Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for January 2023

3rd surgery

Hi everyone, I am 3c low grade and happy to say after debulking and 1 round of chemo last year, I was Ned. I have had a small nodule underneath one of my...

Hi everyone, I am 3c low grade and happy to say after debulking and 1 round of...

Mrs_Thomas

•1 year ago

4 Replies

worried

I’m feeling a little bit lost at the moment, I was diagnosed with HGSOC last June.. I’m brca positive, after my debulking and chemo I’ve been given the all...

I’m feeling a little bit lost at the moment, I was diagnosed with HGSOC last Jun...

Des1953

•1 year ago

16 Replies

Online comedy night in aid of Ovacome

Hello All This is to invite you to join Ovacome on Tuesday 28 February for an evening of laughs with comedian Pauline Eyre. Celebrating her body,...

Hello All This is to invite you to join Ovacome on Tuesday 28 February for an...

TheOvacomeTeam

Partner•1 year ago

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update after pet scan

I had my pet scan 3 days ago after an increase in ca125 but with clear scans-I have to mention that I am brca1 positive and I had been in olaparib for 27...

I had my pet scan 3 days ago after an increase in ca125 but with clear scans-I h...

Roulasim

•1 year ago

22 Replies

How long off Olaporib before starting Carbo/Caelyx for a recurrence?

I have just got off the phone to my oncologist who, after having put me on 8 weekly scans for a recurrence for a few months now, has said its time to come off...

I have just got off the phone to my oncologist who, after having put me on 8 wee...

Loorunner

•1 year ago

6 Replies

4-th line of chemo

Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP...

Hello brave ladies. I would appreciate your experience concerning chemo protocol...

Reksio77

•1 year ago

2 Replies

Worried daughter needing some positive stories

Hi everyone, I’m new here. My mum has recently been diagnosed with ovarian cancer that has spread to her omentum. It’s high grade serous. I’m going out of my...

Hi everyone, I’m new here. My mum has recently been diagnosed with ovarian cance...

Shorty18

•1 year ago

5 Replies

Fendweller

Has anyone heard from Fendweller it seems to have been over a month ago that I have seen her post anything?????

Has anyone heard from Fendweller it seems to have been over a month ago that I h...

Summergold2

•1 year ago

10 Replies

Extremely low markers but still scared

My mother finished her therapies two years ago. From that moment her ca125 has always been decreasing, from 20 after the hysterectomy to now that it has...

My mother finished her therapies two years ago. From that moment her ca125 has ...

Belindajames

•1 year ago

5 Replies

Cancer treatment wait times for returning UK citizen

Hi everyone, I have been here for the last 2 years on behalf of my partner and your advice and support has been amazing. We have gone through one recurrence...

Hi everyone, I have been here for the last 2 years on behalf of my partner and ...

Stuee01

•1 year ago

5 Replies

Gynaecology Exercise and Mindfulness Study (GEMS)

Good afternoon, We have been asked to re-share some information with you about the Gynaecology Exercise and Mindfulness Study (GEMS). This is a feasibility...

Good afternoon, We have been asked to re-share some information with you abou...

OvacomeSupport

Partner•1 year ago

2 Replies

Niraparib - arm/shoulder aches

Hi 🙂 My mum has been on Niraparib for 6 months. She has had very few side effects except a bad back that lasted a few weeks. Over the last month or two she...

Hi 🙂 My mum has been on Niraparib for 6 months. She has had very few side effe...

Worrieddaughter95

•1 year ago

1 Reply

My introduction.

Hi. New to all this, have been relying on my daughter to tell me things of here.I am 63 years old. And in April/May 2022 I was diagnosed with stage 3(high C...

Hi. New to all this, have been relying on my daughter to tell me things of her...

Talkingpicture

•1 year ago

29 Replies

Catheter

good day to all you wonderful ladies I hope the sun is shining on you all My question is I have been having ureteric stents for the past 5yrs two weeks ago I...

good day to all you wonderful ladies I hope the sun is shining on you all My qu...

1946val

•1 year ago

8 Replies

Chemo not working

Hello lovely people. We've had disappointing news relating to my Mum's chemo which doesn't seem to be doing much after 3 sessions. This has been a shock as I...

Hello lovely people. We've had disappointing news relating to my Mum's chemo w...

Vinney52

•1 year ago

8 Replies

Alzheimer's, APOE4 gene and HRT - testing for the APOE4 gene

In the news today (14 January 2023) they talk about the possible reduction in Alzheimer's from taking HRT. I cannot take HRT (and have no desire to) due to my...

In the news today (14 January 2023) they talk about the possible reduction in Al...

SarahBa

•1 year ago

5 Replies

3 days into Diagnosis: Boderline Mucinous Ovarian Tumour

In July 2022, I finally got an ultrasound for abdominal bloating that showed a very large cyst on my right ovary and I was told to go to gynae emergency. After...

In July 2022, I finally got an ultrasound for abdominal bloating that showed a v...

