Hello ladies. Just want to let you know I am in hospice now. My gall bladder became infected and The hospital docs put me on all manner of antibiotics. They implanted a tube in my gallbladder to drain off any infection. I flush it twice a day and it will stay in me until the end— only a minor annoyance. I live alone but my daughter is only eight minutes away. She and her polite pooch stay with me at night. She sleeps in the living room on a folding bed. She stays with me some days when she can work from home. Hospice nurse comes twice weekly. They have stayed on top of the cancer pain with fentanyl patches and liquid morphine so far, but I know that can change. Oddly the edema and pain in my feet, ankles and calves were driving me to tears. Nurse suggested compression stockings because the cancer pain meds won’t work on nerve type pain in leg. I found a place that specializes in compression stockings Made an appointment. I was measured and fitted. The stockings along with Voltaren gel applied twice daily and I was able to go into restaurant for a nice lunch. Just wanted to share this in case someone else had the same problem. Take care, all!
Sashay
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Dearest Sashay my love, prayers and thoughts are with you and your daughter. Be assured that being able to be with you will be a huge privilege for your daughter. I spent a week with my mum in the hospice and I found it an amazing time. I know that sounds weird, but it gave me huge peace and I hope you and your daughter(and her dog!) find the same.
Oh Sashay, I am thankful that you took the time to share this with us. I have always felt from your posts that you are a sensitive and special person. I’m sorry that you have reached this point but glad to know your daughter is able to be with you nights and that you were able to go out to a restaurant. I pray that you can stay comfortable and peaceful. Xx
Thank you, Delia. I know sometimes ladies for various reasons stop posting and we kind of know, but still wonder how they are. I wanted to post while still able to let you know that I am getting closer to the station where I get off. 💐
Hello sashay, I'm touched that you can think of sharing your problem with the pain in your legs and feet to help others will a similar problem. Especially when you're going through so much yourself, I hope they're keeping you comfortable and you and your daughter can enjoy each others company. I'm sure it must be a comfort to your daughter to be able to spend time with you, wishing you all the best 🤗♥ from Ivy.
So sorry to read of your pain but also to read of your lovely daughter and her polite pooch such a delightful description. Thank you for sharing with us and pleased that you felt well enough to treat yourself to some lunch. My thoughts and prayers are with you x
Sashay on my relatively short journey thus far you have offered good advice and care from over the ocean. Sending love and prayers back and hoping that your pain can be relieved. With love Kay 🙏💐
You have always been so helpful and kind on this site and even now you let us know things that might help others.
I hope you manage to remain as pain free as possible and can still enjoy the pleasure of being with your lovely daughter and her dog and can get out to the restaurant again very soon.
Thank you so much for taking the trouble to share your experience with us.
Many people misunderstand the role that hospices play, thinking that it is somewhere you go at the end of life. But they are experts in helping to manage some of the most difficult symptoms. Many, though not all in the UK, have outreach teams who will help you to stay in your own home as long as possible.
Getting the right size compression hosiery is imperative to their success and it’s great you have got made to measure sorted.
Hats off to your daughter in giving her love and support so willingly 🤗
We haven’t met but I can understand where you daughter’s care and compassion come from. Having a polite dog has helped! All our love from over here. Peaceful thoughts, F x
Hi Sashay,Thank you so much for sharing this part of your journey. It's good to hear that you were able to go out for a meal, and thanks for sharing the suggestion of compression stockings ( I've started getting strange leg pain from bone mets)
I hope you and your daughter can continue to find some joy and peace at this time.
