Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2016

Lupus rash?

Anyone else have or had this type of skin rash/lesion, this is the heel of my hand but areas of my fingers and some toes have the same. It's very itchy. I wash...

Anyone else have or had this type of skin rash/lesion, this is the heel of my ha...

alimac23

•8 years ago

9 Replies

"One-off" USA lab test for SLE has proven effective...

...and is helping doctors diagnose patients with "Difficult-to-Diagnose" Lupus HMMM 🤔...this news is making me think .... Here is an excerpt from the press...

...and is helping doctors diagnose patients with "Difficult-to-Diagnose" Lupus H...

Barnclown

•8 years ago

21 Replies

Belimumab (Benlysta) finally approved for limited use on the NHS

The first new treatment for lupus in more than 50 years, Belimumab (Benlysta), has finally been approved for limited use on the NHS for certain patients...

The first new treatment for lupus in more than 50 years, Belimumab (Benlysta), h...

Paul_Howard

Partner•8 years ago

8 Replies

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Could I have Lupus?

For last couple of years my health has been getting worse and worse and worse with last month being the worst. About 1 year ago I saw Rheumotologist who...

For last couple of years my health has been getting worse and worse and worse wi...

Hypo101

•8 years ago

17 Replies

electric shocks through body

Does any one else suffer with constant electric shocks through body? I get them in both arms from one finger or thumb right too my chest.. Had this for years...

Does any one else suffer with constant electric shocks through body? I get them ...

Hidden

•8 years ago

12 Replies

Filled in PIP Book

Hi. Went to Carers Centre locally for appointment for help with filling it in. Met nice girl. I have to say that she put in a lot of detail for each answer. I...

Hi. Went to Carers Centre locally for appointment for help with filling it in. M...

Footygirl

•8 years ago

4 Replies

Esmerelda 50

Hi carollesly , I have been on hydroxochloroquine for many years now when I started taking them at the beginning I always felt a sick feeling to begin with but...

Hi carollesly , I have been on hydroxochloroquine for many years now when I star...

Esmerelda50

•8 years ago

1 Reply

Julie

Hi, I have recently been diagnosed with SLE and have the typical 'Butterfly' rash when I have a flare up. It's taken about 3 years to be diagnosed and I am now...

Hi, I have recently been diagnosed with SLE and have the typical 'Butterfly' ras...

JulieJane65

•8 years ago

4 Replies

Sad

Hello my name is cheryl ive all the symptoms of lupus my doctor is not very helpful please can u tell me of anywhere in plymouth I can have somone confirm &...

Hello my name is cheryl ive all the symptoms of lupus my doctor is not very help...

Cheryred

•8 years ago

5 Replies

Snoring driving my husband mad

as it says it is driving him mad and my throat is also sore and my glands are swollen abit under my jaw, I have never had this problem before, I am also...

as it says it is driving him mad and my throat is also sore and my glands are sw...

julie1234

•8 years ago

4 Replies

Today is World Lupus Day

May 10th is World Lupus Day! Please take a moment to read our press release about the findings from a new survey examining the UK public's awareness and...

May 10th is World Lupus Day! Please take a moment to read our press release abou...

Paul_Howard

Partner•8 years ago

1 Reply

Undiagnosed/Diagnosed

I realised the other day that there are quite a few of us undiagnosed who post on this forum. What struck me was the patience and support you can receive...

I realised the other day that there are quite a few of us undiagnosed who post o...

trueman

•8 years ago

6 Replies

NEW YALE UNIVERSITY MAG lupus awareness month article

Yale University is tops in the USA. Researchers there have been leading the way in studying Erythromelalgia for many years, bringing about a better...

Yale University is tops in the USA. Researchers there have been leading the way...

Barnclown

•8 years ago

15 Replies

Ironman in Venice

Hi folks, I have suffered from Lupus for more than 20 years and unfortunately my loving wife Mhairi has suffered along with me. She has been seriously training...

Hi folks, I have suffered from Lupus for more than 20 years and unfortunately my...

vitalspark

•8 years ago

2 Replies

Sjorgens and wheeze

I kind of asked a similar question a while ago but am specifically interested to know if those diagnosed with sjorgens suffer from a random wheeze? On inhale...

I kind of asked a similar question a while ago but am specifically interested to...

trueman

•8 years ago

4 Replies

tablets for lupus

just been given hydroxychloroquine how does any one else find it on these

carollesley

•8 years ago

17 Replies

Please support Dorothy Jump

Change.org Support her petition to transfer indefinate DLA to PIP. I believe the government blanket granted indefinate to DLA recipients to fuel their claim...

