ovarian cancer alert-I need your help

[Roulasim]

I suffer from ovarian cancer 10 years now.I was in remission for 4 years-it came back in my spline I removed it I was clean for 3 years then came back and I had 6 cycles of platin-taxol-avastin-I was clean and started olaparib-in the end of September I will be taking olaparib for 2 years-my ca125 all these years was maximum 6…last month it was 3,5 and this month is my. Ca125 was 8 ….I am starting to freaking out-help me guys-do you think it’s going to be a reoccurrence?my doctor advised me to wait till next moth that we are going to check it again…but I will lose my mind till then…any similar experience or advice?

[Lyndy2]

Hello, yes I am on Olaparib, done more than a year on max dose but ça125 has crept up over time. While it was creeping up I had a clear scan…I have no symptoms.

Don’t know what’s going on really, mine was 35 last bt…we will see what happens next. I suspect that the Parp is holding the cancer back but not entirely.

Here’s hoping that it isn’t what we fear it might be! xx

[Roulasim in reply to Lyndy2]

thanks for your reply-wish you the best!are you Brca positive?because I am-what does your doctor say to you?and how fast your ca125 has started to rise?before 35 that you told me it was last time what was it the time before?

[Lyndy2 in reply to Roulasim]

I am BRCA I + and it’s gone from 17 last year up to 20 then held at 20 before three increases of 5 points in 3 months May June July.

I did have a covid jab and other things happened in that period but I am concerned….xx

[Roulasim in reply to Lyndy2]

what does your doctor say?my ca125 hasn’t been more than 6 two years now…this is the first time it went to 8…last month(negative check it every month)was 4,5 so it has increased 3,5 points in a month-I’m so worry that you can even imagine…

[Trickysite]

I am so lucky in that the Marsden never tells me my CA125! I guess they will when they are worried. I am on Olaparib too.

[Roulasim in reply to Trickysite]

you are lucky indeed!!It can only cause excessive stress and nothing else…may I ask how log have you been on olaparib?

[Trickysite in reply to Roulasim]

I agree entirely with what you said about the stress. I am stage 4 BRCA 2 and have been on Olaparib since January. Ok on it except it gives me legs like timber which makes walking a struggle and I have to walk for an hour everyday because I have a congenital muscle condition and if I don't walk I seize up all over. The Olap is making me disabled and affecting my quality of life but I guess it is worth it! Emma x

[organicinna in reply to Trickysite]

They never say CA125 to anyone, only when one asking. I didnt wanted to know for rhe whole last year, then started to ask every face to face or phone apointment.They never hiding but never going into details...😊

[AuntyOrange]

So many things can affect the CA125 reading. My onco told me anything up to 35 is normal even in someone without cancer??? I've not researched that because I choose to believe it. Let's face it, we will always be anxious about recurrances but pat yourself on the back for getting this far & I'm sure you've still got a long way to go. Keep up the good fight fellow Warrior Woman. 👍💜👭

[SarahBa in reply to AuntyOrange]

Absolutely up to 35 is normal for women without cancer. No need to research it as that is absolutely fact. Hopefully I have reassured you.

[Roulasim in reply to AuntyOrange]

thank you so much for your kind and supportive words!!!I wish you the best!!!

[Summergold2]

for braca patients olaparib works well for non braca not as well. I am non braca and my CA was at 8 two months later 16 ............pet scan showed cancer was back! So if you have a significant jump of 10 or more doesn't mean just because you are under 35 that the cancer is not active just be vigilant.

Debbie