Posts - My Ovacome | HealthUnlocked

My Ovacome

17,824 members • 20,059 posts

All posts for August 2018

Platinum resistance

Hi everyone, I'm looking for some optimism with my latest situation and hoping someone on this forum can help! I have recurred just 3 months after finishing...

Hi everyone, I'm looking for some optimism with my latest situation and hoping s...

Lou53

•6 years ago

3 Replies

Niraparib

Hi lovely ladies, I hope you are all as you can be. I was just wondering if any of you ladies out there are on niraparib for maintenance as I am to start this...

Hi lovely ladies, I hope you are all as you can be. I was just wondering if any ...

Lewisriley47

•6 years ago

12 Replies

update on shingles and caelyx

Hi my lovely ladies it's been awhile this singles has really knocked me around it;s made my right eye very sensitive to light, as for treatment my oncologist...

Hi my lovely ladies it's been awhile this singles has really knocked me around i...

lorraine71-Australia

•6 years ago

80 Replies

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Avastin Effects after 13cycles

Hi, was wondering if anyone here has stopped Avastin completely and not finishing the 18cycles? My mum is having servers stomach pains and I’m worried if she...

Hi, was wondering if anyone here has stopped Avastin completely and not finishin...

Harper_23

•6 years ago

23 Replies

Avastin Effects after 13cycles

Hi, was wondering if anyone here has stopped Avastin completely and not finishing the 18cycles? My mum is having servers stomach pains and I’m worried if she...

Hi, was wondering if anyone here has stopped Avastin completely and not finishin...

Harper_23

•6 years ago

1 Reply

Confusing news re borderline ovarian tumour

hi i got told yesterday from the doctors that the tumour itself was non invasive, so does this mean it couldn't have spread, I'm not due to have my ovary and...

hi i got told yesterday from the doctors that the tumour itself was non invasive...

anisha132

•6 years ago

6 Replies

New here. Treatment ideas? Endometrioid Ova

You can see my mom's story on my profile. She has stage 3c Ovarian Cancer (endometrioid). She is only 58. She raised me as a single mom and is the only thing I...

You can see my mom's story on my profile. She has stage 3c Ovarian Cancer (endom...

AnxiousDaughte

•6 years ago

16 Replies

Thanks for yr replies

Given Im off to Vegas tomorrow I dont have time to thank everyone who replied to my post about Olaparib still working yesterday but big thank you for all your...

Given Im off to Vegas tomorrow I dont have time to thank everyone who replied to...

Katmal-UK

•6 years ago

20 Replies

Worried

Hello everyone 7 months ago I did a bilateral oophorectomy and now I passing streaks of blood and having back pain, should I be worried?

Hello everyone 7 months ago I did a bilateral oophorectomy and now I passing str...

Ramonasumi

•6 years ago

1 Reply

Scans

Hey everyone My doctor sent me for early ct scan Chest pelvis and abdomen I’ve been having really bad lower back pain an my alkaline phosphatase is elevated...

Hey everyone My doctor sent me for early ct scan Chest pelvis and abdomen I’v...

Jasel23

•6 years ago

12 Replies

OLAPARIB STILL WORKING

I hesitated before posting as I know so many ladies are having a bad time and that makes me extremely sad.. I had results of my latest scan Weds. Still NED (5...

I hesitated before posting as I know so many ladies are having a bad time and th...

Katmal-UK

•6 years ago

74 Replies

To give those “resistant” ladies a bit of my good news..

Hello I don’t post much but read all with interest and try to share a little when a post crops up that I believe may help a little..! Well yesterday I finally...

Hello I don’t post much but read all with interest and try to share a little whe...

Hopefulgal1

•6 years ago

108 Replies

Totally understand how you feel !

Hi Lily -Anne , I totally equate with what you are saying , sometimes these health care professionals are incapable of engaging with the person they have in...

Hi Lily -Anne , I totally equate with what you are saying , sometimes these heal...

Katherinemanning

•6 years ago

1 Reply

so helpful

I just want to say thank you for sharing so much, I am waiting for blood test results and have an ultrasound scan next week. Although no diagnosis yet I know...

I just want to say thank you for sharing so much, I am waiting for blood test r...

greenthinking

•6 years ago

1 Reply

Just a little bit of help and advice please

Hello I'm hoping it's ok to post just for some advice given I have not been diagnosed with Ovarian Cancer but have been having some tests etc. I guess I'm...

Hello I'm hoping it's ok to post just for some advice given I have not been dia...

Minibarr16

•6 years ago

11 Replies

Another 6 months on good behaviour

Been to the Christie at silly 0 clock (8.20 😬) this morning for my 6 monthly check up. All appears to be where it should be, all my bloods weren’t back but...

Been to the Christie at silly 0 clock (8.20 😬) this morning for my 6 monthly ch...