Change.org Support her petition to transfer indefinate DLA to PIP. I believe th...

Footygirl

•8 years ago

12 Replies

New Here: Does anyone find a body pillow helpful for lupus & fibro pain?

Hi, First post so I hope this is okay to post here. I have had systemic lupus and fibromyalgia for a few years now (with all the bonus conditions/effects). I...

Hi, First post so I hope this is okay to post here. I have had systemic lupus an...

heatherevans28

•8 years ago

15 Replies

Sun

Had 2 good days of proper sunshine . It has seem to make me more tired than usual.

Had 2 good days of proper sunshine . It has seem to make me more tired than usua...

LouLamb

•8 years ago

8 Replies

Menstrual/Fertility issues and lupus?

Hi this is quite lady specific, however I wondered if any of you have any thoughts or insight on how lupus may impact on menstrual symptoms or condiditions if...

Hi this is quite lady specific, however I wondered if any of you have any though...

Agirl89

•8 years ago

10 Replies

Heat making joints worse?

Does anyone else's joints seem to be hurting and swelling more from this heat? My hands and feet are swelling and getting burning all under eyes again, only...

Does anyone else's joints seem to be hurting and swelling more from this heat? ...

Hidden

•8 years ago

6 Replies

Happy Mothers Day

Hello everyone; here in the U.S. The 2nd Sunday in May is set aside to honor Mothers. I don't know if all of you in each of your countries do this but,...

Hello everyone; here in the U.S. The 2nd Sunday in May is set aside to honor Mot...

Tiras

•8 years ago

2 Replies

Warm weather

Why I'm feeling a lot worst in the warm weather , my hands are all swallen and stiff , nausea especially in the morning , during the night my whole body feels...

Why I'm feeling a lot worst in the warm weather , my hands are all swallen and s...

Hidden

•8 years ago

3 Replies

Rash

How do you know you got a flare up, n how does it feel. Or how does it look. I have been itching a lot different places of my body, not sure what expect....

How do you know you got a flare up, n how does it feel. Or how does it look. I h...

Jo_25

•8 years ago

3 Replies

Things to do following forced early retirement, update

A few weeks ago my lovely husband bought me a veg trug so that I could have a little vegetable garden without having to bend at all. Just thought I would...

A few weeks ago my lovely husband bought me a veg trug so that I could have a li...

creaky

•8 years ago

10 Replies

itchy rashes on hands and feet

I'm new here! Was attending a rheumatologist for a few years about 10 years ago when I experienced a flare up of swollen painful hands and was found to have an...

I'm new here! Was attending a rheumatologist for a few years about 10 years ago ...

alimac23

•8 years ago

15 Replies

White spots

Hi I have had these spots a few weeks they don't itch and they are not raised just under skin .wanted to know if anybody has anything like this or know...

Hi I have had these spots a few weeks they don't itch and they are not raised ju...

charmaineholmes

•8 years ago

5 Replies

Methotrexate

I am now on 20mg methotrexate and yesterday my tongue started hurting and this morning I have woke up with a few ulcers. Is this normal?

I am now on 20mg methotrexate and yesterday my tongue started hurting and this m...

adrienneioannou

•8 years ago

7 Replies

Don't worry.

Hi I have been told by my Opthalmic consultant I was born with Lupus I have to say I agree upon reflexion. No wonder my school friend called me Jauncice that...

Hi I have been told by my Opthalmic consultant I was born with Lupus I have to s...

New47

•8 years ago

6 Replies

Still no diagnosis

Having a rough time at the moment. Ache from head to toe with every joint being really painful which has been progressively getting worse since last week...

Having a rough time at the moment. Ache from head to toe with every joint being ...

EdinaClouds

•8 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2016

Lupus rash?

"One-off" USA lab test for SLE has proven effective...

Belimumab (Benlysta) finally approved for limited use on the NHS

Could I have Lupus?

electric shocks through body

Filled in PIP Book

Esmerelda 50

Julie

Sad

Snoring driving my husband mad

Today is World Lupus Day

Undiagnosed/Diagnosed

NEW YALE UNIVERSITY MAG lupus awareness month article

Ironman in Venice

Sjorgens and wheeze

tablets for lupus

Please support Dorothy Jump

New Here: Does anyone find a body pillow helpful for lupus & fibro pain?

Sun

Menstrual/Fertility issues and lupus?

Heat making joints worse?

Happy Mothers Day

Warm weather

Rash

Things to do following forced early retirement, update

itchy rashes on hands and feet

White spots

Methotrexate

Don't worry.

Still no diagnosis

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