I have been going through this OC journey with my partner for the past year. She was diagnosed with OC 3C in August 2020 and has been on Avastin for almost a year now after chemo. We have stopped Avastin just recently. For the last 3 CA125 checks, her levels has risen steadily from 6, 17, 28 and now 45. We had a PET/CT scan done and even at CA 125 of 45 nothing significant shows...no mass/tumors or lymph node enlargement. I think our oncologist thought for sure something would show up. She still feels it will eventually recur and we should be prepared for 2nd line due to the CA125 rise.
I'm just wondering if anyone else has had the experience where you have had a rise in CA125 with clear PET scan and have remained in remission for a while? I'm a bit more comforted that the PET scan shows no activity as I know it is more sensitive than a CT scan.