Hi everyone, I wanted to update you all on todays experience with Professor Jayson at The Christie.
Not only was he a lovely gentleman, he gave me hope back, told me I have options. He wants to go through my case from the beginning, discuss it with the MDT and come up with a plan. Things he is thinking about are a trial with immunotherapy, radiotherapy or chemotherapy and he’s not ruling surgery out just yet either.
This is a very different approach to my previous hospital who told me they could not offer me anything else after the chemo didn’t do much. I’ll hear in the next two weeks what the plan of action is. I know there are no guarantees, but he’s manage to lift the cloud of doom I was living under. I’ll let you all know how I get on in my next update xx
So happy to read this Carol, Prof J is my oncologist and completely changed my treatment path and it’s only down to him I’m now doing well. You’re definitely in really good hands and I’m sure he will give the very best treatment.
All we want is reassurance that there are good options and different avenues to be explored for us, and I’m sure he will do his very best for you,
That’s why it is so important to get a second opinion from a specialist centre! I am really glad you went for it and now have someone actively engaging with your case. xx
Hi Cazzar, I’m so pleased that getting another opinion has paid off and that you have several options available to you, you’re in good hands, best wishes x
That is wonderfully empowering Cazzat to know someone will work as hard with you as you want. I have had contact with Michelle his secretary and they are kind and compassionate in addition to leaders in their field.
Great news to know that somebody cares enough to look at everything in detail so you can be assured you tried your best…Good luck with the outcome and never give up, where there is life there is hope… Mags xxx
Fantastic news, I'm so pleased for you that he listened to you and thinks there are various options available to you now, which is very different to "not being able to do anything more". I will certainly bear this in mind when (I know it's when vs if) mine reoccurs should I be told a similar thing.Thank you so much for updating, and all the best for your plan now.
This is wonderful news cazzar. I felt exactly the same when I went for my consultation with them.
It’s sad really that we are left to feel this way. You would think with all the technology we would automatically be referred. Anyway it all sounds very positive and keep us updated. X
That's great news, so pleased to hear this. There are options for clear cell also you have options. Different doctors come up with different ideas. Good luck! Thinking of you 💕🥰💕🥰💕🥰🙏🙏🙏🙏🌸🌸🌸
Good news! Nice to hear. Was your hospital local to the Christie? I hoped for a second opinion but other hospital was too full. But what can we do if we have a hospital that's let's say second-rate, uncaring? I have clear cell and endometrioid. I had a recurrence less than 6 months after all clear. Another op + radiotherapy. NED at mo. xx
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STILL CLEAR 
Update
clear cell is back
Clear Cell Carcinoma
