CT has shown ‘cling film’ like tumour over a part of my bowel, I had a stoma during surgery and it’s still working ok but my Ca125 has risen again from a couple of weeks ago
Onc said no tumours in any organs, bones or infiltrating bowels and no ascites (phew) and had my daughter, sister and I in stitches when he said everything else looks healthy and normal!! I think he thought we were all mad when we burst out laughing at that statement!
Anyway plan is weekly taxol for 18 weeks and I may be able to go on a brand new trial as participant number 1 of 30 to take alongside the taxol which stops blood vessels forming in tumours and then a maintenance drug after the 18 weeks. I will find out Monday if I’m eligible for the trial x
Anyone out there had weekly taxol? I’d like to know what to expect as the muscle pains I got with first line carbo/taxol weren’t pleasant but were bearable knowing I’d have a 2 week reprieve every cycle! Not sure if they were caused through carbo or the taxol so any advice would be great ladies!
I asked why OC recurs so frequently and he basically said surgery is the biggest way to remove mutated cells but in some ladies microscopic cells remain and it’s these that cause the issues and start growing wherever they are left! He really didn’t explain why they don’t completely get destroyed with chemo in everyone but actually said OC is very chemo responsive and that confused me a bit!
So I’m a bit gutted that I won’t be able to go on holiday with my sister as planned next month, I’m going to be bald again and feel like poo until September but I’m determined I’m gonna give this beast a bloody good beating! I hate this disease!
I’ve had some wine tonight and planning a gin and tonic night with my bestie tomorrow! Somehow this recurrence is upsetting me more than I expected 😥 I’m scared xx