carbo and I suffer from stomach issues almost whole time. Is day 8 and is...

Dear ladies, Hope you are at good place. I had just my second chemo of Caelyx ...

Beatyourself

•8 days ago

27 Replies

post-surgery pain

I had a full hysterectomy and debulking surgery last Thursday, so 5 days ago. I have a large incision from about 8 cm above my tummy button to my knicker line....

I had a full hysterectomy and debulking surgery last Thursday, so 5 days ago. I ...

ColinsGirl

•8 days ago

7 Replies

TV show: This Morning

Hi there. At my Pilates class this morning, a lady told me that This Morning had done a piece on abdominal surgery and how this can have a longterm effect on...

Hi there. At my Pilates class this morning, a lady told me that This Morning ha...

candyapplegrey

•9 days ago

11 Replies

My first post so hello to all and I hope everyone is doing well

I've had 2 clear reviews but still get worried about the future and the possibility of cancer returning. I'm currently experiencing diarrhoea and will need to...

I've had 2 clear reviews but still get worried about the future and the possibil...

Labradorlass

•9 days ago

6 Replies

Caelyx and hair loss

I’m wondering how much hair loss people have had on Caelyx? The nurse thinks I probably don’t need scalp cooling. I’ve been on carboplatin and paclitexal for...

I’m wondering how much hair loss people have had on Caelyx? The nurse thinks I p...

Florrie2

•9 days ago

15 Replies

Ovacome Health and Wellbeing Days this autumn - Bristol, Southampton, Bournemouth and Bath

Good morning everyone, This is a post to let you know that Ovacome will be hosting a number of free Health and Wellbeing Days this autumn for anyone who...

Good morning everyone, This is a post to let you know that Ovacome will be ho...

OvacomeSupport

Partner•9 days ago

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Olaparib HRD+

Hi lovely ladies My mum is nearing the end of first-round treatment - two more chemos to go. We found out that she is HRD+ (not BRCA) so will be being put on...

Hi lovely ladies My mum is nearing the end of first-round treatment - two more ...

georgiageorgia182

•10 days ago

5 Replies

Ovacome Raffle 2024

Hello All Ovacome’s annual charity raffle is back… and its bigger, better, and more luxurious than ever! ✨ Are you ready to win big and make a real...

Hello All Ovacome’s annual charity raffle is back… and its bigger, better, and ...

TheOvacomeTeam

Partner•10 days ago

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Strange goings on

I've received an email (as we normally do) that someone has sent me a private message. It says Pleas click to visit your inbox, etc. and it's from Reeves17....

I've received an email (as we normally do) that someone has sent me a private me...

candyapplegrey

•11 days ago

6 Replies

Demystifying the science behind targeted treatments and immunotherapies for gynaecological cancers

Hi All I have signed up to attend an afternoon event "Demystifying the science behind targeted treatments and immunotherapies for gynaecological cancers" on...

Hi All I have signed up to attend an afternoon event "Demystifying the science...

MountainSeeker

•12 days ago

7 Replies

Niraparib

Any advice ladys just been prescribed niraparib

PaumicB123

•12 days ago

11 Replies

What's on at Ovacome next week? (week beginning Monday 9 September 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

OvacomeSupport

Partner•14 days ago

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Desensitization protocol

Hello ladies, After switching to docetaxel due to a strong reaction to taxol, I had a similar reaction although milder to the second docetaxel infusion. So...

Hello ladies, After switching to docetaxel due to a strong reaction to taxol, I...

Lara1

•14 days ago

7 Replies

I'm post-menopausal and a probable endo was found as an incidental. I have no pain or anything so should I have surgery anyway?

I wouldn't have had any idea that I had an issue unless it happened to be found as an incidental on a CT scan. I don't have any pain and the only reason I did...

I wouldn't have had any idea that I had an issue unless it happened to be found ...

starrynight5626

•15 days ago

5 Replies

Liquid Biopsy

My mom's onco is suggesting liquid biopsy as she does not have good site for tissue and lately not responding to treatment regimen. Her cancer shed lot of...

My mom's onco is suggesting liquid biopsy as she does not have good site for tis...

msuspartan

•15 days ago

3 Replies

Ascites

Hi lovely ladies. I had multiple hernia repair 9 weeks ago. Major surgery and in hospital for a week. Much worse than debulking surgery. I have what I feel is...

Hi lovely ladies. I had multiple hernia repair 9 weeks ago. Major surgery and in...

verityann

•15 days ago

3 Replies

Should I opt to have surgery to remove the endo even though they think it's a very low chance it's cancer, or just keep getting ultrasounds?

My story is that I had a CT scan back in March when I was sent to have due to stomach pains which, at the time, they thought was appendicitis but just wanted...

My story is that I had a CT scan back in March when I was sent to have due to st...

starrynight5626

•16 days ago

3 Replies

ca-125 after debulking surgery

Could You answer, Ladies, how high (or mayby low) was Your ca-125 level just after surgery and before chemo. And was it problem for oncologist?

Could You answer, Ladies, how high (or mayby low) was Your ca-125 level just af...

nordic5

•16 days ago

15 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Would like to meet some friends who also have ovarian cancer, living in London and having treatment at Royal Marsden Chelsea.

stage 4b ovarian

Stage 4b Ovarian

Ovacome Walk with Us - Birmingham - 28 September 2024

tomato

Serous Borderine tumor

Avastin

Nariparib question

Book Club

kieran2018

What's on at Ovacome next week? (week beginning Monday 16 September 2024)

Rising CA125, feeling low

Caelyx/Carbo & stomach issues

post-surgery pain

TV show: This Morning

My first post so hello to all and I hope everyone is doing well

Caelyx and hair loss

Ovacome Health and Wellbeing Days this autumn - Bristol, Southampton, Bournemouth and Bath

Olaparib HRD+

Ovacome Raffle 2024

Strange goings on

Demystifying the science behind targeted treatments and immunotherapies for gynaecological cancers

Niraparib

What's on at Ovacome next week? (week beginning Monday 9 September 2024)

Desensitization protocol

I'm post-menopausal and a probable endo was found as an incidental. I have no pain or anything so should I have surgery anyway?

Liquid Biopsy

Ascites

Should I opt to have surgery to remove the endo even though they think it's a very low chance it's cancer, or just keep getting ultrasounds?

ca-125 after debulking surgery

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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