Cropcrop

•6 years ago

72 Replies

Desensitization protocol later today

Has anyone else gone thru desensitization protocol so they could continue with a chemo drug they had an allergic reaction to? I am on first recurrence as...

Has anyone else gone thru desensitization protocol so they could continue with a...

ecappiello

•6 years ago

6 Replies

Bad day

I had such a bad day at work today I struggle every day with things that were second nature to me I’ve been at the same job for almost 20 years but I just...

I had such a bad day at work today I struggle every day with things that were se...

Jasel23

•6 years ago

15 Replies

In Limbo........update!

Hello all of you lovely ladies that have replied to me..........just got a phone call from the hospital, my appointment has been cancelled for the 28th, seems...

Hello all of you lovely ladies that have replied to me..........just got a phone...

Hidden

•6 years ago

16 Replies

Vistusertib and taxol

There’s an article in the mail today saying that the above drug in combination with paclitaxel has shown promise in slowing down the growth of ovarian cancer....

There’s an article in the mail today saying that the above drug in combination w...

Eriksendi

•6 years ago

10 Replies

Taxol weekly ended up with Shingle's

Hi ladies hope your ok sending big hugs .... Well i have shingles ... oncologist said today but my partner guessed i had.. he thinks he should bein a doctor...

Hi ladies hope your ok sending big hugs .... Well i have shingles ... oncologist...

Tracex

•6 years ago

2 Replies

Thinking

As you are all aware I have been hospitalised twice with infection these past two weeks, oncologist said no chemo this week due to inflammation marker still a...

As you are all aware I have been hospitalised twice with infection these past tw...

ellseybellsey

•6 years ago

8 Replies

In Limbo

Feeling very low for for the last few days, my 3rd chemo/taxol affected me a great deal more than the first 2, the fatigue was extraordinary and knocked me off...

Feeling very low for for the last few days, my 3rd chemo/taxol affected me a gre...

Hidden

•6 years ago

23 Replies

I’m scared.

Hi ladies. I did the chemo on Monday. Cisplatin and gem. I was being sick which is normal for me at the moment. Mid afternoon I started vomiting ground...

Hi ladies. I did the chemo on Monday. Cisplatin and gem. I was being sick which...

Suzanne333

•6 years ago

47 Replies

Bad news

All of you are so strong and so willing to give advice, I love that so much. My latest CT scan showed my uterine cancer has now spread into my liver. My...

All of you are so strong and so willing to give advice, I love that so much. My...

Deb52

•6 years ago

18 Replies

Nervous

Hi ladies, I have my operation tomorrow ( total hysterectomy and debulking). I am so nervous any ideas on how to calm my nerves down. Logically I know I’m...

Hi ladies, I have my operation tomorrow ( total hysterectomy and debulking). I...

Tay100

•6 years ago

10 Replies

Chemo Again

Started back on chemo Sept 2017. Took 9 infusions of Taxol and cancer continued to grow and spread. It's progressed from 3c to stage 4 now. Have taken 2...

Started back on chemo Sept 2017. Took 9 infusions of Taxol and cancer continued ...

Jenny1958

•6 years ago

3 Replies

Back spasms

Hi all - I am having my 9th weekly taxol this week (every 3rd week I also get carbo) - 1/2 way through 18 weeks! A month ago I had to start granix injections...

Hi all - I am having my 9th weekly taxol this week (every 3rd week I also get ca...

ElayneZ

•6 years ago

16 Replies

holiday here I come

Finally sorted holiday insurance thank you to everyone. I've got it with Insure with. My last chemo next week the holiday 2 weeks later the back at my...

Finally sorted holiday insurance thank you to everyone. I've got it with Insure ...

amandanewe2

•6 years ago

4 Replies

Dermoid cyst

Just wondering got mri last week told me I had a dermoid cyst 12cms if left ovary then few days later doctor called to say he would like to see me to dmsay I...

Just wondering got mri last week told me I had a dermoid cyst 12cms if left ovar...

Dermoidmichelle

•6 years ago

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2018

Platinum resistance

Niraparib

update on shingles and caelyx

Avastin Effects after 13cycles

Avastin Effects after 13cycles

Confusing news re borderline ovarian tumour

New here. Treatment ideas? Endometrioid Ova

Thanks for yr replies

Worried

Scans

OLAPARIB STILL WORKING

To give those “resistant” ladies a bit of my good news..

Totally understand how you feel !

so helpful

Just a little bit of help and advice please

Another 6 months on good behaviour

Desensitization protocol later today

Bad day

In Limbo........update!

Vistusertib and taxol

Taxol weekly ended up with Shingle's

Thinking

In Limbo

I’m scared.

Bad news

Nervous

Chemo Again

Back spasms

holiday here I come

Dermoid cyst

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