OLAPARIB STILL WORKING

[Katmal-UK]

I hesitated before posting as I know so many ladies are having a bad time and that makes me extremely sad.. I had results of my latest scan Weds. Still NED (5 years this month) with a CA125 of below 3. The Olaparib is still working. My reason for posting is purely to give hope to some of the ladies out there maybe just starting on their 'journey' etc. Big hugs to all those going through a bad time, you are constantly in my thoughts xx Kathy xx

[Cnmart]

Brilliant, congratulations Kathy, I know your posts bring hope to me!! 😊😊😬💐 xx

[Jane420]

That’s great news . We all need to hear positive stories , they are out there !!

[CallmeMum]

Fabulous about time someone had some good news xxx

[Luchie]

Hi Kathy,

What an uplifting post! Congratulations and may it continue for you to be good news for a very long time. You are one of our role model for this journey. May I ask what stage you were when you were diagnosed? And have you got the slow growth or the high grade? Thanks again. Xxx

[Katmal-UK]

Hi Luchie. Stage 3 High grade I believe. TBH never really had it confirmed by the Onc, though later confirmed as Stage 3 by a third party who was instructed not to tell me..... I don't do wanting to know all the details, I'm not a coward but I'm a 'OK I have Cancer lets do what I need to to kick butt' I just don't do detail w2hen it comes to medical stuff lol. My coping mechanism I suppose plus I knew a fair bit my mum having had it. Hope you are doing ok xx

[Agility in reply to Katmal-UK]

Like so many others. I’m so very pleased for you and so glad that you shared your news. It allows others to share in your good fortune and gives us hope x

[sticky3006]

Great news! During my darker moments it really helps to read of others who are doing well and it gives us all hope for the future. Thank you!

[gmc920]

Yay!! So happy for you and this really gives us all hope 😊🥂

xx Gina

[January-2016-UK]

This is such good news Kathy. Five years NED, especially as you have recurred in the past. A lot of ladies with such long remission have never recurred so there's hope for us all that somewhere out there, there's a drug for us all.

Hope you are going to celebrate! 🍸🍾🎉

[julia8163]

You are a great insipiration to all of us. Well done.

[Jackie0]

Great news! Just what we want to hear!! Enjoy your bank holiday

Much love JackieO xxx💐💐💐💐

[Maus123]

Glad you posted, Kathy. Grats on the 5 yr mark and may it continue. xx. Maus

[Coldethyl]

Great news xxx

[WoodyB]

Fantastic, great news Kathy. You give everyone hope that PARP inhibitors can keep the beast at bay xx

[Alifit]

Great news which should always be shared as an encouragement to us all.

Well done you, long may it last and long may others be able to report similar results.

Lots of love, Ali x

[Solange]

Fantastic news, Kat!!!! Thank you for sharing your happiness.

Love, Solange 😊

[Lizz49]

THis is the most wonderful news Kathy, you are one truly inspirational lady!! I really appreciate you sharing this and it does give so much hope. Thanks also for being so supportive to all on this forum, I know it means a lot to many and helps us on our journeys.

Hope you’re celebrating your wonderful news 🥂💕

Liz Xx 💖

[Hidden]

Great news Kathy. Long may it continue 🍾💐

[Hidden]

Hello Kathy - Thank you for sharing your excellent news, It has certainly given me hope to cling to. long may you continue to thrive.

Lyn xx

[Lorraine_123]

This is such an inspirational post. So pleased for you, long may it continue. I’m stage 3, and nearing my third line chemo and hopefully starting Olaparib for BRCA 1. This gives me so much hope. Take care xx

[Hidden]

Just fantastic! 🌟🌟🌟

[Lyndy]

That’s fantastic...gives me real hope, thanks for sharing x

[Mlowery]

Hi kathy

Don’t often post but it means a lot that you are still hanging around giving your support to those still struggling.

My best best wishes to you and long may it continue.

Maureen

[Lorent]

Hi Kathy you are an inspiration to all of us, I started Olaparib two weeks ago I am so hoping to follow your footsteps, best wishes and long may it continue

Loren x

[MH500]

Fantastic news Kathy, always my inspiration!!! Never feel guilty about sharing good news, there are so many who need to hear it. Carry on kicking ass

Marian xxx

[Lewisriley47]

Great news, long may it continue! Pam x

[Welshandproud]

Wonderful news Kathy. Share away!!it's so good to have good news. This inspires us all xx

[Orsolini]

Hurrah. I agree wonderful you are still offering support to others too. Nicola xx

[Seasun36-uk]

Kathy, how wonderful!! How truly wonderful!! Thrilled to hear this & yes, it does encourage us all xoxo 🥂🎉🔆

[BJ_UK]

That's great news, Kathy! Brought a smile to my face!

[Lily-Anne]

That’s great news Kathy. Your story has kept me motivated all these years am wishing you permanent remission. Thanks for posting not only does it give us all hope but it’s nice to have good news to celebrate

Much love

LA xx

[nettieanne]

I am 6 yrs NAD from using olaparib still working full time and apart the shadow of having cancer I’m loving life CA 125 fluctuates between 4-5 every month which is good for me . For all thoughs just stating their journey keep strong and big hugs

[Luci22 in reply to nettieanne]

That's amazing, did you ever have recurrence? Is that why your'e on olaparib? Great news also.

[Katmal-UK]

Fantastic news. Are you on a trial?

[Hidden]

Fab news on top of the sunny morning! Hooray!

[ShropshireJo]

Good to hear your news, Kathy. Thank you for brightening up my day. All the best Jo 🌺🌼🌸🌻🌹

[Emalou71]

This is amazing so pleased for you xxx

[Petrolhead]

Already looking forward to the 10 year anniversary. 👍

[DianesK]

Fab news and always great to hear such positive posts xx 🌻

[Katiebairdie]

Thank you for sharing. I’m now looking forward more positively.

