Posts - My Ovacome | HealthUnlocked

My Ovacome

17,858 members • 20,090 posts

All posts for January 2019

Recently diagnosed and starting chemo on Wednesday - should I try the cool cap or will I lose my hair anyway??

Recently diagnosed and starting chemo on Wednesday I would really welcome some practical advice about chemo. I’m due to have carboplatin and paclitaxel and my...

Recently diagnosed and starting chemo on Wednesday I would really welcome some ...

Fred22

•5 years ago

31 Replies

Good news!

Hi ladies. It's been a while since I posted but I just wanted to share with you this news. As some of you are aware, I started hyperbaric treatments to close...

Hi ladies. It's been a while since I posted but I just wanted to share with you...

Rlenesue

•5 years ago

37 Replies

London Marathon

Good evening ladies and hope you are all having as good a weekend as possible. I just wanted to tell you all that I am thrilled that my doctor daughter, Izzy...

Good evening ladies and hope you are all having as good a weekend as possible. I...

SCWI

•5 years ago

39 Replies

Want to take advantage of all our features? Just log in!

Travel Insurance

Decided to book a one week cruise today and investigated insurance. After getting a quote from saga for £750 for two people, I read previous posts on here and...

Decided to book a one week cruise today and investigated insurance. After gettin...

Hidden

•5 years ago

14 Replies

genetic testing

hi havent posted in a while i am just three years since my chemo i was diagnosed stage 1c ovarian had surgery and chemo my question is i have an appoitment...

hi havent posted in a while i am just three years since my chemo i was diagnose...

claire50

•5 years ago

8 Replies

Dr Martin Gore.

How sad to see, my mum saw him and thought he was lovely......

MissEd

•5 years ago

8 Replies

Scan results

Just got my scan results happy to say their are still contained so no change next appointment in May not had to have chemo for nearly 2 years but still checks...

Just got my scan results happy to say their are still contained so no change nex...

Bobbyo1

•5 years ago

28 Replies

Dilemma

I’ve seen my consultant today who tells me that I am eligible for Rucaparib. Good news, but it has left me with a dilemma. Ever since I was diagnosed with...

I’ve seen my consultant today who tells me that I am eligible for Rucaparib. Go...

Alifit

•5 years ago

25 Replies

Rucaparib submission to NICE

Hello All We are preparing a submission to NICE regarding Rucaparib becoming available on the NHS. The name of the NICE consultation is: Rucaparib for...

Hello All We are preparing a submission to NICE regarding Rucaparib becoming ava...

OvacomeSupport

Partner•5 years ago

13 Replies

Help with sweats night and day Lorraine

Hi Ladies could you help with advice on sweats they are so bad I need to change my cloth, I'm trying to see the palliative care DR but it is had in our area as...

Hi Ladies could you help with advice on sweats they are so bad I need to change ...

lorraine71-Australia

•5 years ago

17 Replies

Update

Well some more good news I started Niraparib last night 300mg, the information leaflet said taking them before you go to bed means you’re sleeping if nausea...

Well some more good news I started Niraparib last night 300mg, the information l...

ellseybellsey

•5 years ago

22 Replies

Thanks for TTT(Tummy trouble tips)

I am a bit teary that so many of you lovely ladies have replied with humour, sympathy and practical advice to my post. A diet full of what might be seen as...

I am a bit teary that so many of you lovely ladies have replied with humour, sym...

Litchick

•5 years ago

Be the first to reply

ok new news

so I am getting married on 24th January my birthday to,not Barbados but the lake district,pulled out all stops,saw new consultant last night going in to have a...

so I am getting married on 24th January my birthday to,not Barbados but the lake...

jools53

•5 years ago

26 Replies

PICC Line

Hi, I'm to start my first chemo next week following surgery for stage 3 ovarian cancer. I've been told I will have to have a PICC line inserted, please can...

Hi, I'm to start my first chemo next week following surgery for stage 3 ovarian ...

Craftycromwel

•5 years ago

15 Replies

Ovarian cancer going to the brain

Hello ladies, I jointed the group and have been following your ups and downs for about a year now but never posted my own story as I have pathological dislike...

Hello ladies, I jointed the group and have been following your ups and downs for...

Marycha

•5 years ago

5 Replies

Tummy trouble.

Good morning ladies this is my first post and I would like to introduce myself. I’m 63 diagnosed August 2028 stage3 and doing ok- ish on Carbo/taxol &...

Good morning ladies this is my first post and I would like to introduce myself. ...

Litchick

•5 years ago

8 Replies

Another Birthday

Good morning lovely ladies , today is my 63 rd birthday and I am so happy to have made it this far .I haven’t posted for a while but I have quietly been...

