Posts - My Ovacome | HealthUnlocked

My Ovacome

18,206 members•20,349 posts

All posts for May 2018

Too fast to process

These past 3 weeks have went by so fast..April 19 had a series of ultrasounds for bladder issues..from there found a mass on my left ovary..my urologist sent...

These past 3 weeks have went by so fast..April 19 had a series of ultrasounds fo...

Hidden

•6 years ago

10 Replies

Recurrence? Or not!!

Hello to all! For the last few weeks there has been some question as to whether I’m having a recurrence - my CA125 has been rising since August last year and...

Hello to all! For the last few weeks there has been some question as to whether ...

Alifit

•6 years ago

21 Replies

Carbo only side effects

Well, it seems I start the chemo next Tues. Couple of questions if anyone can comment please? This is carboplatin only. Anyone feel really bad on the day of...

Well, it seems I start the chemo next Tues. Couple of questions if anyone can co...

lynn6156

•6 years ago

20 Replies

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Work & Cancer - your stories

Dear All We are planning a piece on work and cancer for the next newsletter. If any of you have a story you would be willing to share, particularly around any...

Dear All We are planning a piece on work and cancer for the next newsletter. If ...

OvacomeSupport

Partner•6 years ago

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CA125 increased during Chemo

Hi ladies - I was diagnosed with OC serous high grade stage 3C in 2016 aged 46 - I’ve just recently started 3rd line chemo (Gem/Carbo) and only had one cycle...

Hi ladies - I was diagnosed with OC serous high grade stage 3C in 2016 aged 46 -...

Hidden

•6 years ago

12 Replies

In Focus: Diet and Cancer

Dear All As I mentioned in a previous post, the In Focus topic for May is diet and cancer. I asked what you'd like information on as part of this and so far...

Dear All As I mentioned in a previous post, the In Focus topic for May is diet a...

OvacomeSupport

Partner•6 years ago

5 Replies

Recurrences

Hi lovely ladies, I am just wondering how those of you that have had a recurrence, how did you know? My appointment for oncology has been changed to October...

Hi lovely ladies, I am just wondering how those of you that have had a recurrenc...

ZenaJ

•6 years ago

35 Replies

Fluid round my heart.

Hi , I was admitted to hospital last week due to a build up of fluid round my heart. So had to have it drained , I couldn't walk more than two steps as I...

Hi , I was admitted to hospital last week due to a build up of fluid round my he...

Juliette35

•6 years ago

13 Replies

Infection

I ended up back in hospital on Monday with a bladder infection, apparently this is quite common with catheter. Well as with all us ladies nothing is straight...

I ended up back in hospital on Monday with a bladder infection, apparently this ...

ellseybellsey

•6 years ago

6 Replies

Stage 1c clear cell radiotherapy treatment?

Hi there, I am just recovering from debulking surgery, and was staged 1c3 clear cell after it all - the 3 is beacuase they found cells in my pelvic fluid as my...

Hi there, I am just recovering from debulking surgery, and was staged 1c3 clear ...

Roobarb1

•6 years ago

20 Replies

First session of carboplatin

Hi , thought I posted this yesterday, but it seems to have disappeared. Long delays yesterday at Christie’s. got very upset when I got to the chemo ward . Had...

Hi , thought I posted this yesterday, but it seems to have disappeared. Long del...

Manchesterlady

•6 years ago

9 Replies

Can’t believe it misdiagnosed again now looks as though I also have kidney cancer.

I am feeling very deflated. I hadrecurrence of oc in October last year. Had mixed response to carbo on its own, decision was then made for wkly taxol again...

I am feeling very deflated. I hadrecurrence of oc in October last year. Had mi...

Debonair1

•6 years ago

30 Replies

Mom diagnosed with 3c HGSC

Hi All, Just wanted to come on and say hi and introduce myself. My mom, who is 62, was recently diagnosed with stage 3c high grade serous ovarian cancer. I’m...

Hi All, Just wanted to come on and say hi and introduce myself. My mom, who is ...

Lucib

•6 years ago

11 Replies

The beast is back but we have a plan and I asked about why OC recurs so often as I promised I would x

CT has shown ‘cling film’ like tumour over a part of my bowel, I had a stoma during surgery and it’s still working ok but my Ca125 has risen again from a...

CT has shown ‘cling film’ like tumour over a part of my bowel, I had a stoma dur...

BeeWild

•6 years ago

31 Replies

CT results

Hi I have stage 4 PPC Cancer and had ct results just told that it has shrunk the cancer down and plueral effusions resolved with chemotherapy, oncologist said...

Hi I have stage 4 PPC Cancer and had ct results just told that it has shrunk th...

coksd

•6 years ago

13 Replies

Scan results post op. Flowers off my baby.

Surgery was a success and I’m in remission 🍾🌈🙏

Zena41

•6 years ago

42 Replies

Niraparib

Hi lovely ladies. I’ve not been here much. I’ve been very busy working and going out and about. I’ve not been feeling too great but keep pushing myself. I...