[Clearcell-lady]

Absolutely brilliant Kathy! Xxx

[LittleSan]

Thrilled to bits to hear your news Kathy. 👏👏👏😘

[SCWI]

That is wonderful news Kathy, you are a huge inspiration and a wonderful antidote to all the sad stuff we get on here with lovely ladies struggling. I am hoping to start Olaparib when I finally get my last Carbo/Caelyx done. 🤗xx. Ps that is the lowest CA125 I have ever heard of!

[marylondon]

How inspiring ! Keep on posting.

Really delighted for you .

Do you follow any healthy diet as well ? How about wine ? ( my weakness ) .

Mary x

[Katmal-UK in reply to marylondon]

Hi Mary. Since diagnosis I have changed nothing. As for wine I cant help as Im not a lover of wine or alcohol in general though I do like the odd glass of baileys. Never have liked the taste of alcohol, no other reason lol.

[Travelmonster]

Absolutely brilliant news! Congratulations, we need posts like this, it gives hope!! Enjoy any celebrations.

Much love Paula xxxx

[Howick01]

🌻🌻🌻-great news x

[Peg8080]

That is wonderful news Kathy! So amazing!

Thank you for sharing. 💕💕xxx

[Cropcrop]

Lovely post, congratulations Kathy, you must be thrilled, I am for you, it’s important to share the good with the not so good news I think. It does give hope to others currently having treatment or newly diagnosed, there can be a light at the end of the tunnel. Keep well lovely lady and thank you for sharing ❤️Xx Jane

[ZenaJ]

Fantastic news, Kathy. Really, really pleased for you. We love reading good news. xxx

[Btte]

Hi Cathy great news, hope you have something nice planned to celebrate. It's important we get a balance of good and bad times, because life's like that. Love Bridie

[CJR99]

Fantastic news Kathy!Best wishes,Clarexx

[JayGeeCee]

It's so good to hear positive news, it does give us hope.

Here's to your next 5 years 🥂

Joy

[Bettyxxx]

Fantastic news congratulations xx thank you for posting, having just started on olaparib too the news really helps

Diane

[Pili111]

That is great!! It gives me a lot of hope.

[Bubbles-1]

Thank you so much for sharing your good news Kathy. It gives me so much hope with advanced stage and Parps. Even though I'm on a different parp to you (Rucaparib), you're always my 'go to' example when I need inspiration! Best wishes to you, fab news.

Michelle xxx

[ellseybellsey]

Congratulations and you do give us all hope, long may it continue to work.

Ellsey xx

[Hertsmum]

Wonderful news Kathy, you are right to share. Hope for so many. Even for those of us going through the tough time, anyone else’s good news somehow feels like a little victory for all of us if that makes sense! The hope that more and more women in future will be long term survivors of this hideous illness means such a lot. And, having tried Niraparib recently (a bit late in the day unfort) I know the PARP inhibitors are not necessarily easy and still have side effects, I hope that for you these are still manageable. Love & hugs

Madeline xx

[Emsymits]

Fabulous news! X

[Zena41]

Soo happy lovely x

Gives us hope x

[cathy46]

Great news I have been on Olaparib for 2 months now. So hopefully I will have as good a result

[Katmal-UK in reply to cathy46]

Awww I hope so, from one Kathy to another xx

[Luci22]

This is great news, and inspiring! Did you get on a parp only after a recurrence? Is the olaparib specific to brca gene? All the best!

[Katmal-UK]

Hi Luci. Im on a trial after my second recurrence. Originally diagnosed in October 2007. It was originally BRAC specific but they are trying it on non BRAC ladies now too. xx Kathy xx

[CynD]

The absolute BEST news! God bless you and thank you for sharing!

[Lizchips]

Kathy , fantastic, I'm in the US, is olaparib a daily thing you've been on. I've been cancer free also since April 2014. Next April I'm planning on celebrating 5 years. Congratulations! I'm so excited for you. ❤❤Liz

[Katmal-UK in reply to Lizchips]

Hi Liz. Im currently in USA on hols lol. Yes its a trial drug, a parp inhibitor, I take 300mg in the morning and 300mg 12 hours later. Glad to hear yr doing so well xx

[Hidden]

Brilliant news - absolutely keep posting the positive news, it cheers everyone to hear good news. Dawn xx

[Delfosba]

Congrats 🍾 💕💕💕💕💕

[Hidden]

Hi Kathy - searching for info on Olaparib I came across your post, wonder if you can help, my Oncologist says that the NHS may not cover this drug. I have not yet been tested for BRAC, do I have to be positive to qualify? Many thanks Lyn xx

[Katmal-UK in reply to Hidden]

Hi Lyn. I am on a trial for Olaparib and have been since beginning of January 2014. Im on the trial through the Christies in Manchester. It might be worth you looking up through the Cancer Research website to see what trials are available for both BRAC and non BRAC . Are you going to have the test? Kathy xx

[Hidden in reply to Katmal-UK]

My oncologist seemed to loose interest regarding testing and olaparib, once she realised my private health insurance was ending soon. Instead she has suggested Avastin for a year?

[Katmal-UK in reply to Hidden]

Hi Lyn, I replied to you on your other post regarding Avastin. Not sure where you are based but might be worth you seeking a second oinion at the Christie if thats an option for you? Kathy xx

[Hidden in reply to Katmal-UK]

Thanks Kathy......I always come away from meetings with my oncologist feeling very confused. I either need a certain drug or I don't...…...such a shame it all comes down to money, can't say I am totally surprised. Hope you are well. Lyn x