Posts - My Ovacome | HealthUnlocked

My Ovacome

18,205 members•20,349 posts

All posts for January 2022

2nd recurrence

Hi all - I was dx May ‘18 with stage 3 OC. Had first recurrence June ‘20. Now I will be starting Carbo&Taxol for 2nd recurrence. CT scan shows peritoneal...

Hi all - I was dx May ‘18 with stage 3 OC. Had first recurrence June ‘20. Now ...

ElayneZ

•3 years ago

13 Replies

Arm port insertion - help!

I was just wondering if anyone could share their experience of having an arm port inserted? I’m due to get one next week for second round of chemo as my veins...

I was just wondering if anyone could share their experience of having an arm por...

Fred22

•3 years ago

11 Replies

Possible Ovarian or Bowel and I’m scared and exhausted!

Hi Everyone, Sorry for the long post I'm about to do but I just feel I need to write it all down. First a little background. I am overweight and I have...

Hi Everyone, Sorry for the long post I'm about to do but I just feel I need to ...

Maths2022

•3 years ago

8 Replies

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I’m not sure if Olaparib is working for me

Hi ladies , I want to share my experience of Olaparib with you and ask if anyone else has had this experience. I started Olaparib in Nov 2021 as part of the...

Hi ladies , I want to share my experience of Olaparib with you and ask if anyon...

Duskygem

•3 years ago

23 Replies

Has anyone experienced lymphedema in their legs?

Has anyone experienced lymphedema in their legs? I Had a full hysterectomy with gall bladder removed. Been on avastin and lynparza maintenance PARP...

Has anyone experienced lymphedema in their legs? I Had a full hysterectomy with ...

mswhoffman

•3 years ago

11 Replies

Article in the Times

Dr Mark Porter has written a good article on ovarian cancer in today’s Times. Most of what he says we will know but it is good that it is out there for others.

Dr Mark Porter has written a good article on ovarian cancer in today’s Times. Mo...

PhillipandBettykid

•3 years ago

5 Replies

CTC circulating tumor cell test - do people do this?

I know we regularly check our tumor markers via CA 125 test, but an integrative onc recently told me I should ask for a CTC (Circulating Tumor Cell) test to...

I know we regularly check our tumor markers via CA 125 test, but an integrative ...

FlowerRose

•3 years ago

17 Replies

Worried sick - need reassurance and hand hold, worried for nothing?

Hello ladies, i by no means want to offend anyone with my stupid worries. But I surely need a hug. I’m 23 and my dream is to be a mum in fact me and my partner...

Hello ladies, i by no means want to offend anyone with my stupid worries. But I ...

Rookierunner229

•3 years ago

7 Replies

Surgery

Hello lovely ladies, After 5 rounds of chemo, my stage 3c primary peritoneal cancer is finally deemed operable and I'm scheduled for debulking op this...

Hello lovely ladies, After 5 rounds of chemo, my stage 3c primary peritoneal ca...

Jayniiee

•3 years ago

10 Replies

Magazine article !!

I happened to be leafing through a local magazine , mainly , ads for real estate agents , restaurants etc. Tucked away at the back , there was a health section...

I happened to be leafing through a local magazine , mainly , ads for real estate...

MOOKIE-FOX1234

•3 years ago

2 Replies

Caris Molecular Profiling

Hi, I thought you’d be interested in some tests we’re undergoing on my wife’s tumour now via The Christie in Manchester. Heads up in advance, to my knowledge...

Hi, I thought you’d be interested in some tests we’re undergoing on my wife’s tu...

Worsuz

•3 years ago

18 Replies

Bittersweet gift from daughter

Yesterday, my daughter gave me a 200 page journal designed for moms to write answers to questions about their lives. What a great gift for me! I’ve been...

Yesterday, my daughter gave me a 200 page journal designed for moms to write ans...

Sashay2020

•3 years ago

42 Replies

Online course on managing fear

Dear All One of our members is running a three week confidential online course about facing the fear of a cancer diagnosis. These are the details from Allyson,...

Dear All One of our members is running a three week confidential online course a...

OvacomeSupport

Partner•3 years ago

1 Reply

What were your first symptoms?

Hello, I'm new here ... and can't get a GP appt (Somerset). I have had symptoms for a while now, but keep only getting through to a practice nurse who...

Hello, I'm new here ... and can't get a GP appt (Somerset). I have had symptoms...

Plimsolls_on

•3 years ago

33 Replies

Reflexology

Hi All, I’ve posted before re my gout and thought you might like to know that, through the MycancerMychoices programme I’ve been having reflexology every two...

Hi All, I’ve posted before re my gout and thought you might like to know that, t...

Guilane

•3 years ago

1 Reply

Recommendations or Not?

I am about to start chemo again and feel that after six years I am running out of options. I would be interested to know if anyone has had success using the...

I am about to start chemo again and feel that after six years I am running out o...

27-359

•3 years ago

23 Replies

Ongoing oc fight

Hi fellow warriors. I am 70 & currently midway through 6 chemo rounds. Number 4 next Monday. I was first diagnosed in 2015 then again in 2018 & this one in...