Riverdene23

•1 year ago

8 Replies

Totally devastated

I went to a private ENT for balance problems and they gave me an MRI scan. they have just called and told me that there are lesions on my brain. I thought...

I went to a private ENT for balance problems and they gave me an MRI scan. they ...

Rosebine2

•1 year ago

44 Replies

smartphone-based rehabilitation programme for older adults living with and beyond cancer - over 65, living in England

hi, I am a patient rep on this study and wonder if there are people on here who would be interested to get involved. The researchers want to create a new app...

hi, I am a patient rep on this study and wonder if there are people on here who ...

Slipper1

•1 year ago

1 Reply

Maintainence Drugs Avastin & Olaparib

Hello Everyone, I hope all of you are doing well. I had my 6 cycles of chemo followed by debulking abdominal surgery. I was planned to have 2 more cycles of...

Hello Everyone, I hope all of you are doing well. I had my 6 cycles of chemo f...

Rgrg

•1 year ago

21 Replies

Opinions on specialist hospital for second opinion

HiMy wife's just completing second line treatment shortly to have scan and face to face with her oncologist And although she has a good & trusting relationship...

HiMy wife's just completing second line treatment shortly to have scan and face ...

Cardiff05

•1 year ago

18 Replies

I need your help-advice one more time…

hi everyone-I need your help-advice one more time-I am completely confused-disappointed-anxious-depressed…I am fighting with this disease 10 years now-I have...

hi everyone-I need your help-advice one more time-I am completely confused-disap...

Roulasim

•1 year ago

10 Replies

undecided should I ask for a second opinion

March 22 had surgery to remove nodules in pelvis area.of first diagnosed September 2013 surgery and chemo. This is treated as a recurrence. At the same time...

March 22 had surgery to remove nodules in pelvis area.of first diagnosed Septemb...

Deesales

•1 year ago

15 Replies

Ovacome Information Booklets 📖 📚 📗

Good afternoon all This post is to let you all know that Ovacome has over 30 clinical information booklets covering a wide range of topics including...

Good afternoon all This post is to let you all know that Ovacome has over 30 ...

TheOvacomeTeam

Partner•1 year ago

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Mets to the lung

Having battled through three lines of chemo, Avastin and a parp, I have now discovered that the cancer has progressed to my lungs.I see my oncologist next...

Having battled through three lines of chemo, Avastin and a parp, I have now disc...

27-359

•1 year ago

18 Replies

ovarian cancer/specialist hospital

hi all, I haven’t felt strong enough to come into this site since loosing my beautiful mum end of July but wanted to share something with you. My mum was...

hi all, I haven’t felt strong enough to come into this site since loosing my bea...

Aliollie

•1 year ago

8 Replies

HE4 increasing

Hello All Amazing Women! My sister had a full debulking in July along with chemo after and is now on maintenance with an Oliparb drug and Avastin infusions...

Hello All Amazing Women! My sister had a full debulking in July along with chem...

Teacherwithcurls

•1 year ago

2 Replies

visiting with a sore throat

Hi My mum’s treatment has been tricky so she is in hospital and had one round of chemo (carboplatin on 2ndJan). I had planned to visit her this week, tomorrow...

Hi My mum’s treatment has been tricky so she is in hospital and had one round o...

BridgeySWMummy

•1 year ago

15 Replies

pain in right side (feels like stitch)

mum has been NED since July. Today she has started with a stitch like feeling in her mid/upper abdomen. Any advice of what this could be that isnt a...

mum has been NED since July. Today she has started with a stitch like feeling i...

Worrieddaughter95

•1 year ago

11 Replies

Weekly Taxol/ Avastin

Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild type' HGSOC stage 4. Diagnosed Feb 2021. Surgery wasn't an option due to poor...

Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild...

Mum8757

•1 year ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2023

3rd surgery

worried

Online comedy night in aid of Ovacome

update after pet scan

How long off Olaporib before starting Carbo/Caelyx for a recurrence?

4-th line of chemo

Worried daughter needing some positive stories

Fendweller

Extremely low markers but still scared

Cancer treatment wait times for returning UK citizen

Gynaecology Exercise and Mindfulness Study (GEMS)

Niraparib - arm/shoulder aches

My introduction.

Catheter

Chemo not working

Alzheimer's, APOE4 gene and HRT - testing for the APOE4 gene

3 days into Diagnosis: Boderline Mucinous Ovarian Tumour

Totally devastated

smartphone-based rehabilitation programme for older adults living with and beyond cancer - over 65, living in England

Maintainence Drugs Avastin & Olaparib

Opinions on specialist hospital for second opinion

I need your help-advice one more time…

undecided should I ask for a second opinion

Ovacome Information Booklets 📖 📚 📗

Mets to the lung

ovarian cancer/specialist hospital

HE4 increasing

visiting with a sore throat

pain in right side (feels like stitch)

Weekly Taxol/ Avastin

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