Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2016

Really struggling with dry skin

I have been diagnosed with lupus SLE for over 10yrs and am currently on chloroquine. I have had rashes all over my body for approx 3 years and they seem to...

I have been diagnosed with lupus SLE for over 10yrs and am currently on chloroq...

littlemissp

•8 years ago

8 Replies

What is this

So recently have been seeing loads of doctors regarding my hives, ive been seeng an allergist, i went and saw my gp and i saw a rhumetologist at a childrens...

So recently have been seeing loads of doctors regarding my hives, ive been seen...

Dwyerreywd

•8 years ago

15 Replies

what on earth do I do?

Had an appointment yesterday to discuss how I feel the doctor isn't doing enough the help as I dont feel like I'm getting any better, along side the different...

Had an appointment yesterday to discuss how I feel the doctor isn't doing enough...

seanto

•8 years ago

12 Replies

Want to take advantage of all our features? Just log in!

GSK are looking for lupus patients for a discussion about injectable therapies

GSK are looking to involve lupus patients (any age or gender) in a 2 hour session entitled ‘Patient Focus-making the value a reality’ within a medical meeting...

GSK are looking to involve lupus patients (any age or gender) in a 2 hour sessio...

Paul_Howard

Partner•8 years ago

Be the first to reply

Combating Lupus

Hello im Regina, and i have been diagnosed with systemic lupus. Ive been hospitalized several times. With my lungs hemmoraging. I am presently on oxygen 24/7...

Hello im Regina, and i have been diagnosed with systemic lupus. Ive been hospita...

Ginatay4t

•8 years ago

4 Replies

Pace of degeneration

Hi I'm new to this group. I am based in NZ but thought many of your posts were helpful. I am new to Lupus too (I had the rashes from 32) and didn't get...

Hi I'm new to this group. I am based in NZ but thought many of your posts were ...

Nixta

•8 years ago

14 Replies

Help with Azathioprine please?

Hi everyone! I would be grateful if anyone could tell me about their experiences with aza. I have SLE and am on hydroxychloroquine and 15mg of pred. I have...

Hi everyone! I would be grateful if anyone could tell me about their experiences...

happytulip

•8 years ago

8 Replies

Reluctant GP sneaky move. Covering his back?

Hi. More on the saga of my battle with reluctant senior GP. Right. I have autoimmune Hepatitis and have an annual check up. This is due July. I usually attend...

Hi. More on the saga of my battle with reluctant senior GP. Right. I have autoim...

Footygirl

•8 years ago

4 Replies

Frustrated and low

Just been to my GP, he isn't keen on referring me to dr Bridget Griffiths at Freeman hospital, as my doctors usually refer to Gateshead rheumatology. Plus he...

Just been to my GP, he isn't keen on referring me to dr Bridget Griffiths at Fre...

Hidden

•8 years ago

3 Replies

Off the lupus subject...

Hi all.. This has nothing at all to do with lupus, but I went Drs this morning as I have a few moles which have been bleeding... Now I have been referred for...

Hi all.. This has nothing at all to do with lupus, but I went Drs this morning a...

Hidden

•8 years ago

2 Replies

Depigmentation of my skin

Hi I've stated to get white marks of depigmentaion as my rheumatologist described it on my face and it's really upsetting me I have medium dark skin and it's...

Hi I've stated to get white marks of depigmentaion as my rheumatologist describe...

Tre123

•8 years ago

14 Replies

Rash arm

Rash arm but all over my body.

molly19

•8 years ago

10 Replies

Lupus rash update

My lupus rash is still angry, but very lucky it's not itchy, now spread all over me, now on steroid ointment, first creams done nothing. Back to Dr in 8 days...

My lupus rash is still angry, but very lucky it's not itchy, now spread all over...

molly19

•8 years ago

2 Replies

Body cramp

Hi all, I have lupus SLE and rayhnards over the past few months I've been getting cramp in the trunk part of my body l can be just sitting doing nothing and...

Hi all, I have lupus SLE and rayhnards over the past few months I've been gettin...

Hidden

•8 years ago

7 Replies

Kidney infection for sure.

Lucky i have bactrim antibiotic for it left over.I have to pass this stone.I am not calling anymore doctors becayse they aren't helping me.They say go to the...

Lucky i have bactrim antibiotic for it left over.I have to pass this stone.I am ...

Julietsmombless2015

•8 years ago

6 Replies

Blue badge mobility assessment

Iv got my mobility assessment for a blue badge on the 1st June.. First mobility assessment I have had to have, what do I expect from this ?

Iv got my mobility assessment for a blue badge on the 1st June.. First mobility...

Hidden

•8 years ago

8 Replies

hypersensitivity?

