Warm weather

Why I'm feeling a lot worst in the warm weather , my hands are all swallen and stiff , nausea especially in the morning , during the night my whole body feels like is on fire , cold sweats too and I'm not going out in the sun . 

[Tiras]

My lupus is worse during the summer. I still do get out in the sun. I have decided I will put up with it and have a life. My doctors and I talke about it. It will be give and take. If you look at my page you can see some photos I have posted of rashes. I have a rash on my right foot and I have not worn shoes in almost 2 years. (Other than leather or cloth flip flops sandals when  absolutely  necessary).

my motto has become.......

DON't STOP LIVING, LEARN TO LIVE WITH WHAT YOU HAVE. 

[hurries in reply to Tiras]

Love it. Very Yogic. I have Sjogrens, COPD and Osteo-Arthritis and last year I wore the prescribed flight socks all summer (to stop the legs swelling), this year O.k. with just band under knee and can now sit in the sun for short periods with hat on with no rash and itching. I read in a Saturday paper that the skin gets used to fresh air and "hardens up." Long may it last. Now on Steroids and Antibiotics for cough etc. Cannot win.

[Wendy39]

Hello. Sorry to hear you aren't feeling well. I have SCLE - which is a sub group of DLE and SLE. This means that I am sun-sensitive. So the warmer, summer months are not good for me. I have to take care from April - September. It's hard to adjust to this - diagnosed October/November 2013. Still learning how to cope with it all myself. I used to love the summer months. And having osteoarthritis in my hips and knees, the sun should be my friend and warm my bones. But alas no, I can't do that. I have 3 children, aged 12,10 and 8. So it's difficult to get the balance right sometimes. I tend to want to hide away indoors. But I can't do that all summer, for their sake. I take care to cover up and use sun block, wear a hat, use rash vests for beach days, good sun glasses, sit in the shade as much as possible etc. But it does seem to have an accumulative effect on me, and the last two Sept/Octobers I have suffered flares. I wish you well finding your way. if you search on here, using the search facility, there have been lots of posts previously about lupus and the sun. You might find good tips. Best wishes.