Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for June 2016

Part three. Useless GP visit follow on from Manchester

What can I say? As bad as expected?. Not received either the barium meal REPORT nor four page letter according to him. I gave him my copy. He glances through...

What can I say? As bad as expected?. Not received either the barium meal REPORT ...

Footygirl

•8 years ago

28 Replies

PART TWO OF MANCHESTER REFERRAL

Hi again. The blood tests show CRP 3 ESR41 Hb 109 MCV 78 WCC 6.1 Platelets 423 Ferritin deficient 5.1 (7-90) normal B12 and folate Renal function normal eGFR...

Hi again. The blood tests show CRP 3 ESR41 Hb 109 MCV 78 WCC 6.1 Platelets 423 ...

Footygirl

•8 years ago

2 Replies

Manchester Royal Infirmary Lupus Specialist Report after ref from reluctant GP

Hi guys. Well here it is, the result of my request for referral to Prof Bruce at Manchester. I think I told you that the first thing I saw when entering clinic...

Hi guys. Well here it is, the result of my request for referral to Prof Bruce at...

Footygirl

•8 years ago

6 Replies

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Emotional

As anyone ever got so emotional that you started to get body aches, n just started to get swollen hands n feet,legs, etc.? Guess what I did, someone got me...

As anyone ever got so emotional that you started to get body aches, n just start...

Jo_25

•8 years ago

4 Replies

Numb face, tongue and lips? UCTD

Hi guys, I've been diagnosed with UCTD for about a year now, mostly manifesting as lupus-like in symptoms. However I've got a bit of a weird new symptom...

Hi guys, I've been diagnosed with UCTD for about a year now, mostly manifesting ...

Sunflowergirl94

•8 years ago

7 Replies

The funy side of lupus #24

Is when you have plucked up enough courage to face the world again after a good few weeks and you head for your favorite cupcake cafe.... to be greeted with a...

Is when you have plucked up enough courage to face the world again after a good ...

amandalilley

•8 years ago

4 Replies

On the bottom

Can't seem to stop crying. Since Christmas not been right. Had two medrone injections in pain still. I have tested positive 2 time for lupus. Now negative ....

Can't seem to stop crying. Since Christmas not been right. Had two medrone inje...

Paulie303

•8 years ago

14 Replies

Diagnosis received!

Hello all, I have Lupus and some time ago I asked for help regarding my sore eyes, well thanks to my observant endocrinologist I saw an eye specialist...

Hello all, I have Lupus and some time ago I asked for help regarding my sore eye...

JEM23

•8 years ago

7 Replies

Endo test results help pls

Hi Im new on here but wondered if my tests results are positive for SLE? I have been recently diagnosed with thyroiditis and am on levothyroxine. I've had my...

Hi Im new on here but wondered if my tests results are positive for SLE? I have ...

MissFG

•8 years ago

1 Reply

Arrrgh! Scalp!

I've had a dreadfully itchy scalp for around 2 weeks, so much so that I thought I must have headlice! I didn't..but I've just had my hair done..exactly the...

I've had a dreadfully itchy scalp for around 2 weeks, so much so that I thought ...

Saintsmad

•8 years ago

19 Replies

Lupus nephritis and pregnancy

. Can any one pls tell me whether I can get pregnant after remission... And is there any one who went thru remission and have children... Iam a bit worried...

. Can any one pls tell me whether I can get pregnant after remission... And is t...

Sle_remission

•8 years ago

9 Replies

The funny side of lupus #23

So lovely lupies....after exposing my thoughts, feelings and emotions to the hundreds of wonderful people on this site and feeling so open, you can imagine the...

So lovely lupies....after exposing my thoughts, feelings and emotions to the hun...

amandalilley

•8 years ago

3 Replies

How to change the low rate DLA to higher rate

hi everyone, I diagnosed with lupus around 20 years and a few years ago I applied for DLA and they entitled me to lower rate mobility and component care but my...

hi everyone, I diagnosed with lupus around 20 years and a few years ago I applie...

atti

•8 years ago

2 Replies

Steroid injection

Hi just wondering if anyone has had a intramuscular steroid injection and have found it to work almost immediately, I had my first Rheumy appt yesterday and...

Hi just wondering if anyone has had a intramuscular steroid injection and have f...

Michelle4267

•8 years ago

37 Replies

The darker side of lupus #13 to ............

My deep apologies to all lupies that have been watching for my posts - it has been a while due to lupus fog taking centre stage and holding me down until I...

My deep apologies to all lupies that have been watching for my posts - it has be...

amandalilley

•8 years ago

14 Replies

Refused for pip!

