Caelyx and hair loss: I’m wondering how much... - My Ovacome

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Caelyx and hair loss

Florrie2 profile image
15 Replies

I’m wondering how much hair loss people have had on Caelyx? The nurse thinks I probably don’t need scalp cooling.

I’ve been on carboplatin and paclitexal for 3 cycles, using the scalp cooling. My hair is much thinner but still there. I’m concerned about not using the scalp cooling and the rest of it going. Thank you

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Florrie2 profile image
Florrie2
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15 Replies
Cheadle profile image
Cheadle

Hair only thinned on carbo/caelyx. Didn't use the cold cap. It's taxol that does the real damage to hair😒

Jud15 profile image
Jud15 in reply to Cheadle

Agree with Cheadle. I have very fine hair and I never noticed any difference in my hair. I did suffer from v dry skin particularly hands and feet.

candyapplegrey profile image
candyapplegrey

Hmm. I used cold cap for 3 sessions (but carbo/taxol) - thought I was fine then, after third session, it all came out. Sad but I would say damage has already been done if you started on that combo. xx

Florrie2 profile image
Florrie2

Thank you everyone x

A1r1t profile image
A1r1t

Hi florrie2 my experience was that my hair thinned out in patches so I ended up having it all shaved off because it looked worse bald in patches than bald all over. It's now grown back curly but fairly thick and I quite like it because it was very straight before. Hope you're treatment goes well for you xx. 😊

NewtonEmma1900 profile image
NewtonEmma1900

Hi Florrie, I did not loose any hair with carbo/caelyx. I suffered dry and itchy skin on my feet and mouth ulcers though - fortunately you can treat those problems. Eight week ago I finished carbo/gemcitabine, It was predicted my hair would thin, sadly I lost it all. Good luck with your treatment. 🙏❤️

Georgiatec profile image
Georgiatec

I had no hair loss with Caelyx, and found it easier all round, compared to Carboplatin and Paclitexal. Wishing you all the very best!

Towergirl profile image
Towergirl

I’ve just finished 6 cycles of Carbo/ Caelyx. Told I wouldn’t lose my hair which had just grown 8 months after Taxol/Carbo.

I soon found my hair coming out, not in clumps but strands of hair on pillow and brush every day. In the end had bald patches so I had remaining hair cut very short and have worn a wig or hair cover all summer.

My hair was shortish and fine. Another wait while hair grows!

Good luck with your treatment. I didn’t have many problems except my platelets being low for the last 3 cycles and delaying them. xx

JustKBO profile image
JustKBO

I did not lose my hair on Calyx. I did lose it when on Carboplatin. I lasted for about 1 minute in the cold cap before I shouted « take it off » so well done you and all those who tolerate it.

Florrie2 profile image
Florrie2

Thank you everyone. Quite a mixture of experiences!

Beatyourself profile image
Beatyourself

Hi Florrie, guess it shows we are so individual and react individually too. I just had second cycle of Caelyx / Carbo and my hair started to fall on the 3rd week after first session. My hair grew back pretty curly and thick after loosing it all on taxol/carbo last February so is not that visible yet and main impact is after washing it so I just do it once a week and try not to touch it.

I was hoping this combo is more easy to handle based on the feedback from other women but I really suffer from stomach pains and nausea. Throwing up every day at least once even 8 days after chemo.

I hope it works out well for you, main thing it should kill the cancer 🙏😘💚🍀

Best wishes, b

Saintgermain profile image
Saintgermain

I’ve had no hair loss on Doxil (I’m in the states) so far I’ve had 3 infusions I do use a biotin based shampoo like yourself I finished Carbo taxol used the cooling cap then went to doxil my hair was thin probably lost 20%.

Florrie2 profile image
Florrie2

Hello all. I had a chat with the oncology nurse who has been with me through all of my treatments so saw my hair at the start. I said I’d had variable reports and obviously she has seen people on Caelyx.

We decided to stick with the scalp cooling. I really appreciate you sharing your experiences as it helped me with a difficult decision. I don’t mind the cold of the cap, but the clamping on the forehead can be a bit painful.

thejoannabell profile image
thejoannabell

I lost all my hair on carbo/paclitaxel, but I didn’t use a cold cap. On caelyx and Gemzar I kept all my hair.

Moonbeams33 profile image
Moonbeams33

I lost all my hair on Carboplatin and Taxol. I did not lose any on Caelyx (Doxil) and Avastin. It grew back in then as I started on the Caelyx and Avastin 2 months after finishing Carboplatin and Taxol.

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