Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2023

Nominate Ovacome to win £5000 to fund support services for those affected by ovarian cancer 💙

Good morning everyone The Benefact Group has announced its second special draw of 2023 and with your help, Ovacome just might win it... On top of its main...

Good morning everyone The Benefact Group has announced its second special draw ...

Partner•1 year ago

Any tips

Any tips on overcoming this sticky feeling when on chemo !! I have anti nausea tablets but they don’t always take the edge off

Any tips on overcoming this sticky feeling when on chemo !! I have anti nausea t...

•1 year ago

Reflux on carbo/gem

I've had 3 carbo/gem infusions so far. I have reoccurring ascites which is drained roughly every 3 weeks. Since I started the carbo/gem I am really struggling...

I've had 3 carbo/gem infusions so far. I have reoccurring ascites which is drain...

•1 year ago

Want to take advantage of all our features? Just log in!

or

Clear Cell reoccurrence update 3

Hi everyone, I wanted to update you all on todays experience with Professor Jayson at The Christie. Not only was he a lovely gentleman, he gave me hope...

Hi everyone, I wanted to update you all on todays experience with Professor Jays...

•1 year ago

Anxious

Hello, I've been back and forth with my gp and gynaecologist since November 2019 due to a lot of symptoms which I and the gynaecologist believed to be...

Hello, I've been back and forth with my gp and gynaecologist since November 2019...

•1 year ago

Ovacome Information Booklets 📖 📚 📗

Good afternoon everyone This post is to let you all know that Ovacome has over 30 clinical information booklets covering a wide range of topics including...

Good afternoon everyone This post is to let you all know that Ovacome has ove...

Partner•1 year ago

Be the first to reply

Advice needed

My lovely mum has just been diagnosed with ovarian cancer. She is normally fit, well and active so this has come as a huge shock to her and all the family. She...

My lovely mum has just been diagnosed with ovarian cancer. She is normally fit, ...

•1 year ago

breast lump

My lovely mum is 11 months in remission stage 3C HGSOC. Last night she found a solid grape like mass in the side of her breast, she also said it felt a little...

My lovely mum is 11 months in remission stage 3C HGSOC. Last night she found a s...

•1 year ago

Filgrastim injections and pain

Any of you lovely ladies on Filgrastim? I am half way through my 2nd line chemo and on Carboplatin. Doing Ok with that but since Filgrastim injections I have...

Any of you lovely ladies on Filgrastim? I am half way through my 2nd line chemo ...

•1 year ago

Liquid biopsy to determine best treatment?

My wife Suzanne is facing her third recurrence after five good years on olaparib. She is BRCA2 positive but, after five years of CA125 results in single...

My wife Suzanne is facing her third recurrence after five good years on olaparib...

•1 year ago

Chemo update

First chemo today , not as bad as I thought but just waiting to see how I feel in the next two days , I have my tablets so fingers crossed and one day at a...

First chemo today , not as bad as I thought but just waiting to see how I feel i...

•1 year ago

In hospice now

Hello ladies. Just want to let you know I am in hospice now. My gall bladder became infected and The hospital docs put me on all manner of antibiotics. They...

Hello ladies. Just want to let you know I am in hospice now. My gall bladder bec...

•1 year ago

brain spread

Ladies, thank you so much for your replies I’ll know more on the 15th and will let you know the outcome. Take good care of yourselves you have lifted my...

Ladies, thank you so much for your replies I’ll know more on the 15th and will l...

•1 year ago

Be the first to reply

I have a concern with my ca -125, post op

My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery only dropped to 50. Back on chemo dropped to 19, 3 weeks later and finishing...

My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery...

•1 year ago

Tremetinib

Hi, my oncologist mentioned perhaps starting me on Tremetinib as second-line treatment of my low grade serous ovarian carcinoma. I am worried about the...

Hi, my oncologist mentioned perhaps starting me on Tremetinib as second-line tre...

•1 year ago

brain spread

hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube...

hi ladies, I haven’t posted for ages but check in on you all regularly. My stor...

•1 year ago

Confused clear cell concerns

So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood...

So went for chemo no.4 today, as no. 3 had made me ill with terrible side effect...

•1 year ago

Scan results

Long story short, CA125 numbers went up to 446 then came down to 361, had scan last week. Got results today, everything good, doc Happy, Tamoxifen doing it's...

Long story short, CA125 numbers went up to 446 then came down to 361, had scan l...

•1 year ago

Patient Engagement Day UCL Cancer Trials Centre 23 June 2023

Hello All This is to let you know about a Patient Engagement Day being run by Cancer Research UK and UCL Cancer Trials Centre. The organisers have five...

Hello All This is to let you know about a Patient Engagement Day being run by C...

Partner•1 year ago

Be the first to reply

Seeking medical oncology referral

Good morning, Ready for another day of battling to get to see an oncologist. I started my medical journey 1 March and despite extensive investigations and...

Good morning, Ready for another day of battling to get to see an oncologist. I ...

•1 year ago

niraparib

Thank you for all your support so far on my journey. Having got through my second recurrence the carbo/caelyx worked well and my CA125 was down to 6. I have...

Thank you for all your support so far on my journey. Having got through my sec...

•1 year ago

ct scan results

hi as some people in the group are aware I had ct scan 2 weeks ago today I got my results the cyst is mucuios filled with jelly the ct scan could not give...

hi as some people in the group are aware I had ct scan 2 weeks ago today I got m...

•1 year ago

Suggestions Please

Hi,I have clear cell OC can anyone advice best consultant in the UK who specialises in this field. My chemo not responding. TIA X

Hi,I have clear cell OC can anyone advice best consultant in the UK who speciali...

•1 year ago

1
2