Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for February 2021

Op

Morning ladies can I please ask is it usual to have chemo and then surgery x

polo2014

•3 years ago

9 Replies

Ode to a poo - hope it makes you all smile!

Surgery is over What to do? All I can think about Is when will I poo? Struggling to walk Also in pain But what’s most important Is when will I poo? Trying...

Surgery is over What to do? All I can think about Is when will I poo? Struggli...

Slipper1

•3 years ago

12 Replies

Anxious 😟

Hi ladies heading in tomorrow for surgery Monday so nervous and scared trying to put on a brave front its not knowing whats a head that frightens me hoping I...

Hi ladies heading in tomorrow for surgery Monday so nervous and scared trying to...

Clifden1

•3 years ago

36 Replies

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Sore mouth, ulcers, avastin.

Had avastin added to my carbo/taxol regime two weeks a go. For the last 10 days I ha ve had a painful, sore burning mouth and ulcers on my tongue. I’ve been...

Had avastin added to my carbo/taxol regime two weeks a go. For the last 10 days...

Artyrose

•3 years ago

27 Replies

Emails

Zenaja. I have been experiencing same probl lems emails from ovacome etc have lessened did you fix the problem

Zenaja. I have been experiencing same probl lems emails from ovacome etc have ...

Madmolly

•3 years ago

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Re: Hair colour dye for sensitive skin to cover grey hair regrowth after Chemotherapy?

Hello ladies, I've finished chemo 4 months ago and my hair has now grown back to about just over an inch long. I'm very pleased that it's grown back again,...

Hello ladies, I've finished chemo 4 months ago and my hair has now grown back t...

Doughnut21

•3 years ago

20 Replies

No contacts

I used to get emails of updates from Ovacome/HealthUnlocked everyday but I've had nothing for ages. Is anyone else having this? I'm still in private messaging...

I used to get emails of updates from Ovacome/HealthUnlocked everyday but I've ha...

ZenaJ

•3 years ago

7 Replies

Attitudes to Research in Gynaecology

Hello We posted last month to say that Ovacome is working with Dr Diana Frimpong, a PhD student at St Michael’s Hospital in Bristol, who is asking people who...

Hello We posted last month to say that Ovacome is working with Dr Diana Frimpong...

OvacomeSupport

Partner•3 years ago

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Rescheduled Op

My op was cancelled on the 4th of this month, now rescheduled for 4th March which is really good news. Just hoping this one won't be cancelled , had x4 chemo...

My op was cancelled on the 4th of this month, now rescheduled for 4th March whi...

Ivebeenthiswaybefore

•3 years ago

6 Replies

Questions already!

After discussing starting Rubraca with my onc, I said that I thought it should be started within eight weeks of finishing chemo. He has said twelve weeks! I...

After discussing starting Rubraca with my onc, I said that I thought it should b...

27-359

•3 years ago

13 Replies

Bladder Irritation

Well Hello, So just finished my weekly 10th treatment of Taxol/Avaistin and 6 more to go, woot woot. All is looking good on the CA 125 were it is dropping...

Well Hello, So just finished my weekly 10th treatment of Taxol/Avaistin and 6 m...

PCCDaisy

•3 years ago

12 Replies

survival-rates-per-hospital

anyone-know-if-figures-like-this-are-available.z*cx -sorry-for-z*cx-not-swearing-at-you-return-key-not-working.z*cx...

anyone-know-if-figures-like-this-are-available.z*cx -sorry-for-z*cx-not-swearing...

candyapplegrey

•3 years ago

2 Replies

Starting Rubraca

I saw my onc today, and the Carbo/Caelyx has worked well, so I will be starting Rubraca in the next few weeks after some pressing dental treatment. I shall...

I saw my onc today, and the Carbo/Caelyx has worked well, so I will be starting ...

27-359

•3 years ago

4 Replies

Platelets dropped to 75 Stopped Rubraca again!

Went for my bloods today and unfortunately I have had to stop my daily 800mg of rubraca as platelets are 75 and have to be at least a 100 to continue and...

