Any advice for coping with bone pain from G-CSF... - My Ovacome

My Ovacome

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Any advice for coping with bone pain from G-CSF injections please?

Catfeeder profile image
16 Replies

Hello lovely people

I have 5 days worth of injections and finding bone pain in my back quite painful, the CNS recommends heat and paracetamol and I’ve found a few articles on using antihistamines, does anyone have any recommendations at all please?

Thankyou

X

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Catfeeder profile image
Catfeeder
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16 Replies
Lovedogs41 profile image
Lovedogs41

Hi thereSorry to hear of your pain.For chemo bone pain I took Loratadine 10mg,which is an antihistamine you can pick up from the supermarket.I think it did help with the pain.Also a high strength quality cbd oil taken several times a day.

I really hope it improves for you x

Catfeeder profile image
Catfeeder in reply to Lovedogs41

Hi, Thankyou , we have some in the house for my partners hayfever so I’ll ask the nurse giving tomorrow’s injection, x

Catfeeder profile image
Catfeeder in reply to Lovedogs41

I tried this morning and I do seem to be in less pain Thankyou x

Lovedogs41 profile image
Lovedogs41 in reply to Catfeeder

Aww that’s great to hear I am so glad it helped you.I found that you do have to take it daily and start it 2 or 3 days before chemo day and again after for a few days.x

Lyndy profile image
Lyndy

When I had bone pain on carbo/taxel they supplied heavy duty co codamol. I didn’t need to take it for very long..luckily xx

Catfeeder profile image
Catfeeder in reply to Lyndy

Hi, I’m allergic to codeine but Thankyou, there was a suggestion I could have less than the 5 injections if the pain was too much so I am being monitored x

SUE7777 profile image
SUE7777

I'm sorry your in pain, when I was in pain I took Oramorph plus paracetamol and found the combination worked well, I didn't need it for long. Hope you get on top of it soon. Sue xx

Catfeeder profile image
Catfeeder in reply to SUE7777

HiSue, I think I had oramorph pre surgery, used to knock me out for a few hours but at least that snuffed out the pain. The pain does seem less today and I’ve tried the loratadine this morning x

Ruebacelle profile image
Ruebacelle

Hi. I had them and had back pain.used novacain patches. They worked

Catfeeder profile image
Catfeeder in reply to Ruebacelle

Thankyou for the suggestion, if I need the injections for my next cycle , just have 1 more tomorrow , I’ll look them up, do you get them prescribed or pick them up at a chemist? X

Ruebacelle profile image
Ruebacelle in reply to Catfeeder

Your onc should routinely prescribe them as part of the protocol

Catfeeder profile image
Catfeeder in reply to Ruebacelle

Understand Thankyou again x

testarossa71 profile image
testarossa71

Keep up with paracetamol, and add ibuprofen in between doses - so if you take 4 x 2 paracetamol at 10am, 4pm, 10pm and 4am, then you take the ibuprofen at the halfway intervals so, 1pm, 7pm, 1am, 7am. Obviously those timings can be played around with, but what it helps to do is ensure that your pain never really peaks, but is kept at a manageable level. I've had pain with this before and am not allowed to take ibuprofen so was stuck with paracetamol (which didn't really help me) or cocodamol (which worked, but knocked me flat out!). I hope you find a solution x

Catfeeder profile image
Catfeeder in reply to testarossa71

Thankyou, pain is reducing so hopefully I am on top of it now x

SopSinger profile image
SopSinger

Behind the curve here, but I used to work for the company that makes G-CSF and the recommendation was to use loratadine (Clarityn) for bone pain. It's unclear why it works better than ordinary painkillers, but it appears to do so. Hope you're feeling better today.

Catfeeder profile image
Catfeeder in reply to SopSinger

Brilliant Thankyou, I’ve certainly had less pain and have been taking the loratadine with the injections. X

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