Blisters & rashes : I woke up this morning with... - LUPUS UK

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Blisters & rashes

Tiras profile image
Tiras
β€’11 Replies

I woke up this morning with blisters on top of rash on my right foot. This is why I have to go barefoot all the time.

My question is, have any of you had blisters in and on any rashes?

Tiras

"The Barefoot Gardener"

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Tiras profile image
Tiras
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11 Replies
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Minka1 profile image
Minka1

Had blisters on big toes and feet go hot and cold with sore ankles but that looks bad to me have you been to AandE with that don't leave blister to go bad

Tiras profile image
Tirasβ€’ in reply toMinka1

I have had rashes and I have had blisters but, not in the same place at the same time. I get the rashes/blisters everywhere from the neck down. I have not had anything on my face. I even get them in private places also.

My Doctor has given me cream and ointment for the rashes and blisters. I am using them on my foot. I have had this place on my foot for 2 years, you can see and understand why I have been barefoot for 2 years (actually now barefoot feels more natural, and I don't even want to wear shoes now if I could).

If it Does not start to get better in a few days I will go see my dermatologist.

Thanks for your reply.

LIVE LIFE TO IT'S FULLEST

Tiras

"The Barefoot Gardener"

Minka1 profile image
Minka1β€’ in reply toMinka1

No no blister yet touch wood

Wendy39 profile image
Wendy39

Hello. I've had blistering in my feet, arms back and legs, due to the sun. I have SCLE, so now know how I react to the sun and have to cover up accordingly. I know you are bare foot all of the time so strange to get blisters out of the blue. Can you get them checked out?

Tiras profile image
Tirasβ€’ in reply toWendy39

Wendy

Yes if they do not start to get better in a few days I will see my dermatologist.

I've had rashes and blisters but, not in the same place at the same time.

Yes it is strange but, then with lupus is anything strange?

Thanks for your reply

LIVE LIFE TO IT'S FULLEST

Tiras

"The Barefoot Gardener"

EOLHPC profile image
EOLHPC

I like your plan BFG...please let us know how this goes

For what it's worth: I get what my medics describe as Vasculitis rashes on my feet & legs...these are red & angry & sore (not itchy, more like prickly & hot and sore) and they include small, even tiny, blister-like things that look as if they contain something liquid/viscous...I daren't touch them...cause in the past when any of the blisters opened, the rash seemed to spread further ugh. I more or less manage to control these rashes with prescription topical steroids (first I try low strength betnovate, then higher strength betnovate, and if necessary dermovate (ultra potent). And recently this type of rash started up on my face...only dermovate damped it down...and yet it kept coming back when I stopped dermovate applications..so my GP had me apply daktarin (an anti fungal) an hour before the dermovate. 2 weeks of these applications 2x per day and it looks like the rash & blisters have settled (for now...). I do think my daily oral combined therapy lupus treatment plan means I have these rashes less often...but exposure to heat & sun does seem to make recurrence more likely even so

Wishing you πŸ€πŸ€πŸ€πŸ€

Coco

Tiras profile image
Tirasβ€’ in reply toEOLHPC

Thanks Coco:

I have not been out in the sun anymore than usual. This morning they are not as bad as yesterday. So I'm not sure what it is. It may be and I don't know just one of those crazy lupus things that sometime appear out of no where, then gone the next day. I only know one thing, shoes did not cause it. Got to make the best of it.

LIVE LIFE TO IT'S FULLEST

Tiras

"The Barefoot Gardener"

EOLHPC profile image
EOLHPCβ€’ in reply toTiras

YES ‼️ πŸ‘πŸ‘πŸ‘ good to know it's not down to shoes!πŸ˜‰πŸ€—

Minka1 profile image
Minka1β€’ in reply toEOLHPC

Barn clown do you have any back problems of the lumbars like feels like ligaments in the back that makes walking bad cos ankles are giving way

EOLHPC profile image
EOLHPCβ€’ in reply toMinka1

Yes, my version of this is due to Ehlers Danlos hypermobility global ligamentous laxity, combined with my infant onset lupus going without systemic treatment until I was in my 50s: result being denatured tightened tendons. So, on the one hand I'm very loose jointed and on the other hand most all my tendons are strained + severely shortened thereby causing bursitis, capsulitis etc alongside typical lupus synovial inflammation.

Yes, my whole spine is involved in this...I also have spondylosis, which has made my spine stuff even more severe...but, lucky for me, my hero pain consultant's facet joint denervation ops + my combined therapy lupus meds + conscientious lifestyle management inc the Alexander technique help minimise my chronic spine pain

Minka1 profile image
Minka1

Does this mean u are unable to walk my MRI was showing up problems and I didn't have any up to 13 weeks ago where it started in my ankle then whent to my knee probably because I'm walking funny and over to my right leg I've caused it to do my back and I thought lupus didn't attack the spine

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