Anyone else ever had hypersensitivity? I developed it last friday and was sensitive to a lot of things. Annoyingly my own skin was one of the things I was...

Anyone else ever had hypersensitivity? I developed it last friday and was sensit...

seanto

•8 years ago

4 Replies

Minocin

Hi everyone,i`m Andrew,a few years after i was diagnosed(mid 90`s?) with lupus i was involved with a lawsuit(whatever there called!)with the makers of...

Hi everyone,i`m Andrew,a few years after i was diagnosed(mid 90`s?) with lupus i...

RAZ76

•8 years ago

3 Replies

Chickenpox

Just found out my niece now has chickenpox so all my family is trying for not to make us come into contact just Incase I come down with shingles or become very...

Just found out my niece now has chickenpox so all my family is trying for not to...

Hidden

•8 years ago

7 Replies

Finger pain

Hi, I have raynauds and arthritis on my hands ,the tip of my index finger in my right hand really hurt like I burned it and I'm having electric shock feelings...

Hi, I have raynauds and arthritis on my hands ,the tip of my index finger in my ...

Hidden

•8 years ago

1 Reply

I'm curious to know...

I've just been reflecting and I remembered when I went to the rheumatologist last year one of the things he did was run a sharpened tongue depressor (as in, he...

I've just been reflecting and I remembered when I went to the rheumatologist las...

1985mum

•8 years ago

3 Replies

Coffee morning

https://www.facebook.com/events/605852149578491/ Hi I hope its ok to put this on & the link works found this on Facebook a coffee morning in nottingham...

https://www.facebook.com/events/605852149578491/ Hi I hope its ok to put this o...

charmaineholmes

•8 years ago

3 Replies

Follow on from Fybro discussion

Sorry, but I was unable to find the named French article on Fibro but I did find another article that left me, well gobsmacked. Please, can some of you read...

Sorry, but I was unable to find the named French article on Fibro but I did find...

Footygirl

•8 years ago

4 Replies

New job offer---panicing

Hi I haven't written anything in a while.. after working 9 years with my company i have bite the bullet applied for a job elsewhere and was offered it the...

Hi I haven't written anything in a while.. after working 9 years with my compan...

avionne

•8 years ago

7 Replies

May's Topic of the Month - Going on Holiday (We want to hear your tips and experiences)

Our ‘Topic of the Month’ in May will be, ‘Going on Holiday’ It is getting to that time of year when the weather starts to improve and the Summer holidays are...

Our ‘Topic of the Month’ in May will be, ‘Going on Holiday’ It is getting to th...

Paul_Howard

Partner•8 years ago

12 Replies

Do you ever suspect people think lupus is contagious?

No one has ever told me they think lupus is contagious...but recently someone asked me if it is. Which made me think...and wonder whether anyone here has run...

No one has ever told me they think lupus is contagious...but recently someone as...

Barnclown

•8 years ago

43 Replies

Punch

Has anybody had a punch biopsy to diagnose what is wrong?

JanW

•8 years ago

7 Replies

Mysterious symptom

Any body get prickly itching on their back in the heat or after a shower. It hurts and itches at the same time. Very uncomfortable. Jennifer

Any body get prickly itching on their back in the heat or after a shower. It hur...

JenInCali

•8 years ago

9 Replies

Can people advise on this Lupus

New her got lupus then it smashes me to bits then seems to go leaving damage thought I had done me ankle this time then spread to my knee Then little red...

New her got lupus then it smashes me to bits then seems to go leaving damage th...

Minka1

•8 years ago

2 Replies

How painful is lupus myositis?

Hi, My GP suspects that I might have clotting issues to do with lupus and so has done some relevant blood tests, although he doesn't think I've suffered DVT....

Hi, My GP suspects that I might have clotting issues to do with lupus and so has...

Spicer21

•8 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2016

Really struggling with dry skin

What is this

what on earth do I do?

GSK are looking for lupus patients for a discussion about injectable therapies

Combating Lupus

Pace of degeneration

Help with Azathioprine please?

Reluctant GP sneaky move. Covering his back?

Frustrated and low

Off the lupus subject...

Depigmentation of my skin

Rash arm

Lupus rash update

Body cramp

Kidney infection for sure.

Blue badge mobility assessment

hypersensitivity?

Minocin

Chickenpox

Finger pain

I'm curious to know...

Coffee morning

Follow on from Fybro discussion

New job offer---panicing

May's Topic of the Month - Going on Holiday (We want to hear your tips and experiences)

Do you ever suspect people think lupus is contagious?

Punch

Mysterious symptom

Can people advise on this Lupus

How painful is lupus myositis?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive