I haven't posted on here before but have been reading and following for sometime. It seems to be the only place to find advice, reassurance and positive stories as Google is the complete opposite.
My Mum (73) was taken into A&E in June 2020 with heavy post menopausal bleeding; had ultrasound, biopsy then MRI scan. We were told results over the phone beginning of July. It was endometrial cancer stage 1B. Then heard nothing for about two and a half months!! We phoned, emailed but never any answer or reply, really started to worry - surely you don't wait this long to start treating cancer. We then got our GP involved and suddenly received a letter for hysterectomy surgery pre-assessment appointment (October). Then saw a letter to GP saying diagnosis high grade 3 serous endometrial carcinoma, so googled it - rare aggressive type, poor prognosis. It seems to behave more like ovarian cancer than endometrial which is how I found this forum and hope can help with same treatment options. So if they knew this why did they do nothing for over 2.5 months! Because my Mum had cardiomyopathy, is on medication including blood thinners and has osteoarthritis she was classed high risk for surgery. The preassessment anesthetist and cardiologist said OK to go ahead with extra care and caution.
Then we saw the 'SURGEON'. What a callous, horrible man with a graveyard attitude. He said very high risk for surgery, 1 in 50 chance to survive the op! Very obvious he didn't want to do it. We said we want to go ahead. Had to have another CT scan s it is now November and things might have changed. Surprise, surprise, now stage 4 and has spread to omentum and meso colon. The surgeon now says inoperable, saying there is no point in doing any surgery unless you can get it all.
She started chemo (Carbo on its own) in Decembr and has coped well. Scan after 3 cycles showed 2 main tumours shrunk by two-thirds - 15 and 12 mm. Others are the same but said they hadn't shrunk as well so might be scarring.
The Surgeon still won't operate and has convinced oncologist it is too risky. Just finished cycle 6 and had CT scan with results at first face to face meeting next week. I see surgery the only hope for getting rid of this or long remission. Is there anyone on here who has had surgery with other health issues, eg heart, blood thinners, etc?
Sorry for such a long post!! Thankyou for reading.