Good news/bad news

[Katiebairdie]

I saw my oncologist yesterday after having my third chemo and a scan. The plan is that I am now being passed across to Oxford for a trial.

However my scan showed a shadow on my leg which could be a blood clot. I have to have an ultrasound now for confirmation. If positive I will have to have daily injections for a year, bloody hell!!! If it’s not one thing it’s another. I hope this doesn’t affect my chance for a trial.

As usual wait and see.

It’s still sunny here so far, hooray.

K x

[BeeWild]

I feel your pain K x They thought they saw a clot near my kidney on my CT scan in January so I’ve been on belly jabs since then although they told me for 6 months! I’ve had 1 month off them in 12 by the time this lot finish due to complications post surgery! I’m an expert pin cushion now xx

Fingers crossed you still get on the trial x

[Lindaura]

The injections aren't so bad once you get used to them. My OC caused several blood clots in both my lungs, making it doubly hard to breathe during Chemo. The District Nurses taught me how to inject myself and it was much less stingy when I did it myself. I did it at night before going to bed, but I only had to do six month.

Once the cancer was NED, no more sticky blood, which is what caused the clits in the first place.

So blood clots caused by cancer are another wonderful perk of Ivaruan Cancer!

Best of luck with your trial,

Laura

[Katiebairdie in reply to Lindaura]

Thanks for making it sound easy.

[Nancy222 in reply to Katiebairdie]

I'm also on injection blood thinner (Tinzaparin) and agree with Laura. Once you get into the habit, it's just another routine we go through. These injections (if you need them) will be your friend

Also, keep in mind that sometimes you can take pills once the clots are gone. I get reassessed in June, and honestly, I don't want to take any chances and will happily stick away every morning at 9:30.

Compression stocking will help (I use the thigh high ones. I have open toes ones and totally enclosed ones. I use the open toes pair for the house and closed toes when I go out. I reach for them first thing in the morning and take them off last thing at night. What a difference they make!!! I also have knee high ones but need the full support.)

Good luck with all this. XXOO

[Katiebairdie in reply to Nancy222]

Thanks for the tip about stockings, I will feel like Nora Batty

[Nancy222 in reply to Katiebairdie]

Ohmygawd!!! I had no idea who Nora Batty was so I googled her. I burst out laughing at the photo on Wiki.

No, you won't feel like that at all! They will smooth everything. You'll feel like a girl again. Nothing jiggles.

[Solange]

Sorry to read about your extra problem, Katie. Let's hope you won't have to have the injections. I've never had to have them but my lovely husband who winces before a needle has even touched him had to have them. He told me on the phone before I went to fetch him from hospital that I would have to inject him - which scared me. 😲 However, when I got there he said he'd been told he'd have to do them himself before he could come. He was all smiley and laid back about it. They'd shown him how, he'd done it, and he was fine. I couldn't believe it when he used to casually get his needles out and stick one in his tummy 🤗 . Take heart!! Love, Solange xx😊

[Nancy222 in reply to Solange]

That story about your husband gave me a nice smile. Lovely when we do something we never thought we could do. Also speaks to his training at his clinic. I had a nurse show me how to do it in Emergency, and the next day, I had an appointment at the Thrombosis Clinic and was shown again. Easy peasy. Heh.

[Neona]

I am on blood thinning injections and also on a trial .

[Katiebairdie in reply to Neona]

Good to hear.