Bad news

[Deb52]

All of you are so strong and so willing to give advice, I love that so much. My latest CT scan showed my uterine cancer has now spread into my liver. My oncologist is surprised how fast it’s moving. He’s referring me to a specialist in Chicago. I just want to ask if any of you have had your cancer spread to your liver and what I can expect. You are such a wonderful, caring group and again I thank you for that, 💗

[Hidden]

so sorry to hear this sad news, I wish you the best with your consult in Chicago and hope they have a plan ready for you,

[Deb52 in reply to Hidden]

Thank you.

[Lily-Anne]

I was told I had spread to my liver in May 2017. My oncologist describes it as extensive spread however my liver function is normal. The lesion on the outside is 17mm and has been for all of that time. How accurate anyone is I don’t know. What I do know is that when they say liver it’s the scariest moment. I remember feeling hot and cold and thinking it was all over.

I have learnt that regular scans and bloods to monitor it are actually more reassuring than anything. OC patients are less likely to die from liver failure in comparison to some other cancers. So please don’t become stressed about what it may mean. X-ray specs would be good then we could check it out ourselves. I’m sure your specialist will put your mind at rest. I hope we all will too

Best wishes

LA xx

[Deb52 in reply to Lily-Anne]

Thank you so much for your response, Lily-Anne. I freaked out when he called me yesterday but I know I need to stay strong to fight this. You’re right that when they say liver it seems like it’s all over. Thank you again.

Deb 💗

[Neona]

My clear cell ovarian cancer spread to my liver during frontline chemo. I am now on a clinical trial for the drug AZD 6738 which has kept it stable since Christmas with a small amount of reduction.

[Deb52 in reply to Neona]

Neons:

Thank you for your response. I wish you continued good luck with your health. I know they’re probably going to put me on a trial too. It’s just that when they mentioned my liver it freaked me out. You’ve given me some hope.

💗

Regards,

Deb

[Suzanne333]

So sorry to hear that. I’m sure your oncologist will have a plan. I’ve heard of it happening to women and it can be treated.

Keep strong xxxx

[Deb52 in reply to Suzanne333]

Thank you. 🙏🏼💗

[PhillipandBettykid]

Mine spread to the liver last year. As it was already in the lung I call them my thirderies! I have 2 on the outside and 1 on the inside. I had palliative chemo again finishing at the end of January. They have shrunk a little but are still there, but like Lily Anne liver function is fine.

The thing that I have learned with this disease is to go with the flow. I have been ‘terminal’ since 2014 diagnosis. As I often say I am supposed to be dying but I keep forgetting to do it. What has been terminal has been the life that I would have had. I am now disabled and keep going through steroids. I make the most of my good days and rest on the bad days.

I do have wobbles of course. Last visit with the oncologist was positive, bloods including CA 125 were all good and I was disappointed! It was because I don’t feel well a lot of the time. I thought that positive results would mean better quality fo life and feeling better. My lovely Doctor helped me. She reminded me that I still have cancer, the tumours and a crumbling back. Isn’t it silly, I felt vindicated and that it was okay to have bad days.

Hang in there. Enjoy the good days. Guard your quality of life that is what matters.

[Deb52 in reply to PhillipandBettykid]

Thank you so much. I do have symptoms of liver problems which adds another layer of fear. I pray for continued good days for you. 💗

[Zena41]

Hi mine spread to liver and spleen I did not even know but prof managed to scrape the liver it’s gone now 🙏🙏

[Maxjor]

Hi Deb--same as Zena41 for me. It was (on or in--I do not know) stated that I had liver involvement at diagnosis and in Frontline, they had a liver specialist and they cut it out/off and have had zero comments about my liver in the many scans since. I guess you will find out more and how it will be treated but it can hopefully be eradicated. Wishing you luck and giving you hugs, Judy

[Deb52 in reply to Maxjor]

Judy: My fear comes from not knowing anything about the liver, that’s why I turned to this group. Sometimes looking things up on the internet just adds to my fear. I had no idea they could operate on the liver. You’ve given me hope. 🙏🏼💗

[Maxjor in reply to Deb52]

I meant debulking surgery not frontline but I am sure you knew what I meant. I think minimally you should ask to see a liver specialist but I’m at MSKCC and they automatically consult with them and then if a “go” they’re in the surgery too. I think “on” not “in” can be treated with chemo as well (maybe both?) but if nothing else, these posts will give you the questions you need to go to your appt with. Wishing you some worry free time as you receive more info and get your plan in place. Xoxo

[Yoshbosh]

I have it *on* my liver, which I think is a bit different to *in* my liver, but chemo has shrunk it back sufficiently each time. My liver function has been all over the place, but never as a result of the cancer or the chemo - go figure!

I hope your referral comes through quickly and you can get some answers.

Vicki

[Deb52 in reply to Yoshbosh]

Thank you. I pray that something will help. 🙏🏼💗

[Nancy222]

Hi Deb,

Hugs on the diagnosis. There's always a terror in our hearts when we hear something like this.

I was originally diagnosed with low grade serous cancer and things were going fine until a CT-scan showed cancer in the liver.

A biopsy revealed it was clear cell cancer, which is aggressive in spreading. The liver surgeon ordered a MRI along with yet another CT-scan, and determined the growth had spread as he had indicated would likely happen.

At that point I had two tumours, one deep in the liver, and several cancer cells on the liver. Right now I'm being treated by a medical oncologist, on Caelyx, and the hope is the cancer shrinks enough to reassess next steps. Likely we'll go the trial route. The good thing about the liver is that it regenerates if you get a resection.

If it's any help, I haven't felt as good as I am feeling right now in a long, long time. I'm trying to eat plant based meals, but I'm also including small amounts of red meat and, sigh, fish and chips. And I walk most days.

Keep us posted as to what the specialist in Chicago says. This is the time to take good care of yourself.

XXOO

[Deb52 in reply to Nancy222]

Thank you so much for your reply, Nancy. I can’t wait until I see the specialist next Monday. xo💗

Deb