Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for April 2021

How Can One Number make you feel Happy or Crappy

Well Hello, Last week started Doxil because my weekly Taxol wasnt cutting it anymore. So April 1st was the last Taxol and my CA 125 was 25 which rose 11 from...

Well Hello, Last week started Doxil because my weekly Taxol wasnt cutting it any...

PCCDaisy

•3 years ago

13 Replies

Refused surgery!!! Help!

Hello ladies, I haven't posted on here before but have been reading and following for sometime. It seems to be the only place to find advice, reassurance and...

Hello ladies, I haven't posted on here before but have been reading and followin...

Cobweb2

•3 years ago

31 Replies

Post surgery

Hi ladies I am 8 weeks after optimal debulking surgery I am still having a pain sometimes sharp in my left side when I laugh sneeze or cough is this common

Hi ladies I am 8 weeks after optimal debulking surgery I am still having a pain ...

Clifden1

•3 years ago

6 Replies

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Normal CA125 Level

Good morning ladies - does anyone know what the normal CA125 level is? I always though it was 35 but I see the Mayo Clinic in the US says it is 46. There is a...

Good morning ladies - does anyone know what the normal CA125 level is? I always ...

YDLSmyth

•3 years ago

12 Replies

CA125

Hello lovely ladies, I hope that you are all as well as possible & enjoying this lovely sunshine. Has anyone found out whether or not the CA125 can be affected...

Hello lovely ladies, I hope that you are all as well as possible & enjoying this...

Caleda4

•3 years ago

7 Replies

Post Debulking results

Just had a copy of letter sent to my GP after surgery, there was a right ovarian mass 25cm and a left one 10cm which was twisted and necrotic!! None of which...

Just had a copy of letter sent to my GP after surgery, there was a right ovarian...

rosebine

•3 years ago

8 Replies

Anyone refused a catheter?

Hi everyone, Tomorrow is my op, hysterectomy, omentum (the works). I really do not want a catheter, it’s upsetting me more than op. Anyone managed ok...

Hi everyone, Tomorrow is my op, hysterectomy, omentum (the works). I really do...

Whybirdie

•3 years ago

34 Replies

Research into diet and bowel blockage

Hello We are looking for people to take part in an online focus group to give their views and insights on a planned research project looking at diet and bowel...

Hello We are looking for people to take part in an online focus group to give th...

OvacomeSupport

Partner•3 years ago

3 Replies

In focus: approaches to earlier diagnosis - non-diagnostic screening methods

Hello This month in our ‘Health in Focus’ posts, we’re looking at ways to promote earlier diagnosis of ovarian cancer. In the last two weeks, we’ve posted an...

Hello This month in our ‘Health in Focus’ posts, we’re looking at ways to promot...

OvacomeSupport

Partner•3 years ago

2 Replies

Updatev

Hi all , just to update you all , I had an appointment with the consultant today and he informs me I have a 7cm cyst so wants an urgent mri within 2 weeks -...

Hi all , just to update you all , I had an appointment with the consultant today...

Cathhunt

•3 years ago

1 Reply

Cracked rough feet. Advice please.

Has anyone had sore cracked skin on their feet and toes? I’ve been on Rucaparib for over a year and the other day my feet became sore. I haven’t been running...

Has anyone had sore cracked skin on their feet and toes? I’ve been on Rucaparib...

JustKBO

•3 years ago

10 Replies

Learn all about PARP inhibitors with Dr Jon Krell, Consultant Medical Oncologist

https://youtu.be/i8Gy5OQMAlE

Newbie_2020

•3 years ago

10 Replies

2015 - Ovarian Cancer, Low grade, 2a Serous

Hi. For anyone looking into information about low grade serous, just wanted to say that I have just had my final review after 5 1/2 years (delayed due to...

Hi. For anyone looking into information about low grade serous, just wanted to...

AMCSCOT

•3 years ago

14 Replies

Volunteers needed for pilot study of online course on facing fear

Dear All We have been approached to ask if any of you would be interested in taking part in a pilot study of a three week confidential online course about...

Dear All We have been approached to ask if any of you would be interested in tak...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Recurring Ovarian Cancer

My ovarian cancer is now bk in liver and head of pancreas, Advised to either do Pataxial here on its own in local hospital or travel to London for Taxol and...

My ovarian cancer is now bk in liver and head of pancreas, Advised to either do...

ardboe

•3 years ago

6 Replies

end of avisitin

After 6 x 6 hours chemo and 15 Avistin I have today been taken off it. my CA125 is 237. I wonder what happens next, ????My oncologist indicated watch and...

After 6 x 6 hours chemo and 15 Avistin I have today been taken off it. my CA12...

tomtaylor15

•3 years ago

4 Replies

Online groups, talks and workshops with Ovacome this week

Hello All, This is to let you know about the Ovacome online events taking place this week. End of life matters - Tuesday 20 April, 12-1.30pm...

Hello All, This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Question about trials

Hi ladies, I wondered if you may be able to help with my question.. I have a friend that is around 65 yrs old with ovca. She had radical surgery followed by...

Hi ladies, I wondered if you may be able to help with my question.. I have a fri...

Lollie2016

•3 years ago

17 Replies

Is it back?

Hello, it’s been a while since I have posted here. My mum’s cancer had been in remission since 2017. However, her latest CA125 level is gone up from 12 to 32.5...

Hello, it’s been a while since I have posted here. My mum’s cancer had been in r...

ShamilaS

•3 years ago

9 Replies

Niraparib side affects

Morning i have been taking Niraparib 200mg for 5 days with no issues until day 6 when the stomach cramps, nausea and acid reflux and constipation kicked in ......

Morning i have been taking Niraparib 200mg for 5 days with no issues until day 6...

Suds0812

•3 years ago

5 Replies

Rucaparib thanks

Thank you everyone who replied to my post, so helpful as always. My GP has prescribed a stronger anti sickness, so , fingers crossed. Thank you all Cheryl.xx

Thank you everyone who replied to my post, so helpful as always. My GP has presc...

fendweller

•3 years ago

6 Replies

Finally a little sleep!

For all of us suffering through sleepless nights, sleeping half the night only to be awake the other half fretting, for me finally a drug free solution. I...

For all of us suffering through sleepless nights, sleeping half the night only t...

Summergold2

•3 years ago

5 Replies

In focus: approaches to earlier diagnosis - ovarian cancer screening with diagnostic tests

Hello This month in our ‘Health in Focus’ posts, we’re looking at ways to promote earlier diagnosis of ovarian cancer. Last week, we posted an overview of some...

Hello This month in our ‘Health in Focus’ posts, we’re looking at ways to promot...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Rucaparib

Sorry its me banging on again ,I've been on Rucaparib for 10 days and felt sick every day despite taking anti sickness tablets regularly, I did call the chemo...

Sorry its me banging on again ,I've been on Rucaparib for 10 days and felt sick ...

fendweller

•3 years ago

17 Replies

Ovarian cancer

Hi don’t know if anybody can help, my mum had fluid in her right lung due to the horrible cancer, she had it drained two weeks ago, but it has come back they...

Hi don’t know if anybody can help, my mum had fluid in her right lung due to the...

Aliollie

•3 years ago

2 Replies

Experiences of paracentesis (drainage of ascites)

Hello As you may remember, Ovacome are working with Dr Roshan Agarwal, consultant oncologist at Northampton General Hospital, to help clinicians better...

Hello As you may remember, Ovacome are working with Dr Roshan Agarwal, consultan...

OvacomeSupport

Partner•3 years ago

2 Replies

Rising CA125, Fear and Anxiety

Like many of us, I am in a "strange" place - not quite cancer free, though no evidence of disease, but with a rising CA125 after a period of stability. (My...

Like many of us, I am in a "strange" place - not quite cancer free, though no ev...

SophiaMariaA

•3 years ago

17 Replies

Online groups, talks and workshops with Ovacome this week

Hello All, This is to let you know about the Ovacome online events taking place this week. Coventry ovarian cancer support group - Monday 12 April,......

Hello All, This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Curious if the Covid 19 vaccination affects CA125 results

Does anyone know if this has been researched or if your Doc may have mentioned it? I will find out tomorrow if my CA135 has risen or not but curious. I got my...

Does anyone know if this has been researched or if your Doc may have mentioned i...

Mommoo65

•3 years ago

3 Replies

3 weeks post op

Things are still going well recoverywise, but Im wondering how long it will be before I start chemo again, is it supposed to be 4 or 6 weeks after ? The...

Things are still going well recoverywise, but Im wondering how long it will be b...

rosebine

•3 years ago

15 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2021

How Can One Number make you feel Happy or Crappy

Refused surgery!!! Help!

Post surgery

Normal CA125 Level

CA125

Post Debulking results

Anyone refused a catheter?

Research into diet and bowel blockage

In focus: approaches to earlier diagnosis - non-diagnostic screening methods

Updatev

Cracked rough feet. Advice please.

Learn all about PARP inhibitors with Dr Jon Krell, Consultant Medical Oncologist

2015 - Ovarian Cancer, Low grade, 2a Serous

Volunteers needed for pilot study of online course on facing fear

Recurring Ovarian Cancer

end of avisitin

Online groups, talks and workshops with Ovacome this week

Question about trials

Is it back?

Niraparib side affects

Rucaparib thanks

Finally a little sleep!

In focus: approaches to earlier diagnosis - ovarian cancer screening with diagnostic tests

Rucaparib

Ovarian cancer

Experiences of paracentesis (drainage of ascites)

Rising CA125, Fear and Anxiety

Online groups, talks and workshops with Ovacome this week

Curious if the Covid 19 vaccination affects CA125 results

3 weeks post op

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