advice

[kaya12]

HI

I am not diagnosed with lupus but have many symptoms I have been taken hydrochloxirine {I think that's whats it called!} but now rheumatologist has asked for a change of med I do not know what to as yet , my question is is anyone else on medication without being diagnosed ? seems weird to me !

[Paul_Howard Partner LUPUS UK]

Hi kaya12 ,

If you have some of the symptoms of lupus without all the clinical markers to make a diagnosis, they may consider it a 'lupus-like' condition or 'probable lupus'. This is sometimes also called undifferentiated connective tissue disease (UCTD). The symptoms are generally treated the same, regardless of the particular condition causing it, so treatment is often prescribed for UCTD to see if it helps.

[Janice3 in reply to Paul_Howard]

I do

[bestbuddy]

I have been on hydroxychloroquine for over 3 years and my diagnosis is UCTD

[Patricia2015]

Same here, I take Plaquenil 200mg/day with UCTD diagnosis.

[Sunflowergirl94]

Same here I'm on hydroxycholoquine 400mg/day for about a year (UCTD diagnosis)

Sunflowergirl XXX

[kaya12]

hi I still have no diagnosis , received a letter today they want to keep me on hydrochloroquine and start me on mepacrine, I know I should be happy ive been given meds but still unhappy about having no clear diagnosis it doesn't help me at work with sick days I take etc