Hi all! I’ve just finished 6 rounds of Carbo & Caelyx for first recurrence after 18 months NED. My Ca125 is again in normal range (20) but since it is still decreasing each month the doctor said chemo is still working and he’d like to see CA125 plateau before I stop. I was so ready to be done. Wondered if any of you continued chemo to lower the CA125 even when it was within normal? I said I’d continue a couple more months and see how chemo goes. It does wreck havoc with white and red blood cells - but I’ll continue to be very careful. Thoughts are appreciated! Blessings to each of you! Thank you!
Additional chemo: Hi all! I’ve just finished... - My Ovacome
Hi. That’s interesting. I had six carbo caelyx and still had some cancer left but my oncologist seemed fine with stopping and going on Olaparib. My CA125 is always low so not useful. Are you having a scan?
Hi - thank you. He said I’d do a scan again 4 weeks after the “last” chemo. I am having another echocardiogram this month. I had one 6 months ago which showed no problem. 🙏 My CA125 has come down from 210 when I started this combo to 20. My average was under 10 for the 18 months NED. He said since CA125 is still coming down ea month - he wanted me to do 2 or 3 more chemos because it was still working. Hope you are doing well!!
Interesting, I was in the same boat and asked for some more to keep getting it down and was told in no uncertain terms no!! I started on Niraparib after this combination and it has come down between 8-12 for nearly 2 years, so maybe he was right!! (Don’t tell him that though 🤣) hope you continue to have success with the extra ones x
I had four rounds of chemo, then debulking surgery, then another four rounds of chemo which brought my CA 125 to 3 over two years ago. It now stays at 5.
I had four rounds of chemo, then debulking, followed by a further 3, total 7. My ca125 has been at 10 for 3 years.
Yep white cells here in france they give us a shot to boost ... it sounds as if your onc wants to get rid if wandering cells so if you can srand it go for it. Good luck
If you're going to be properly monitored, I'd go for it. I was NED and with a CA-125 of 35 but within three months I'd recurred. It's possible there are still microscopic cells lurking around and NED means no "evidence" of disease. It only needs one of the cancer cells to eventually start another tumour, even though they sometimes lie dormant for a months / years.
Hi Elayne, was your scan showing new disease when recurrence was diagnosed or recurrence just diagnosed on CA 125
Had the chemo at time didn't ask much about CA125 numbers mine was at post op stage 70 the numbers fell and at even 4 where it's levelled off and remains I still had chemo sessions this was to combat the possibility that 5 of the 9 lymph nodes showed high risk hence in my case they went for the chemo at time just felt this is what life would be like feeling tired no energy feeling totally devoid of normal life have finished the chemo still have few side effects which remain but getting there back to normal life if one can say that with covid around still ..wish you all the best.
Mine wasn't a recurrence but I continued with chemo before my operation which was fter my third chemo when my CA125 was already normal. I then finished the other 3 cycles when it dropped a tiny bit more. x
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Hi lovely ladies can you give me some advice please? I’m due to have my 5th Carbo/Taxol tomorrow....
done and CA125 feel right down to 24 after surgery. It has continued to go down after each chemo...
initially to chemo and debulking surgery. She was declared NED in April 2018 but her CA125 starting...
after chemo has finished?
I had three cycles of chemo and Avastin, my op, then picked up the chemo...
this one buy me some more time
Still glad that I can still have it btho!