Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for February 2023

Media request for Friday 17 February 2023

Hello All We are looking for someone who feels that their care was negatively impacted in the last three years by staff shortages in the NHS. It could be...

Hello All We are looking for someone who feels that their care was negatively i...

TheOvacomeTeam

Partner•1 year ago

clear cell borderline

anybody else have this? Been told extremely rare combination, so need to hear from others.

anybody else have this? Been told extremely rare combination, so need to hear f...

Kidlings

•1 year ago

6 Replies

Waiting a diagnosis 😞

Good afternoon all Basically, I went for a transvaginal ultrasound on Monday which came back with a 41mm “cyst” (the dr hopes) although they cannot be certain...

Good afternoon all Basically, I went for a transvaginal ultrasound on Monday wh...

Sparkleshimmer

•1 year ago

9 Replies

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rise in ca125

hi I had surgery 4 years ago to remove everything including my cervix, 2 years ago I started bleeding which turned out to be 2 Lgc in surgery the found another...

hi I had surgery 4 years ago to remove everything including my cervix, 2 years a...

Heidi1965

•1 year ago

2 Replies

What to do?

I know that continuing with chemo is a personal thing, and that it has to be my decision, but I have no one else, who understands, to discuss this with.I had...

I know that continuing with chemo is a personal thing, and that it has to be my ...

27-359

•1 year ago

39 Replies

Lynch’s syndrome

Hi, my name is Mags and I have serous grade ovarian cancer stage 3 c (could be stage 4 now) since 2016. With three surgeries since (last one not so...

Hi, my name is Mags and I have serous grade ovarian cancer stage 3 c (could be s...

2016Mags

•1 year ago

10 Replies

first appointment at christies

going next Tuesday , need this sorting now still in pain by the end of the day I’ve had enough, still trying to work full time , I’m struggling x

going next Tuesday , need this sorting now still in pain by the end of the day I...

Cazy1010

•1 year ago

7 Replies

Hi all I’ve not been here for nearly 3 months time has disappeared recently. Last time here was the night before my surgery.

Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage...

Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrecto...

Deli44

•1 year ago

5 Replies

CA 125

can I ask what is considered a high CA 125 reading ??

Cazy1010

•1 year ago

15 Replies

Aliftus Trail

Anyone else on this trial and taking the trial drug found that their appetite has reduced ?

Anyone else on this trial and taking the trial drug found that their appetite ha...

doodoolatrice

•1 year ago

2 Replies

Any advice about future treatment?

Good morning sisters, I am at yet another crossroads and hoping for some advice. Diagnosed stage 4 high grade serous Jan 2020, had two surgeries, three...

Good morning sisters, I am at yet another crossroads and hoping for some advice...

Riverflo

•1 year ago

10 Replies

Niraparib and eyelashes

Hi, I am wondering if anyone else has noticed that their eyelashes are only little stumps of lashes? My eyelashes grew back lovely and long after I finished...

Hi, I am wondering if anyone else has noticed that their eyelashes are only lit...

babs1120

•1 year ago

6 Replies

Olaparib and hair dye

Hi ladies, I hope you'll forgive a slightly frivolous question but I was just wondering if anyone has any advice on using hair dyes/highlights etc while on...

Hi ladies, I hope you'll forgive a slightly frivolous question but I was just wo...

Kjpip

•1 year ago

7 Replies

I think I’m just about to start this journey

not officially diagnosed yet but went to A&e with tummy pains, CT SCAN blood work and cyst found on my overy told I need a hysterectomy by phone call and it’s...

not officially diagnosed yet but went to A&e with tummy pains, CT SCAN blood wor...

Cazy1010

•1 year ago

12 Replies

Kidneys are in trouble. Chemo delayed.

Hello ladies. I was to have chemotherapy yesterday. Unfortunately, my creatinine level was up from 1.11 to 1.68. Also, filtration should be above 60. Mine...

Hello ladies. I was to have chemotherapy yesterday. Unfortunately, my creatinine...

Sashay2020

•1 year ago

14 Replies

is it important to get tested for BRCA gene and if so how do you go about doing that.

hi all I had stage 3c low grade serous last year but after good debulking surgery and follow up surgery last month I’m now NED, I only had one round of carbo...

hi all I had stage 3c low grade serous last year but after good debulking surger...

Mrs_Thomas

•1 year ago

20 Replies

B69 Trial

hi , is anyone taking part in the B69 trial ( Paclitaxel, Bevazicumab, pembrolizumab. if so , how are you doing ? Any bad side effects ? wishing you all well...

hi , is anyone taking part in the B69 trial ( Paclitaxel, Bevazicumab, pembroliz...

