Sun

[LouLamb]

Had 2 good days of proper sunshine . It has seem to make me more tired than usual.

[Barnclown]

me too....staying indoors most of the time....and the effects of the heat indoors is tiring too...plus we are having a plague of hornets this year: they seem to want to come indoors too...and they settle in odd places where you can't see them...i went to turn on a tap: there was a hornet tucked underneath it: YIKES....and i react BIGTIME to insect bits...OH THE JOYS of immune dysfunction....

[chrisj]

...me too..much as I love the warm sunny days my systems not so keen so its indoors for me as well. I wait till the suns passed over the back of the house and then sit in the warm shade as I burn easily...

Barnclown we had horseflies around, must be 2 years ago, and I was bitten 4 times, 2 on each leg. Was poorly in the night, sat up putting ice packs on them as I was burning up...shivering in bed one minute and then burning. My sister made me see a chemist in Boots but I'd already been putting creams on I'd ordered online so there wasnt much she could do. Still have 4 scars..pesky things. I think thats the first time bites like that have really bothered me...

[Tiras]

My lupus is worse during the summer. I still do get out in the sun. I have decided I will put up with it and have a life. My doctors and I talke about it. It will be give and take. If I am out in the sun I will get more rashes/blisters, and drained of energy. If you look at my page you can see some photos I have posted of rashes. I have a rash on my right foot and I have not worn shoes in almost 2 years. (Other than leather or cloth flip flops sandals when absolutely necessary).

my motto has become.......

DON't STOP LIVING, LEARN TO LIVE WITH WHAT YOU HAVE. 

[LouLamb]

Doesn't any of you have to buy certain sun creams or like a certain factor or make 

[heatherevans28 in reply to LouLamb]

Prescription all the way - sunsense, factor 50. Tinted special one for my face and one standard one for my body April to October. Plus cover ups and sunglasses. Scotland's UVA and UVB levels are terrible. x

[Wendy39]

Hello. My GP prescribes me Ego Sun Sense Factor 50+. It's an Aussie make. It's very good. They do a tinted facial one, which I buy on Amazon for about £15 a go. My BB cream sits on top of my moisturiser & the face factor 50, if I do want to wear makeup - not that often these days. But I found the general one from the doctor gives me face a greasy look and makes my face white - well I'm pale enough already! The tinted one is nicer. Someone has told me their GP prescribes the face one, but I've never asked my GP. I do tend to have lazy days when I hide it n my house from the sun but if I do go out, factor 50+ (on my face all year round), a floppy sun hat, rash vests for the beach, sit in the shade if you can, maybe get a pretty parasol - just be really careful. I have 3 children and so can't stay in all the time, it wouldn't be fair on them, plus we live by the coast. Good luck. 

[joanne27]

The warm weather already affecting me badly  - i have raised red patches and a rash and i am only guilty of planting a few bulbs. I am unable to access outside without protective glasses and I should wear loose cotton clothing  covering arms and legs   I am more tired (if at all possible) when it is hot weather.  

[Tiras]

Yes we probably all use sunscreen, that is something we've all got us to and,  honestly for me using sunscreen goes without saying it now. I use 70+ uv protection. I still get more rashes/blisters and feel totally drained after being in the sun. As I posted earlier I'm not going to stop living because of lupus!