Just had my letter from PIP was refused the benifit and was scored 0 on every single question!! How many people has actually won there case if they appeal...

Just had my letter from PIP was refused the benifit and was scored 0 on every si...

Hidden

•8 years ago

7 Replies

advice

HI I am not diagnosed with lupus but have many symptoms I have been taken hydrochloxirine {I think that's whats it called!} but now rheumatologist has asked...

HI I am not diagnosed with lupus but have many symptoms I have been taken hydroc...

kaya12

•8 years ago

6 Replies

Appeal

Just got a call from the citizen advice . No one can come to my appeal . So now i don't know what to do . What actually happens at the appeal. Do I have to do...

Just got a call from the citizen advice . No one can come to my appeal . So now ...

LouLamb

•8 years ago

5 Replies

Carpel tunnel syndrome

Hi there just want to has anyone had the operation carpel tunnel? If yes I would want to know how long does it take to recover. It's just that I've had mine...

Hi there just want to has anyone had the operation carpel tunnel? If yes I would...

Salm

•8 years ago

4 Replies

Chest pain...what should I do?

I am wanting some more expert advice here. I frequently have episodes of chest pain which I was almost certain are costchondritis but this week it has hit with...

I am wanting some more expert advice here. I frequently have episodes of chest p...

1985mum

•8 years ago

9 Replies

never give up/awesome moment

Today was the opening of my universities summer show in which there was awards given out. I was given student of the year for the my year group of my course( I...

Today was the opening of my universities summer show in which there was awards g...

seanto

•8 years ago

28 Replies

Auto-immune, Lupus, Diabetes

Auto-immune x3. Lupus, Sjorgrens and newly diagnosed Type 1 Diabetes.

Maitelady

•8 years ago

2 Replies

Rheumatology appt today.

I had my rheumatology appt today and was pleasantly surprised how lovely she was considering my last one a few years ago, she was kind, empathic probably to do...

I had my rheumatology appt today and was pleasantly surprised how lovely she was...

Michelle4267

•8 years ago

5 Replies

Caffeine

Does anyone else get adverse effects from caffeine?

cel91273

•8 years ago

8 Replies

Blisters & rashes

I woke up this morning with blisters on top of rash on my right foot. This is why I have to go barefoot all the time. My question is, have any of you had...

I woke up this morning with blisters on top of rash on my right foot. This is wh...

Tiras

•8 years ago

11 Replies

In an unending agony

I had to stop my metrothriate in march this year bcos of my surgery. Stopping it meant all my symptoms will overwhelm me. My surgery was moved 3times so i...

I had to stop my metrothriate in march this year bcos of my surgery. Stopping it...

ijeasike

•8 years ago

7 Replies

My lupus rash update

My lupus rash is so much better since my steroids were up to 30mg and 400mg of hydroxyquine now down to 15mg prednisolone plus 400mg hydroxyquine. But since...

My lupus rash is so much better since my steroids were up to 30mg and 400mg of h...

molly19

•8 years ago

5 Replies

Not sure

This Sunday is my cousins 14th birthday (can't believe she's that old already ) She's invited me to go bowling and cinema with her mum , dad and sister . I've...

This Sunday is my cousins 14th birthday (can't believe she's that old already ) ...

LouLamb

•8 years ago

12 Replies

Not long

Only 4 exams left and 4 days left . Literally can't not wait . I have then got the whole of July and August to focus on getting myself in a better place ....

Only 4 exams left and 4 days left . Literally can't not wait . I have then got t...

LouLamb

•8 years ago

6 Replies

Lupus Nephritis

can a lupus nephtritis patient fast during ramadan...

Sle_remission

•8 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2016

Part three. Useless GP visit follow on from Manchester

PART TWO OF MANCHESTER REFERRAL

Manchester Royal Infirmary Lupus Specialist Report after ref from reluctant GP

Emotional

Numb face, tongue and lips? UCTD

The funy side of lupus #24

On the bottom

Diagnosis received!

Endo test results help pls

Arrrgh! Scalp!

Lupus nephritis and pregnancy

The funny side of lupus #23

How to change the low rate DLA to higher rate

Steroid injection

The darker side of lupus #13 to ............

Refused for pip!

advice

Appeal

Carpel tunnel syndrome

Chest pain...what should I do?

never give up/awesome moment

Auto-immune, Lupus, Diabetes

Rheumatology appt today.

Caffeine

Blisters & rashes

In an unending agony

My lupus rash update

Not sure

Not long

Lupus Nephritis

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