tablets for lupus

[carollesley]

just been given hydroxychloroquine 

how does any one else find it on these 

[Tiras]

As for me, between lupus, hydroxychloroquine, and methotrexate. I have lost all body hair from my neck down. I have good days and bad days, thankfully I have more good days than bad days as of now. I do have joint issues and rashes/blisters at times. 

[Bacardibabe76]

Hi carollesley

There are different brands of hydroxychloroquine.  Some people report different problems with each one.

The one that is preferred by most is plaquenil but this has been hard to get a hold of and many pharmacies order in a generic debranded version.  The one made by the plaquenil sister company is the ZENTIVA brand as is the same ingredients (it mostly comes down to fillers).

I personally had a number of different side effects when first started.  But you have to persevere as it can take a few months before you notice any difference.

Hope you get on well with it

L 😀 X

[chrisj]

I've been taking hydroxy for about 11 years and its suited me all the way, works very well..hope you find the same benefits xxx

[angbed]

Now on my 3rd month of Hydroxychloroquine, I'm finding my joint pain and stiffness has improved greatly, especially on a morning. I was advised to take it with a full glass of milk, which I do. Hope it works for you.

[puffyface]

I think it really helps. Make sure you have eye test before for peripheral vision. It takes a while to kick in, but stick with it. Why have they given it? For lupus? 

[carollesley in reply to puffyface]

yes for my lupus and sclerosis arthritis

[cliffhopper]

I've been taking it for about five weeks, and I'm already seeing improvements. I'm much less stiff in the mornings, and my joints are much less painful. I also find I now get good days when I don't feel like I've been hit by a train, the only down side of this is that I go a bit mad on the good days and then end up wiped out for a couple of days afterwards. I think I need to find out a bit more about pacing! The only thing that seems to have got worse is the butterfly rash (perhaps it's because we don't see much sun in Wales, and this weekend was such a shock to the system!). The only side effects I've had were some headaches and nausea in the first week or so.

[Happykins in reply to cliffhopper]

Hi cliffhopper, I live in Wales also, do you mind if I ask who your rheumatologist is? Mine's in Hereford. Thanks xx

[cliffhopper in reply to Happykins]

I see Dr.Rhys-Dillon at Royal Glamorgan.

[Happykins in reply to cliffhopper]

Thanks for letting me know xx

[carollesley in reply to cliffhopper]

thanks seem to be getting itchy rash on ankles so far lets hope nothing else 

[happyjackandjoan]

you look great lady xx

[carollesley in reply to happyjackandjoan]

wish i looked and felt like that all the time lol

[Jokelby72]

I didn't get on with them at all. I had severe dizzy spells 

[carollesley in reply to Jokelby72]

already get dizzy spells passed out a few times so more tests get fed up of tests 

[Jokelby72 in reply to carollesley]

I had 5 years of tests before I got diagnosed x

[carollesley]

thanks every one for your help it all good advice