Good morning lovely ladies , today is my 63 rd birthday and I am so happy to hav...

Juleswhee

•5 years ago

41 Replies

Partial Bowe lBlockage

I had read about the above but was not sure about how it occurs/symptoms? I'm in hosp with extremely extended stomach and hoping for a drain thinking it was...

I had read about the above but was not sure about how it occurs/symptoms? I'm in...

Lymetree

•5 years ago

5 Replies

AVASTIN length of treatment

Hello, I’m wondering how long any of you have managed to tolerate Avastin. I’ve been having it since March first with second line then on it’s own and I’m...

Hello, I’m wondering how long any of you have managed to tolerate Avastin. I’v...

Hidden

•5 years ago

33 Replies

New Years Resolution

My new years resolution is to STOP buying clothes on-line. In the winter armchair shopping is my favourite pass time, it certainly helps when I am feeling...

My new years resolution is to STOP buying clothes on-line. In the winter armchai...

Hidden

•5 years ago

22 Replies

Bloated stomach

Has anybody any advice. I am waiting to see if I am accepted for a new trial at Royal Marsden . It will be my third line of treatment. This time I have a huge...

Has anybody any advice. I am waiting to see if I am accepted for a new trial at ...

Carpag

•5 years ago

7 Replies

BRCA

Hi all, I just wanted to let those that have been following know that my daughter and one of my sisters has been confirmed as not carrying the BRCA gene....

Hi all, I just wanted to let those that have been following know that my daughte...

ZenaJ

•5 years ago

18 Replies

Ova to You Glasgow 23 January 2019

Dear All This is to let you know about our next regional event which will be Ova to You in Glasgow on Wednesday 23 January 2019, 11am - 3:30pm at the...

Dear All This is to let you know about our next regional event which will be Ov...

OvacomeSupport

Partner•5 years ago

2 Replies

She’s home

Hi lovelies, Just a quick update, my special person is home finally, if I physically come across that registrar I will kick him in the nuts! She didn’t have...

Hi lovelies, Just a quick update, my special person is home finally, if I physic...

CallmeMum

•5 years ago

32 Replies

BRCA TEST

Good Morning All - I am due to have my BRCA test done next week and was wondering how it effects future treatment? I have googled it but it it not very clear....

Good Morning All - I am due to have my BRCA test done next week and was wonderin...

Hidden

•5 years ago

19 Replies

Any guidance welcome

Hi all, Had terrible issues relating to food, stomach aches, pains etc - saw doctor - possible IBS relating to stress - did extra test with CA125 at 39. Now...

Hi all, Had terrible issues relating to food, stomach aches, pains etc - saw do...

PKN1970

•5 years ago

6 Replies

Wrong post!

So sorry I didn't mean to sign up for Ovacome I was looking for a community for the NHS Diet!

So sorry I didn't mean to sign up for Ovacome I was looking for a community for...

Sulfate

•5 years ago

1 Reply

NHS Diet

Hi , I have been told by my GP that I need to lose 1and a half stone and increase my excercise due to high cholesteroI. I'm a size 12 and in the healthy BMI...

Hi , I have been told by my GP that I need to lose 1and a half stone and increas...

Sulfate

•5 years ago

Be the first to reply

Tomorrow we say goodbye to our beautiful mum...

This is only the second time I am posting on here but it is sadly to announce that my lovely mum passed away on the 12th of December from this awful disease....

This is only the second time I am posting on here but it is sadly to announce th...

LM123456

•5 years ago

33 Replies

Ovacome Survey

Dear All As some of you may remember, Ovacome have put together a survey asking women about their experiences of ovarian cancer symptoms and whether they...

Dear All As some of you may remember, Ovacome have put together a survey asking...

TheOvacomeTeam

Partner•5 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2019

Recently diagnosed and starting chemo on Wednesday - should I try the cool cap or will I lose my hair anyway??

Good news!

London Marathon

Travel Insurance

genetic testing

Dr Martin Gore.

Scan results

Dilemma

Rucaparib submission to NICE

Help with sweats night and day Lorraine

Update

Thanks for TTT(Tummy trouble tips)

ok new news

PICC Line

Ovarian cancer going to the brain

Tummy trouble.

Another Birthday

Partial Bowe lBlockage

AVASTIN length of treatment

New Years Resolution

Bloated stomach

BRCA

Ova to You Glasgow 23 January 2019

She’s home

BRCA TEST

Any guidance welcome

Wrong post!

NHS Diet

Tomorrow we say goodbye to our beautiful mum...

Ovacome Survey

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive