Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for October 2018

Ovacome Christmas Cards

Hello All This is to let you know our Christmas cards and stocking fillers are now available online through our shop https://www.ovacome.org.uk/shop All cards...

Hello All This is to let you know our Christmas cards and stocking fillers are n...

TheOvacomeTeam

Partner•6 years ago

4 Replies

Finally got the answer

Good morning to all you lovely ladies .hope you are keeping well.i said I would update you all .i have used this site to get information in the last year as...

Good morning to all you lovely ladies .hope you are keeping well.i said I would ...

Gettingoldnow

•6 years ago

6 Replies

Interesting news re Olaparib

http://www.clearityfoundation.org/ovarian-cancer-breakthrough-drug-prevents-disease-returning-for-years/

http://www.clearityfoundation.org/ovarian-cancer-breakthrough-drug-prevents-dise...

Katmal-UK

•6 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Teal Angel

Hi ladies I was looking for some artwork online and came across this Teal Angel and I thought it was beautiful & represented all of the amazing brave &...

Hi ladies I was looking for some artwork online and came across this Teal Angel ...

Hidden

•6 years ago

17 Replies

Cisplatin

Hi Ladies hope ye are all well as possible. I need some urgent replies as I think I must have the most impossible oncologist to deal with . I had frontline...

Hi Ladies hope ye are all well as possible. I need some urgent replies as I thin...

coksd

•6 years ago

16 Replies

My wife's u. S. G report says her both overies are bulky in size with peripherally placed multiple sall cystic stomal thickening.

What is the suggestion to way out. Have any think to worry

Paldnk

•6 years ago

3 Replies

Thank you for messages

Just to say thank you for all your messages and support and will keep you posted. Had an ok night and might be getting Hickman line in today which is needs...

Just to say thank you for all your messages and support and will keep you posted...

Hertsmum

•6 years ago

5 Replies

Parliamentary debate on OC on October 30th (soon!)

Hello everyone, Please take a few moments to email your MP to ask him/her to attend this debate. This is a campaign lead by the charity ‘Target Ovarian...

Hello everyone, Please take a few moments to email your MP to ask him/her to att...

Seasun36-uk

•6 years ago

9 Replies

Long term survivors of stage 3c or 4 recurrent OC.

Hi, i know there are lot of womens surviving long term 7 + years despite multiple recurrences. Looking for some positive stories. My mum is 5 years survivor...

Hi, i know there are lot of womens surviving long term 7 + years despite multip...

ivanco1

•6 years ago

58 Replies

Thinning hair

Hi Ladies, any suggestions of what to do or take for thickening up hair , I am taking Olaparib at the moment ... Loren x

Hi Ladies, any suggestions of what to do or take for thickening up hair , I am t...

Lorent

•6 years ago

14 Replies

Good News

Not posted for a long time but do read posts regularly. Just wished to share good news as we all need positive stuff to give us a lift. Went for my check today...

Not posted for a long time but do read posts regularly. Just wished to share goo...

Heatherslade

•6 years ago

19 Replies

Low Grade Ovarian

I am 8 months on from second surgery in London. My recent CT scan, bloods and CA125 show no evident disease and a CA125 of 14 (down from 16 3 months ago). I...

I am 8 months on from second surgery in London. My recent CT scan, bloods and ...

thomas62

•6 years ago

12 Replies

Feeling a little down

Hi ladies, on Friday i started my mop up chemo after my TAH and debulking. It seems so much harder this time than the previous 4 sessions of carbo/ taxol. I’m...

Hi ladies, on Friday i started my mop up chemo after my TAH and debulking. It se...

Tay100

•6 years ago

6 Replies

Update fingers x

Spoken to the consultants secretary she says she's almost certain the blood results are in and as far as she can remember she didn't prioritise them when she...

Spoken to the consultants secretary she says she's almost certain the blood resu...

Hidden

•6 years ago

7 Replies

Locked out,

Hi admin, my account seems all wonky, I can message but not post for some reason on Ovacome or Ovacare or reply. Could admin look into it for me please thank...

Hi admin, my account seems all wonky, I can message but not post for some reason...

Hidden

•6 years ago

2 Replies

Incisions Hernia and Travel

Hi All, I don,t often post here but read the posts regularly and respond when I feel I have something to say. Just a quick potted history I was diagnosed with...

Hi All, I don,t often post here but read the posts regularly and respond when I ...

dryden1

•6 years ago

3 Replies

Migraine and OC

This might seem a bit left field, but I wondered if anyone else has experienced migraine of one sort of another, in particular prior to an OC diagnosis. I...