Hi fellow warriors. I am 70 & currently midway through 6 chemo rounds. Number 4...

AuntyOrange

•3 years ago

8 Replies

Ovacome membership

Hello All While you're all members of this forum, some of you may not be aware of Ovacome membership. Ovacome is a membership charity. Membership is open to...

Hello All While you're all members of this forum, some of you may not be aware o...

OvacomeSupport

Partner•3 years ago

2 Replies

CA125 is 145 but clear ultrasound

Hello, I was in hospital recently with sepsis and while there they found raised CA125 as well as me realising I have a lot of the other symptoms with bloating...

Hello, I was in hospital recently with sepsis and while there they found raised ...

shanklygates77

•3 years ago

10 Replies

Chemo side effects tips

Hi All. I'm having a bit of a challenging week. I'm currently on carboplatin and Avastin. Just had my third round this Monday. Due to temperature spikes at...

Hi All. I'm having a bit of a challenging week. I'm currently on carboplatin and...

Mirrorplace

•3 years ago

14 Replies

1st recurrence ovarian/ carbo/caelyx

Don’t know if someone can answer my question. I had stage 4 ovarian cancer in September 18 had full hysterectomy and debulking surgery, 6 rounds of carbo/taxol...

Don’t know if someone can answer my question. I had stage 4 ovarian cancer in Se...

Duvin1

•3 years ago

18 Replies

Any advice for coping with bone pain from G-CSF injections please?

Hello lovely people I have 5 days worth of injections and finding bone pain in my back quite painful, the CNS recommends heat and paracetamol and I’ve found a...

Hello lovely people I have 5 days worth of injections and finding bone pain in m...

Catfeeder

•3 years ago

16 Replies

Interesting article on recurrence and 2nd surgery

https://www.cancer.gov/news-events/cancer-currents-blog/2019/ovarian-cancer-surgery-recurrent-survival I know some of you have indicated your support for...

https://www.cancer.gov/news-events/cancer-currents-blog/2019/ovarian-cancer-surg...

Stuee01

•3 years ago

33 Replies

COVID

Hi ladies , I’ve just tested positive for that damn covid and my surgery a laparotomy is due on the 23rd January! Does anyone have an idea if it will still...

Hi ladies , I’ve just tested positive for that damn covid and my surgery a lapar...

wndywoo

•3 years ago

9 Replies

Permanent drain ovarian cancer

Hi could anyone recommend if a permanent drain in the lung for ovarian cancer is better than having it drained when needed. My mum has had a problem with this...

Hi could anyone recommend if a permanent drain in the lung for ovarian cancer is...

Aliollie

•3 years ago

2 Replies

What Next?

I have been on this forum for a few years now, and have seen that treatment usually follows the same procedure. I have had Carbo/Taxol with Avastin,...

I have been on this forum for a few years now, and have seen that treatment usua...

27-359

•3 years ago

12 Replies

One dangerous ride !!

Had an appointment yesterday with my oncologist. Awoke to falling snow , didn't look too bad and the road crews usually have the major roads salted and...

Had an appointment yesterday with my oncologist. Awoke to falling snow , didn't...

MOOKIE-FOX1234

•3 years ago

12 Replies

Chemo pain

Hi All, I wanted to give some hope to anyone experiencing severe pain with taxanes. I had horrific stabbing pain from upper abdomen to knees with my first...

Hi All, I wanted to give some hope to anyone experiencing severe pain with taxan...

Bananasmoothie

•3 years ago

6 Replies

I'm finding it interesting...

Hi all, I'm finding it really interesting reading about all the new treatments that are being given now. It was 8 years ago that I was diagnosed with Stage 3C...

Hi all, I'm finding it really interesting reading about all the new treatments t...

ZenaJ

•3 years ago

42 Replies

Brilliant present.

My niece sent me a lovely silver morse code bracelet for Christmas. Guess what it says in dots and dashes: F*** Cancer. I love it.

My niece sent me a lovely silver morse code bracelet for Christmas. Guess what i...

JustKBO

•3 years ago

17 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2022

2nd recurrence

Arm port insertion - help!

Possible Ovarian or Bowel and I’m scared and exhausted!

I’m not sure if Olaparib is working for me

Has anyone experienced lymphedema in their legs?

Article in the Times

CTC circulating tumor cell test - do people do this?

Worried sick - need reassurance and hand hold, worried for nothing?

Surgery

Magazine article !!

Caris Molecular Profiling

Bittersweet gift from daughter

Online course on managing fear

What were your first symptoms?

Reflexology

Recommendations or Not?

Ongoing oc fight

Ovacome membership

CA125 is 145 but clear ultrasound

Chemo side effects tips

1st recurrence ovarian/ carbo/caelyx

Any advice for coping with bone pain from G-CSF injections please?

Interesting article on recurrence and 2nd surgery

COVID

Permanent drain ovarian cancer

What Next?

One dangerous ride !!

Chemo pain

I'm finding it interesting...

Brilliant present.

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