Posts - My Ovacome | HealthUnlocked

My Ovacome

17,821 members • 20,058 posts

All posts for November 2021

Re Challenge with Carboplatin after allergic reaction

Hi all, I finished my first round of chemo following radical de bulking in February. Unfortunately my Ca125 has been steadily rising since then on Avastin ....

Hi all, I finished my first round of chemo following radical de bulking in Febru...

Lookingahead

•3 years ago

8 Replies

CA125 rise but clear PET/CT scan

Hi everyone, I have been going through this OC journey with my partner for the past year. She was diagnosed with OC 3C in August 2020 and has been on Avastin...

Hi everyone, I have been going through this OC journey with my partner for the p...

Stuee01

•3 years ago

22 Replies

Underarm lump

Hi lovely people, am waiting for tumours in stomach lymph, top of spleen and liver surface to be seen as troublesome to start chemo, in the meantime I have to...

Hi lovely people, am waiting for tumours in stomach lymph, top of spleen and liv...

Esmerelda101

•3 years ago

2 Replies

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Covid vaccine and platelets

Hi Has anyone else had a problem with the Covid vaccine? I had debulking surgery in January of this year and my last chemo treatment was in early April. Whilst...

Hi Has anyone else had a problem with the Covid vaccine? I had debulking surgery...

SashaM4

•3 years ago

4 Replies

Oncologist chat

Spoke to Oncologist this morning re possibly coming off Niraparib due to side effects, and asked about changing to Rucaparib. She said drugs are the same just...

Spoke to Oncologist this morning re possibly coming off Niraparib due to side ef...

rosebine

•3 years ago

27 Replies

Ovacome is looking to talk to people with ovarian cancer on a low income, about how this has affected your experience.

Hi all Ovacome is looking to talk to anyone with ovarian cancer who lives in the UK and is on a low income about how this has affected your experience of...

Hi all Ovacome is looking to talk to anyone with ovarian cancer who lives in t...

OvacomeSupport

Partner•3 years ago

4 Replies

How long will Zejula be effective?

I was diagnosed with peritoneal Ca 2.5 years ago. After all the frontline stuff that I have had over the last 2 years (chemo twice and debulking surgery) I'm...

I was diagnosed with peritoneal Ca 2.5 years ago. After all the frontline stuff ...

Jenjill47

•3 years ago

8 Replies

WHAT is even bleeding?

I'm so, I don't even know, frustrated, scared, both? I'm stable on Lymparza. Status is one known tiny tumor in right lower quadrant and one also tiny...

I'm so, I don't even know, frustrated, scared, both? I'm stable on Lymparza. Sta...

TxEm

•3 years ago

12 Replies

Taxol

Hello, I would like to know what women put on there toe and finger nails while on Taxol. Helena

Hello, I would like to know what women put on there toe and finger nails while o...

Iwouldlike2knowmore

•3 years ago

8 Replies

Ca125

I’m on niraparib for 2months now but my ca125 is at 154 and no one seems concerned only me chemo nurses just say we will let your oncologist know this doesn’t...

I’m on niraparib for 2months now but my ca125 is at 154 and no one seems concern...

polo2014

•3 years ago

8 Replies

Has anyone read this

https://www.express.co.uk/life-style/health/1521058/Cancer-vaccine-latest-NHS-trial My friend sent it to me. Hope the link works. A vaccine for OC maybe!

https://www.express.co.uk/life-style/health/1521058/Cancer-vaccine-latest-NHS-tr...

Lizzieanne

•3 years ago

22 Replies

Side effects to niraparib

Hi everybody, I was diagnosed stage 3c ovarian cancer in March this year, I have read all posts but this is my first time writing. I have just finished...

Hi everybody, I was diagnosed stage 3c ovarian cancer in March this year, I have...

Edna1968

•3 years ago

19 Replies

Internal scar tissue perhaps?

Hi all, I had debulking surgery back in July (including resectioning of paracardiac and paraortic lymph nodes) and every so often if I yawn or something I get...

Hi all, I had debulking surgery back in July (including resectioning of paracard...

Catfeeder

•3 years ago

8 Replies

Moms recidive and chemo

Wanna ask you my mom had ovarian cancer on 2017 stage 2 , operation and 6 chemo, in 2021 mAy recidive with many mtc all around abdominal ca 220, now after 7...

Wanna ask you my mom had ovarian cancer on 2017 stage 2 , operation and 6 chemo,...

Inguc_is

•3 years ago

8 Replies

Avastin with Olaparib dilemma. Who to go to for a 2nd opinion?

My onc. First said I could make a decision on whether I have Avastin with Olaparib or just Olaparib. Later said the group meeting advised Olaparib without...

My onc. First said I could make a decision on whether I have Avastin with Olapar...

Trickysite

•3 years ago

10 Replies

Ca19. 9 test the norm for primary peritoneal cancer

Hi everyone, thank you for all your wonderful inspiring and helpful posts.. I just thought i would share my good news while i also hope to pick your brains...

Hi everyone, thank you for all your wonderful inspiring and helpful posts.. I ju...

Jayniiee

•3 years ago

6 Replies

Further Treatment?

