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My Ovacome

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Worried and looking for reassurance

Is anyone able to share positive stories of having more than two reoccurrences? I’m worried about my friend and would love to hear about others who are still...

Is anyone able to share positive stories of having more than two reoccurrences? ...

Star_22

•5 hours ago

2 Replies

Ovacome clinical update day 18 May 2024 London

Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by...

Hello All You are warmly invited to join us for our annual clinical update day ...

OvacomeSupport

Partner•15 hours ago

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Hair, brows and eyelashes!

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer....

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in ...

SuziSch

•21 hours ago

4 Replies

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Hernia from debulking

Greeting all. I had debulking in October. Now on avastin maintenance every 3 weeks. In late February I developed incisional hernia. By march it was huge....

Greeting all. I had debulking in October. Now on avastin maintenance every 3 ...

chocolatemilk44

•1 day ago

8 Replies

What's on at Ovacome next week? (week commencing Monday 13 May 2024)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•1 day ago

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Primary peritoneal, ovarian

Hi is there many ladies with this diagnosis and how did you go on?thanks in advance

Hi is there many ladies with this diagnosis and how did you go on?thanks in adva...

Molste

•2 days ago

7 Replies

No woman left behind

Sorry I meant to add this to my previous post Https://worldovariancancercoalition.org

Sorry I meant to add this to my previous post Https://worldovariancancercoalitio...

Tulips66

•3 days ago

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No woman Left Behind

Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you all today . We all show remarkable courage & strength as we deal with this...

Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you a...

Tulips66

•3 days ago

13 Replies

Carbo/Gem

Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of...

Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/...

NewtonEmma1900

•3 days ago

10 Replies

blue lips side effect olaparib

I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side...

I’ve just started olaparib maintenance therapy following debunking and chemo tha...

Beatbigc

•3 days ago

1 Reply

immunotherapy for OVCA

just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was...

just wanted to provide an update on using immunotherapy, in my case Opdivo and ...

Leniko

•3 days ago

8 Replies

Duloxetine and/or Pyridoxine

Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice...

Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll...

Irisisme

•4 days ago

20 Replies

Looking for good news please

Hello lovely ladies, I have a scan on Wednesday, 7 months since last chemo session. I'm feeling good only worry is lymph node under my arm is swollen & I look...

Hello lovely ladies, I have a scan on Wednesday, 7 months since last chemo sessi...

Pixiepurple

•5 days ago

13 Replies

Avastin + Taxol + Carbo & eye problems

Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge...

Hello ladies I am on the above drug combination for stage 4 clear cell cancer, &...

Kazzh

•5 days ago

20 Replies

Thank you!

Hi everyone, Just wanted to say a huge thank to everyone who responded to my various messages over the last couple of days about my mums surgery. Not to...

Hi everyone, Just wanted to say a huge thank to everyone who responded to my...

georgiageorgia182

•8 days ago

5 Replies

Bloods and Test Results - Patient Knowledge

Hi ladies Do you get copies of your blood test results and if so how are they given to you and from/ at what stage in your treatment? I am mid front line...

Hi ladies Do you get copies of your blood test results and if so how are they g...

Emcee71

•8 days ago

23 Replies

What's on at Ovacome next week? (week commencing Monday 6 May 2024)

Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone, This is our weekly post to let you know about the differ...

OvacomeSupport

Partner•9 days ago

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Raising CA 125; at what point should one be concerned?

CA 125 raising gradually from 3.5 to 4 to 6 to 7 to 8.5 and now 11. Is it indicative of a recurrence?

CA 125 raising gradually from 3.5 to 4 to 6 to 7 to 8.5 and now 11. Is it indic...

Rosalita20

•9 days ago

7 Replies

What next? re maintenance for HGS recurrence

Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of...

Would love to know if any ladies who has also been unsuccessful with Olaparib, w...

Towergirl

•10 days ago

5 Replies

Recovering from debulking

Hi - I had successful debulking surgery 2 weeks ago (womb, ovaries, omentum, bit of the peritoneum) and am walking quite well, albeit slowly. There is not too...

Hi - I had successful debulking surgery 2 weeks ago (womb, ovaries, omentum, bit...

DMP-H

•10 days ago

11 Replies

Ovacome Members' day 18 May 2024 London

Good afternoon everyone, You are warmly invited to join us for our annual Members' Day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone...

Good afternoon everyone, You are warmly invited to join us for our annual Membe...

OvacomeSupport

Partner•10 days ago

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surgery with doctor with bad patient review

have surgery coming up and my doctor just got a 1 star review on google by a patient. The patient wrote that he doesnt listen and doesnt think outside the box...

have surgery coming up and my doctor just got a 1 star review on google by a pat...

Vivibeatris

•11 days ago

12 Replies

Strange, possibly hopeful realisation

This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they...

This post mentions alternative remedies. Any evidence is anecdotal, based on my ...

candyapplegrey

•11 days ago

14 Replies

Theraglass

Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 months of caylex/ carbo in November. Really enjoying past 5 months of no...

Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 mo...

Theraglass

•12 days ago

3 Replies

4 days after debulking surgery

hi all, Mum had her debulking surgery on Thursday evening and it was very successful. Full removal of ovaries, uterus, omentun, appendix etc. However she is...

hi all, Mum had her debulking surgery on Thursday evening and it was very succe...

georgiageorgia182

•12 days ago

29 Replies

first recurrence

hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on...

hi peeps , I started new rounds of chemo for floating cluster cells , detected a...

Vegana

•12 days ago

2 Replies

Fevers

My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5...

My mum has been fighting this disease since 2016. At diagnosis she was high gra...

ShamilaS

•13 days ago

6 Replies

Thank you

I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to...

I am overwhelmed with gratitude to all those that have responded to my post yest...

PWT1

•13 days ago

11 Replies

Ip chemo

Hi have many of you ladies had ip chemotherapy thanks in advance

Molste

•14 days ago

1 Reply

Had enough

I’ve not posted before but have read a lot of your messages over the last two and a half years . I think you are all stronger , braver and more positive than I...

I’ve not posted before but have read a lot of your messages over the last two an...

PWT1

•14 days ago

44 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Worried and looking for reassurance

Ovacome clinical update day 18 May 2024 London

Hair, brows and eyelashes!

Hernia from debulking

What's on at Ovacome next week? (week commencing Monday 13 May 2024)

Primary peritoneal, ovarian

No woman left behind

No woman Left Behind

Carbo/Gem

blue lips side effect olaparib

immunotherapy for OVCA

Duloxetine and/or Pyridoxine

Looking for good news please

Avastin + Taxol + Carbo & eye problems

Thank you!

Bloods and Test Results - Patient Knowledge

What's on at Ovacome next week? (week commencing Monday 6 May 2024)

Raising CA 125; at what point should one be concerned?

What next? re maintenance for HGS recurrence

Recovering from debulking

Ovacome Members' day 18 May 2024 London

surgery with doctor with bad patient review

Strange, possibly hopeful realisation

Theraglass

4 days after debulking surgery

first recurrence

Fevers

Thank you

Ip chemo

Had enough

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