This might seem a bit left field, but I wondered if anyone else has experienced ...

bamboo89

•6 years ago

10 Replies

DEBULKING SURGERY

Hello Ladies its day 11 after my de-bulking surgery, and I have a few questions for you please. How long after your op did you drive your car? and is bloating...

Hello Ladies its day 11 after my de-bulking surgery, and I have a few questions ...

Hidden

•6 years ago

50 Replies

Advice please ladies.....thanks

Hi ladies, I'm grade 4 brca 2 positive. Diagnosed may/June 2017, debulked then six cycles of carbo/taxol, can dropped from 2700 to 9. Had avastin added on...

Hi ladies, I'm grade 4 brca 2 positive. Diagnosed may/June 2017, debulked then ...

Joanie12

•6 years ago

18 Replies

Fantastic news

just thought I'd let you all know, surgery went extremely well and all biopsies were taken well Thursday i had my results and all came back clear no abnormal...

just thought I'd let you all know, surgery went extremely well and all biopsies ...

anisha132

•6 years ago

19 Replies

It’s back again

I was diagnosed with 3c ovarian cancer six years ago Now it’s stage four and in my spleen I have had four lots of chemo in this time the latest one I had to...

I was diagnosed with 3c ovarian cancer six years ago Now it’s stage four and in ...

kaza1

•6 years ago

12 Replies

Still waiting...no news good news?

Not heard nothing yet re blood tests ,biopsy,rang the gp they've said if consultant requested then then they won't get sent results theyl go back to him and I...

Not heard nothing yet re blood tests ,biopsy,rang the gp they've said if consult...

Hidden

•6 years ago

2 Replies

Chemo brain? Will it ever recover?

Hello Ladies. I am 3 months after chemo. Please tell me your experience with 'chemo brain'. I am getting completely lost with the lack of multitasking and...

Hello Ladies. I am 3 months after chemo. Please tell me your experience with 'ch...

MartaCiom

•6 years ago

28 Replies

Study results published today

Makes interesting reading for all those women like me who were never offered a ca 125?and feel they were not listened to or taken seriously.

Makes interesting reading for all those women like me who were never offered a c...

ShazD

•6 years ago

31 Replies

Steroids

My mom has PPC and also got double pneumonia and had large doses of steroids her CA 125 went from over 2000 to 300 ?? Oncologist sees no reason and still...

My mom has PPC and also got double pneumonia and had large doses of steroids he...

Love2315

•6 years ago

5 Replies

Debulking surgery options

Hi folks, I’d appreciate some advice please. My mum has ovarian cancer and is being treated between Buckinghamshire and Oxford. She’s currently on her 6th and...

Hi folks, I’d appreciate some advice please. My mum has ovarian cancer and is be...

Hidden

•6 years ago

14 Replies

Niraparib side effects - low platelets

Hi. I am very well and fit following my surgery, then 2nd line chemo after a recurrence in Feb this year. I was SO pleased to be offered Niraparib and started...

Hi. I am very well and fit following my surgery, then 2nd line chemo after a rec...

GillyN

•6 years ago

12 Replies

Roller coaster

Since my time on the LOGS trial ended back in April I have been on a bit of a roller coaster. My pleural effusions went nuts after stopping treatment and I...

Since my time on the LOGS trial ended back in April I have been on a bit of a ro...

ScardyCat40

•6 years ago

30 Replies

BUCKET LIST!!

After reading Julia's post regarding her bucket list and Glastonbury, it got me thinking as to what would be on mine. Mine begins with cruise to see Northern...

After reading Julia's post regarding her bucket list and Glastonbury, it got me ...

Hidden

•6 years ago

43 Replies

CA125 blood tests

Hi all just looking for any input really ...long story short having problems years with stomach periods had lap done last December took old endo away nothing...

Hi all just looking for any input really ...long story short having problems yea...

AmyG33

•6 years ago

8 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2018

Ovacome Christmas Cards

Finally got the answer

Interesting news re Olaparib

Teal Angel

Cisplatin

My wife's u. S. G report says her both overies are bulky in size with peripherally placed multiple sall cystic stomal thickening.

Thank you for messages

Parliamentary debate on OC on October 30th (soon!)

Long term survivors of stage 3c or 4 recurrent OC.

Thinning hair

Good News

Low Grade Ovarian

Feeling a little down

Update fingers x

Locked out,

Incisions Hernia and Travel

Migraine and OC

DEBULKING SURGERY

Advice please ladies.....thanks

Fantastic news

It’s back again

Still waiting...no news good news?

Chemo brain? Will it ever recover?

Study results published today

Steroids

Debulking surgery options

Niraparib side effects - low platelets

Roller coaster

BUCKET LIST!!

CA125 blood tests

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