Hi Ladies could you help with advice on sweats they are so bad I need to change my cloth, I'm trying to see the palliative care DR but it is had in our area as we only have 3 for the whole area.
I will try my GP it only getting hard to leave the house so, i've turn to you my friends.Take care Lorraine xx
I had the night sweats not long after when I was first diagnosed. I used to sleep on a towel and a small one on my pillow. They often be soaking wet. I had spare ones close by the bed, including spare pyjamas and so I could swap and change without too much fuss and waking myself up too much. However, I didn’t suffer in the day time so I don’t know what to suggest.
I expect someone has experienced this though. Must be difficult in the middle of your summer too. All the best.
Dear Lorraine,
When I was 18, I caught a severe case of Mono, called Glandular Fever here in the UK. I had lots of other things wrong with me at the time, so it took a while to pinpoint the source of my illness.
It manefested itsekf with acute Heputitus, not the kind you catch, just something that took hold of my liver and destroyed it.
Not knowing what was going on, the doctors pumped me full of Steroids, megadoses of Prednisone, So I am not sure if these symptoms were caused by the steroids or the liver, but I had horrific night sweats, and awoke every morning soaking wet, along with my nightgown and my sheets.
Sick as I was, I had to shower every day, while my mother changed the sheets.
My other bad symptom I know for certain was my liver, and that was terrible back pain, sometimes, if I did some activity, like an idiot ( I was supposed to be confined to bed) the pain attacks would be so bad, I couldn’t even scream for help, which I needed, as my liver had become inflamed and I needed hospitalisaton to deal with it.
So, what I am saying is, this could be caused by your liver and you need to have it checked out.
Unless you are on megadoses of steroids, and then I don’t know what you should do.
But you need help!
Just to add, that I was young then and after healing from my underlying illness, my liver totally recovered.
I wish yours would, too.
Hugs,
Laura
Hi Lorraine , lovely to hear from you , sorry your suffering with the hot sweats , sleeping on a towel helps . I used to fill a hot water bottle and put it in the freezer, then wrap it in a cloth . This kept my bed cool .Hope you manage to see your doctor .
Sending love
Sheila xxx
Lorraine , you are always so helpful to all of us I don’t know what to say to help you get relief except all the usual things , Cotton clothing , well ventilated rooms ,sipping cool drinks .Hope you find something that works .Julia xxx
Ah Lorraine, sorry you dealing with this on top of everything else ☹ do you have a fan you can have blowing over you constantly but don't catch a chill. I cannot sleep without a fan any more because of the sweats . Think of you often, sending love and strength 💐💖
Dear Lorraine
I don’t know if this could Help, when my dad was on very big doses of steroids, I often spoke to his consultant, she always advised to cool him down , ice packs in a towel around his neck and wrists in icy cold water,
Hope you find a solution xxx
Hi Lorraine.
Like Helen, I'm mostly familiar with night sweats (after debulking surgery, due to surgery induced menopause), and dealt with them in a similar way i.e. beach towel on bed, spare towel and pjs out and prepared to get up at night and change.
In addition, I ate something like half a pack of frozen fruit right before sleeping. At least I didn't feel quite as hot and bothered after.
Are you sure it's not a fever? I'd agree with Laura and would think you're right in trying to have a doctor look at it as soon as possible...
Hugs and good vibes to you. Maus
Lorraine, please get medical help to rule out infection, sepsis or organ damage. Do not assume that might sweats are simply a temporary side effect. I'm concerned that something serious could be overlooked.
Dear Lorraine . With night sweats which I had for a couple or three weeks , I e waking up clothes drenched , it was while on the FEC chemo in which I seem to get every side effect in their arsenal . It went after a time but was replaced with dysentery , nausea and dizziness ! I just changed night wear , filled a hot water bottle and kept taking my temp to check that I didn’t have an infection . I’m sure I did have something brewing , so suggest you keep your eye on evening temp particularly as normally you sweat to reduce the body’s fever as you most likely know.
I hope this finds you I’m reasonably good spirits . Thinking of you
Denise x (From NZ but living in Dorset UK)
Oh my sweet, I’d suggest sleeping on a towel as the other ladies have said but maybe sleeping with a fan on too and staying hydrated if you feel it’s side effects, however get checked out for peace of mind xxx
Sorry Lorraine, that must be horrible. I was the opposite I could never get warm so I'm afraid I can't help at all but wish you all the best. Zena xx
I cant add anything different to the suggestions above Lorraine. I did find once I more or less eliminated sugar, my sweats became less.
Hope you get them sorted soon. Xx
Dear Lorraine. So sorry to read you’re suffering with extreme hot sweats. It must be a nightmare. I’m afraid that I don’t have any practical tips but just want to send you my very best wishes. Love Jo 🌺🌼🌸🌻
I have been put on clanidion was on laprozole but the sweats were worse the coalition helps but you can depression with them but I seem to be fine just get go advicexx
Im so sorry to hear how uncomfortable you are. My mum gets these through her steroids but checking there’s no fever is important too. When I was getting them a ceiling fan has helped me and a cold water bottle for my feet which seems to keep the rest of the cooler.
I do hope you feel more comfortable very soon
Love
Alex xx
I have a fan directioned at my head all year, keeps me cool and it’s a nice soothing feeling xx
So sorry to hear about your sweats. They are the worst!
I had my 1st recurrence in October of 2018 after being NED for only about 5 months. Leading up to the recurrence diagnosis I had horrible night sweats due to the activity of the cancer and the buildup of ascites in the abdomen. I was put on a drug regimen of carboplatin, doxil, and avastin. The night sweats went away within two weeks of starting this drug combo.
Hope you find some relief soon.
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