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Hi, I have recently been diagnosed with SLE and have the typical 'Butterfly' rash when I have a flare up. It's taken about 3 years to be diagnosed and I am now waiting to see a dermatologist. I hope there will be something he can give me for my next flare up, as it's very painful and the last time I had it, the inside of my arms swelled up and became very itchy and bright red.(especially after a glass of wine) Does anyone else have these symptoms? x

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Hi JulieJane65,

Good luck with your dermatology appointment. Let us know how you get on.

If you would like more information about skin involvement in lupus, we have a booklet you can read or download on our website at lupusuk.org.uk/wp-content/u...

We also have a free information pack that you can request or download at lupusuk.org.uk/request-info...


Let me just say that your post is the reason why I joined this website. I'm always so leery to join sites because I never follow through with them.

I did want to offer so advice to you with your rash. I have it too and my never goes away. It does get better at points but it also gets worse. It hurts right now. It kind of feels like burning. What I do to cover mind up is wear makeup. Mayballen (spelling) has wonderful makeup call FitMe. I use that and cover up to cover my rash. My doctor is very impressed with how well I cover it. It barely shows through. This and being unable to walk because of the joint pain are the most embarrassing aspects for me.


Ah, thanks for the tip with the make up. I will see what they offer me when I go for my appointment,(it's not until the end of June) but will probably get some make up too. when I get a bad flare up my face can swell so much, my eyes are nearly shut. I am very fortunate that I don't have the rash all the time. I'm so sorry you have the joint pain too. Take care xx


I would definitely suggest makeup when you are not swollen. If you didn't cover it up well enough or if you want a little extra coverage, use a brown colored blush for your cheeks. That's what I do just so I know my red won't show though.

Good luck at your appointment.

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