Glad your infection is under control and your pain is properly managed. Wonderful that you were able to lunch out and enjoy yourself. Thinking of you and Prayers to you💕🙏
Hi Sashay, I am so sorry to hear you are now under hospice care. Unfortunately I know this stage will eventually come to us all & you seem to be at peace with it while still trying to live your life as best you can. Its great your daughter is close by to look after you & it sounds like she is doing a wonderful job. Take it from someone who looked after her mother who died in her 50's, I am sure your daughter is only too happy & feels privileged to be there for you. I am now in my 50's & I hope when my time comes my two daughters will do the same for me. I just hope you will be kept pain free & comfortable. Thank you for your contributions on here over the years. I will be thinking off you & hope that when your time comes you will be afforded a peaceful passing. All my love. Mag Xx
Dear Sashay, I have followed your journey for some time now as it has paralleled mine. I was diagnosed in February of 2019 at the age of 69 and have had surgery and three rounds of chemo thus far. Rather than a gall bladder stent, I just had a ureter stent implanted last Monday due to a constricted ureter and reduced kidney function . I am so sorry to hear that you have been suffering so much as of late but so relieved to hear that you have found help to relieve your pain and spend quality time with your lovely daughter and adorable pup. It is such a comfort to us to know you are surrounded by love and able to get out and enjoy a lovely lunch. I hope you are able to get out often, enjoy spring and many more lunches. I think you live in a place that has spectacular food options and hope you have a chance to sample some new ones. We are all on this journey we never wanted to take with you and can only send love and prayers that you get to enjoy each day with your daughter to the max. We are fortunate to have followed your journey and benefited from your advice and positive attitude. Wishing you peace and love from SoCal.
I’m sorry to read you’re under hospice care now but I know they’ll be managing your symptoms really well, and you’ll be feeling so well looked after. Lovely to know your daughter and pooch can stay with you and I hope you feel well enough to enjoy many more lunches and restaurants very soon.
Oh no!! I am so sorry to hear this, but I’m grateful for you letting us know. Your posts have been really helpful to me and to many others as well, so please know that we are grateful for all your efforts. I hope you will continue to share with us as long as you are able, as long as it’s not too taxing. You will be in my prayers and I hope this transition time is as peaceful and painless as possible for you. Much love from Alabama <3
Well I am pleased that you are getting proper help with pain and your ongoing symptoms. Hospices are very good at this kind of alleviation and your daughter sounds like a trooper, sleeping on the folding bed!
I am guessing that this development is not good news overall though, so I really hope you are as ok as you can be, you sound quite serene, I really hope you are finding your way.
Sending love, hugs and thanks for being with us xxx
I’m so glad you’re finding ways to cope with the pain and discomfort Sashay . Thank you for sharing this, it’s so valuable. Getting to that station as comfortably as possible is so important. Talking about it openly and being with your daughter is helping all of us facing this to know none of us are alone in our feelings.
May you be able to enjoy more time in comfort until you no longer wish to.
I am so so touched, moved, inspired and in awe of your bravery dealing with all that you have faced and are facing. You have shared advice and encouragement to many of us. Thank you, and may God bless you and your family. I'm wishing you more special lunches and company with your daughter. Gentle hugs. Xxxx
I’m sending you a BIG thank you for posting, brave lady. I think it’s easier to tell that things are going well than that the end is in sight. I thank you for not hiding away and wish you comfort.
It’s great that you were able to get out for a meal, I do hope you can take more trips out. Thank goodness your daughter is close.
Dearest Sashay. You are the Poster Girl for this site. I have such respect for your attitude to life and death. I pray that when you get to your last station, your disembarkment is a peaceful one but I have no doubt that it will be. Thankyou for keeping us informed. Love & big hugs, Irene 🙏💜
Still thinking of others thats why we think often of you too xx enjoy your precious time with your daughter and the pooch sending you lots of love and peace xxx
Sending you and your daughter love. Pray that peace will surround you both and that you will feel secure and pain free.. Thank you for all your help and advice.
Hi Sashay, it is so nice of you to post this especially if you are not feeling well. Is there are reason your gallbadder got infected? I know as a daughter how hard it is as I am always there helping my mom along her own journey and hate to see her in pain or unwell. I am glad you are being treated well in hospice and are able to post. I hope maybe you can get out for some more lunches. You are in my thoughts and so is your daughter. Sending prayers and hugs.. 🌸🦋🍀
Dear Sashay, Thank you for sharing your situation with us. I have read many of your posts over the last four years and they have always been helpful and supportive. I wish you love and blessings at this time.You are blessed to have such a wonderful daughter.
Dear Sashay: I have really appreciated your kind, wise and positive posts these last years. I'm glad that your health team is able to ease your pains and annoyances and that your daughter is a close and loving support. I wish I could bring my polite dog to visit and meet you in person--I almost feel like I know you from reading your words.
I hope you are having a beautiful, southern spring in New Orleans, and I wish you a happy and blessed Mother's Day. Take care and greetings from Virginia. --Lani
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