Well, it looks like the Rubraca didn't work for me. I have had Carbo/Taxol, Avastin, Carbo/Caelyx then Rubraca. The oncologist is going to examine the scan and...

Well, it looks like the Rubraca didn't work for me. I have had Carbo/Taxol, Avas...

27-359

•3 years ago

13 Replies

Taxol

Hello, Well I am on my second month of Taxol which i do three weeks on and one week off and now i see hair in my bathroom sink, Does this mean I will lose it...

Hello, Well I am on my second month of Taxol which i do three weeks on and one w...

Iwouldlike2knowmore

•3 years ago

23 Replies

A poem about people who stick with you - true friends

Hello Lovelies, Last week we had a lot of discussion on friends and how hard some of our friends have found it to support us. I wanted to post this poem but...

Hello Lovelies, Last week we had a lot of discussion on friends and how hard som...

SASSY196

•3 years ago

17 Replies

The Ovacome Shop

Hello All This is just to let you know you can head over to the Ovacome shop to shop our winter range. We have a range of lovely gifts including hand dyed...

Hello All This is just to let you know you can head over to the Ovacome shop to ...

TheOvacomeTeam

Partner•3 years ago

Be the first to reply

Olaparib.

Hi, I wonder if some of you lovely ladies could help me out with this question? I’m currently on Olaparib and coming near to finishing my two years on it. (...

Hi, I wonder if some of you lovely ladies could help me out with this question? ...

Frenchhouse3

•3 years ago

26 Replies

Polyphagia

This is permanent hunger, been suffering from this since being on Niraparib but didnt know what it was called ! Been on Niraparib 3 months now, though had a 2...

This is permanent hunger, been suffering from this since being on Niraparib but ...

rosebine

•3 years ago

32 Replies

What happens after Caelyx, does anyone have a success story ?

Am due to start chemo next week, having carbo platinum and Caelyx due to relapse. Have been taking niraparib for approx a year, now stopped, has anyone got a...

Am due to start chemo next week, having carbo platinum and Caelyx due to relapse...

Flute_7

•3 years ago

51 Replies

Does Dr Charley Gorley accept applications for a second opinion for LGSOC ?

Hello Asking for my mum. 2 years ago Mum had a full debulking after being diagnosed with Stage 3b low grade serous ovarian cancer and has taken letrozole...

Hello Asking for my mum. 2 years ago Mum had a full debulking after being diag...

cath_koala

•3 years ago

29 Replies

Reoccurance

Hello I was originally diagnosed with primary peritoneal high grade eptherial ovarian cancer June of 2020. I went about 10 months then just found out my...

Hello I was originally diagnosed with primary peritoneal high grade eptherial ov...

TealWarrior78

•3 years ago

3 Replies

Where are friends when you need them?

Had incurable cancer for over 5 years. My treatment options are getting fewer. I struggle with mental health now and don’t feel my friends are a great support...

Had incurable cancer for over 5 years. My treatment options are getting fewer. I...

dramaredgerbil

•3 years ago

32 Replies

Hi everyone

I had chemotherapy last Thursday. I was high from the steroids Friday, Saturday and Sunday. Monday I felt ok but then yesterday I ached and vomited and on the...

I had chemotherapy last Thursday. I was high from the steroids Friday, Saturday ...

SEckett

•3 years ago

12 Replies

Microblading brows ))

Hello everyone. I have question about semi permanent tattooed brows. I am booked for tomorrow to do this microblading with lovely professional girl . But just...

Hello everyone. I have question about semi permanent tattooed brows. I am booked...

organicinna

•3 years ago

32 Replies

2 great (and expert) books to read- full of advice and hopeful inspiring stories.

Hello dear ladies, A few people have been posting on the forum about useful books to read. I wanted to share my recommendation for 2 that were fantastic to...

Hello dear ladies, A few people have been posting on the forum about useful book...

Nicky100

•3 years ago

7 Replies

Large cyst in peritoneal cavity after full de-bulking

I am looking for information for my mum about a large cyst that has appeared in her peritoneal cavity after a full de-bulking. Two years ago my mum was...

I am looking for information for my mum about a large cyst that has appeared in...

cath_koala

•3 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2021

Re Challenge with Carboplatin after allergic reaction

CA125 rise but clear PET/CT scan

Underarm lump

Covid vaccine and platelets

Oncologist chat

Ovacome is looking to talk to people with ovarian cancer on a low income, about how this has affected your experience.

How long will Zejula be effective?

WHAT is even bleeding?

Taxol

Ca125

Has anyone read this

Side effects to niraparib

Internal scar tissue perhaps?

Moms recidive and chemo

Avastin with Olaparib dilemma. Who to go to for a 2nd opinion?

Ca19. 9 test the norm for primary peritoneal cancer

Further Treatment?

Taxol

A poem about people who stick with you - true friends

The Ovacome Shop

Olaparib.

Polyphagia

What happens after Caelyx, does anyone have a success story ?

Does Dr Charley Gorley accept applications for a second opinion for LGSOC ?

Reoccurance

Where are friends when you need them?

Hi everyone

Microblading brows ))

2 great (and expert) books to read- full of advice and hopeful inspiring stories.

Large cyst in peritoneal cavity after full de-bulking

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