Hi ladies. It's been a while since I posted but I just wanted to share with you this news. As some of you are aware, I started hyperbaric treatments to close a breast wound. It shrunk by 50% but I'll take what I can get. Unfortunately while doing those treatments, my 3rd recurrence of PPC was detected after treatments finished. My Ca125 was 977. I then started the Niraparib December 3rd, and results have shown that it is working! My Ca125 as of Jan 10th is 280. I've been on Niraparib only 5 weeks and I'm thrilled that this may be the cure for me. Cancer maintenance is the way to go!
Good news!: Hi ladies. It's been a while since I... - My Ovacome
I'm sorry to hear the Parp is not working as expected. I hope you don't mind me asking how your rib nodule was picked up and if you had pain in that area. As I'm about to embark on treatment for second recurrence of PPC I have unbearable pain in my ribs at the site of last year's mastectomy. Recent scan didn't show up anything and neither did a chest X ray. My GP prescribed a mix of paracetamol and Codeine which just takes the edge off the pain.
Once again I'm sorry for intruding on this discussion and I do hope you will find an alternative treatment. Take care
I was diagnosed with high grade , stage 3C in 2011. I was treated with Carboplatin and Taxol and responded well. I remained NED until 2016 and had a recurrence in my peri aortic lymph nodes . Carboplatin brought me back to stable again . Then I had a mastectomy in Dec 2017 for an unrelated BC which was followed by Radiotherapy . In two weeks I will start Carboplatin/Taxol once more for a second recurrence in the same lymph nodes. In the meantime I’m keeping my fingers crossed and hands joined for yet another stable period. It has become a way of life now and I do realise I am veery lucky to be writing this ! Best wishes to you.
X X X
Great news!! I started Niraparib end of December just before Christmas! 200mg dose. Apart from the initial side effects of headache, back pain and nausea I’m tolerating it well. The only lasting effects at min at very dry mouth and insomnia! Some nights can sleep 6 hours but on a bad night only managing 3-4 hours 🥺😴 bit I’ll take that over chemo any day!!! Just so have to watch bowels as can cause constipation, what’s new??!! So I’m making sure I drink plenty water. Hope your numbers continue to drop, I’m at first check up with consultant Thursday so will see how bloods are and if my body is coping with it.
That's wonderful, Sam! The side effects are a downer, the worst for me is lightheadedness and fatigue. Insomnia plays a role too. I average 6 hours a night. Sometimes I'm still awake at 6am..ugh. but the side effects are worth it, the alternative is too common for us all. Stay strong and do let us know how your bloodwork comes out. Xxoo