Lookingahead

•1 year ago

1 Reply

Olaparib

Hi Everyone, I have just started taking Olaparib. I wanted to ask if there are certain foods/ drink I need to avoid? Is it okay to drink green tea? I would...

Hi Everyone, I have just started taking Olaparib. I wanted to ask if there are ...

Rgrg

•1 year ago

6 Replies

Niraparib

I have been on Niraparib for over a year now and the only side effect I seem to have is constipation. I have changed my diet to help me go regular but...

I have been on Niraparib for over a year now and the only side effect I seem to ...

Jingles6

•1 year ago

7 Replies

Recurrence for clear cell ovarian cancer

Hi everyone, I hope your all well tonight? I was diagnosed with clear cell ovarian cancer stage 3 a2 grade 3 at the end of May last year. I had the full...

Hi everyone, I hope your all well tonight? I was diagnosed with clear cell ovari...

monkeytwo

•1 year ago

15 Replies

response to clinical trial application?

A couple of months ago, I applied for a clinical trial that had just started recruiting. They are still recruiting and have begun administering the trial drug...

A couple of months ago, I applied for a clinical trial that had just started rec...

Sashay2020

•1 year ago

11 Replies

Ovacome Raffle for Ovarian Cancer Awareness Month

Hello All This is to let you know about our raffle which is now live! Enter for a chance to win luxury prizes and support Ovacome's work. 👉 Tickets are just...

Hello All This is to let you know about our raffle which is now live! Enter for...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

Niraparib

First I want to thank all you ladies for your responses to past posts but also just reading other people’s post helps to put my own troubles into perspective....

First I want to thank all you ladies for your responses to past posts but also j...

NewtonEmma1900

•1 year ago

10 Replies

Didn’t make it to trial B96 - second line chemotherapy- paclitaxol

hello everyone I posted a few weeks ago and found responses very useful so I thought I would ask again to gather any useful advice from this wealth of...

hello everyone I posted a few weeks ago and found responses very useful so I t...

Narna1

•1 year ago

2 Replies

Patient and Public Involvement Group Opportunity in the West Midlands

Dear All, We have been asked to pass on information to you about an opportunity to be involved in a Patient and Public Involvement group in the West Midlands,...

Dear All, We have been asked to pass on information to you about an opportunity...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Rising ca125

Hi, just feeling bit wobbly, I was diagnosed stage 4 serious OC March 2020, I've had chemo / ultra radical surgery and more chemo then on to olaparib. Had my...

Hi, just feeling bit wobbly, I was diagnosed stage 4 serious OC March 2020, I'v...

Casamimosa

•1 year ago

14 Replies

Thigh ache

I finished weekly Taxel just before Christmas, and it has left me completely poleaxed! I have fluid inside and outside my lung and the pressure makes movement...

I finished weekly Taxel just before Christmas, and it has left me completely pol...

27-359

•1 year ago

7 Replies

Frozen Abdomen With Ovarian Cancer

I will go into further detail at a later date. What you ever heard of a frozen abdomen? Debunking surgery was supposed to be preformed but was not...

I will go into further detail at a later date. What you ever heard of a froze...

darksky23

•1 year ago

4 Replies

going for scan

hi everyone! I don’t have ovarian cancer but I’m going for a scan on my stomach to check for this, I had histerectomy about 16 years ago and they left my...

hi everyone! I don’t have ovarian cancer but I’m going for a scan on my stoma...

Prettywoman73

•1 year ago

20 Replies

Night spasms

I had bowel cancer in May last year and had a hemi-colectomy that was straight forward and needed no further treatment. Nine weeks after that operation I was...

I had bowel cancer in May last year and had a hemi-colectomy that was straight f...

Frinks

•1 year ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2023

Media request for Friday 17 February 2023

clear cell borderline

Waiting a diagnosis 😞

rise in ca125

What to do?

Lynch’s syndrome

first appointment at christies

Hi all I’ve not been here for nearly 3 months time has disappeared recently. Last time here was the night before my surgery.

CA 125

Aliftus Trail

Any advice about future treatment?

Niraparib and eyelashes

Olaparib and hair dye

I think I’m just about to start this journey

Kidneys are in trouble. Chemo delayed.

is it important to get tested for BRCA gene and if so how do you go about doing that.

B69 Trial

Olaparib

Niraparib

Recurrence for clear cell ovarian cancer

response to clinical trial application?

Ovacome Raffle for Ovarian Cancer Awareness Month

Niraparib

Didn’t make it to trial B96 - second line chemotherapy- paclitaxol

Patient and Public Involvement Group Opportunity in the West Midlands

Rising ca125

Thigh ache

Frozen Abdomen With Ovarian Cancer

going for scan

Night spasms

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