Feeling a little nervous as this is the first time I’ve reached out since my diagnosis in 2015. I’ve always found burying my head in the sand has worked for me and always persevered to work full time and be a mommy to the best of my ability to my 2 young children.
I have no time to feel poorly LOL
Though admittedly it has caught up with me lately. I have stage 3 low grade ovarian carcinoma and have had many operations and treatments over the years.
Being so young with this diagnosis I’ve always felt quite alone and feel I can’t talk to my family about my worry’s as I find they cry before I do.
Anyway...I’m not sure what I’m expecting from posting this really. I think maybe I just needed a vent and an outlet.
Thankyou for listening xxx
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Emma-Jane87
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I’m hoping I will receive and be able to support others and I think you’ve hit the nail on the head in that the advice and support given would be invaluable.
Dear Emma welcome to the forum . I have just read your profile and at diagnosis was 2a low grade serous carcinoma . That was 18 months ago and I am on Tamoxifen for maintenance. As Laura says there are many ladies here who have low grade also . I am afraid I can’t offer any advice regarding diet and colostomy, but I am sure someone will be able to give you some advice
I was on letrazole for maintenance however unfortunately that has no longer worked so I have put in an application for a trial drug in the states. Fingers crossed I am approved...
I will know more on Friday so will keep you informed.
Holding all your worries inside yourself is not nice at all; whilst many of us on here have wonderful supportive families, many of us also experience families, friends or work colleagues who cannot, or do not want to help us with our fears.
I appreciate you are in the US but you can access the Ovacome website, even if your time zone means you cannot speak to their Freephone helpline direct. Ovacome is the charity specialising in support for those of us affected by ovarian cancer here in UK; they are also responsible for monitoring the ovarian cancer part of the HealthUnlocked website
They have written resources and a support team who can answer specific questions. and because of Covid-19, the face-to-face support sessions here in UK have been done over the internet, called "Staying Connected" so you can always email the team to see if there is anything which suits your time? They also run a group especially for Younger Women with ovarian cancer. Their website is ovacome.org.uk .
Please do try them, you have nothing to lose and everything to gain to help you cope with your young children and life ahead with this disease.
Hi. I also just want to say welcome and it’s good that you are reaching out. I’m in the US as well but have high grade so can’t be of much help that way. It stinks that you were hit with this at such a young age! Keep writing here!🌸🌻🌷
Glad you reached out. Scary times. No matter what age or what stage. You get to feel worried frightened and alone but the chat room does help as we are all in this together . So take good care try to get support from reiki or massage or whatever helps
Welcome to the forum, like the others say this is a great space to get any support you need, and sometimes its easier to reach out to ‘distanced’ people and say how you feel and get a little help so use us anytime. I think we all want to protect our families and sometimes feel we cant keep putting them through our worries and so we cover up our feelings a bit. The fact you reached out is a good thing and we got you when you need us, It must be a big worry with small children too xx
Sending lots of love
Diane
Hi Emma-Jane. I was diagnosed 3c, 8.5 years ago. I never knew if I was high grade, low grade etc but I noticed that women on here seemed to know what they were, so I queried it. Strange thing is that it seems I was called low grade, but I've always been treated as high grade and I've always responded well to everything. I've read that low grade can be difficult to treat but that hasn't been so for me. Best wishes. Pauline.
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