Hi lovely ladies. I’ve not been here much. I’ve been very busy working and goin...

Suzanne333

•6 years ago

33 Replies

What is the chance of losing your hair with Caelyx?

My wife is starting Caelyx as second line treatment for stage 3c high grade OC. The worst thing for her with the carboplatin/paclitaxol was losing her hair, so...

My wife is starting Caelyx as second line treatment for stage 3c high grade OC. ...

Michael212

•6 years ago

13 Replies

Positive Thoughts

So I have been lucky , had a colon op in February this year and was given the all clear with no Chemo afterwards , looking at regular check ups every six...

So I have been lucky , had a colon op in February this year and was given the al...

DavidLuther

•6 years ago

5 Replies

Petition - Fund a clinical audit of ovarian cancer to urgently improve survival rates

Dear All There is a petition running at the moment which may be of interest to you. It is for the government to undertake a national audit of ovarian cancer....

Dear All There is a petition running at the moment which may be of interest to y...

OvacomeSupport

Partner•6 years ago

13 Replies

Good news/bad news

I saw my oncologist yesterday after having my third chemo and a scan. The plan is that I am now being passed across to Oxford for a trial. However my scan...

I saw my oncologist yesterday after having my third chemo and a scan. The plan ...

Katiebairdie

•6 years ago

10 Replies

Still stable

Got back from a most wonderful cruise on Friday and then to the hospital. My scan results showed stable disease again after second scan on the Patriot trial -...

Got back from a most wonderful cruise on Friday and then to the hospital. My sca...

Neona

•6 years ago

37 Replies

1 week post chemo 😬

So the queasy feeling is passing 👍🏼 but trying to sleep solid with random pains in feet, bottom, hip and shoulder is a pain! No pun intended. Been told this...

So the queasy feeling is passing 👍🏼 but trying to sleep solid with random pain...

Samjane

•6 years ago

26 Replies

Ova to You Birmingham 24 May 2018

Hello All We are running the next of our regional support and awareness days Birmingham on Thursday 24 May. It will be from 2.30-6pm at the Midlands Art...

Hello All We are running the next of our regional support and awareness days Bi...

OvacomeSupport

Partner•6 years ago

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Hey! What is Avastin dose during the year after surgery??!

I was wobdering if the Avastin dose is more than 400 as a maintenance drug? Wish the luck for all and thanks for sharing! Sara

I was wobdering if the Avastin dose is more than 400 as a maintenance drug? Wish...

sara_mamani96

•6 years ago

2 Replies

Love this.

Saw this glass ornament and love it. This is what I keep telling my children to look for when the time comes x

Saw this glass ornament and love it. This is what I keep telling my children to ...

Beckyjh

•6 years ago

11 Replies

Why such high rate of recurrences?

If my onc was male, I'd call her the strong but silent type- despite saying I might have questions as time went on, every one I have ever asked sort of gets...

If my onc was male, I'd call her the strong but silent type- despite saying I mi...

Coldethyl

•6 years ago

39 Replies

I need your help please! (Travel insurance query)

Hello All Please could you help me with a travel insurance query? I know many of you found InsureWith helpful, but I can't locate this company. The websites...

Hello All Please could you help me with a travel insurance query? I know many of...

OvacomeSupport

Partner•6 years ago

14 Replies

Nervous to start Chemo :(

Well, I went back in for my 2nd surgery to have my Right Ovary removed, when they went in to remove the Ovary they also tried to remove the stem of my Uterus...

Well, I went back in for my 2nd surgery to have my Right Ovary removed, when the...

Sunshine0921

•6 years ago

32 Replies

My Wife was Diagnosed with Mucinous OC Stage 1C/IIB (Grade 2)...

Hello, My name is Mike. My wife (31 years Old) was recently diagnosed with MOC and had a 15CM Tumor removed from right ovary (took tube and ovary with it)....

Hello, My name is Mike. My wife (31 years Old) was recently diagnosed with MOC...

moneill1211

•6 years ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2018

Too fast to process

Recurrence? Or not!!

Carbo only side effects

Work & Cancer - your stories

CA125 increased during Chemo

In Focus: Diet and Cancer

Recurrences

Fluid round my heart.

Infection

Stage 1c clear cell radiotherapy treatment?

First session of carboplatin

Can’t believe it misdiagnosed again now looks as though I also have kidney cancer.

Mom diagnosed with 3c HGSC

The beast is back but we have a plan and I asked about why OC recurs so often as I promised I would x

CT results

Scan results post op. Flowers off my baby.

Niraparib

What is the chance of losing your hair with Caelyx?

Positive Thoughts

Petition - Fund a clinical audit of ovarian cancer to urgently improve survival rates

Good news/bad news

Still stable

1 week post chemo 😬

Ova to You Birmingham 24 May 2018

Hey! What is Avastin dose during the year after surgery??!

Love this.

Why such high rate of recurrences?

I need your help please! (Travel insurance query)

Nervous to start Chemo :(

My Wife was Diagnosed with Mucinous OC Stage 1C/IIB (Grade 2)...

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