Went for my bloods today and unfortunately I have had to stop my daily 800mg of ...

win_56

•3 years ago

6 Replies

In focus: approaches to symptom management - food and drink

Hello This month in our Health in Focus posts, we’re looking at some of the different approaches to management of cancer symptoms and side effects of...

Hello This month in our Health in Focus posts, we’re looking at some of the diff...

OvacomeSupport

Partner•3 years ago

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How long does chemo work for

I finished last load of chemo 9 weeks ago now and am waiting for referral to surgeon. Bit worried as dont know how long I am going to wait and concerned as the...

I finished last load of chemo 9 weeks ago now and am waiting for referral to sur...

rosebine

•3 years ago

4 Replies

Scared

Hi all hope you all well as you can be .Iv got a date for scan and biopsy’s 1st March so hopefully il find out just after what treatments il be able to have...

Hi all hope you all well as you can be .Iv got a date for scan and biopsy’s 1st ...

polo2014

•3 years ago

7 Replies

Next steps on recurrence

Hello Ladies, I hope you are all feeling as well as you can be. Can I ask for a bit of advice? Diagnosed PPC Stage 3c Nov 19, finished first line chemo just...

Hello Ladies, I hope you are all feeling as well as you can be. Can I ask for a ...

Esmerelda101

•3 years ago

29 Replies

Admission to hospital & 13 years since diagnosis

Last week I was admitted to our local hospital with severe shortness of breath. Dr thought I probably had mild heart failure & also suspected some ascites in...

Last week I was admitted to our local hospital with severe shortness of breath. ...

Di16

•3 years ago

8 Replies

Carbo/caelyx

Got phone call today,1st of march back up to see oncologist, get results of scan and hopefully start parp inhibitors, will let you all know how I get...

Got phone call today,1st of march back up to see oncologist, get results of scan...

patricia54053

•3 years ago

6 Replies

Hopeful!

Hi everyone! I was diagnosed late 2019. Had full hysterectomy and, after 12 months on 3 monthly screening, now on 6 monthly. CA125 was down to 5 last time....

Hi everyone! I was diagnosed late 2019. Had full hysterectomy and, after 12 mont...

Jannibags

•3 years ago

27 Replies

NAB PACLITAXEL

Has anyone had this drug and can tell their story please?

Janscancer

•3 years ago

4 Replies

Picc line

Had my 3rd chemo in 4th cycle cancelled yesterday as they struggled to find any viable veins. I’m to have a picc line fitted for future treatment. Has anyone...

Had my 3rd chemo in 4th cycle cancelled yesterday as they struggled to find any ...

Lockygill

•3 years ago

22 Replies

Ovarian Cancer Podcast

Hello Teal ladies, I’ve been living with Low Grade Ovarian Cancer since 2014. Back then I searched for stories of other women living with Ovarian Cancer and I...

Hello Teal ladies, I’ve been living with Low Grade Ovarian Cancer since 2014. B...

Levanah

•3 years ago

10 Replies

Doxil and Avastin

Hello all, has anyone had Doxil and Avastin together after front line recurrence? If so, how did you tolerate that combo? Thank you Sashay

Hello all, has anyone had Doxil and Avastin together after front line recurrence...

Sashay2020

•3 years ago

10 Replies

Sore back

Why is it that people with oc get really sore lower back. Even after operation to remove ovaries, uterus, fallopian tubes etc

Why is it that people with oc get really sore lower back. Even after operation t...

Madmolly

•3 years ago

10 Replies

Swallowing my pride and just asking

Hello again. I have such an icky question but I figured heck, if I can't ask here then where can I? Debulking surgery in 12/19, lots of organs removed,...

Hello again. I have such an icky question but I figured heck, if I can't ask he...

FlowerRose

•3 years ago

23 Replies

Lots of muscle pain in arms, maybe Olaparib?

Hi everyone. I'm 9 months out of chemo, on olaparib daily and Avastin every 3 weeks. On the Care Oncology Center protocol of...

Hi everyone. I'm 9 months out of chemo, on olaparib daily and Avastin every 3 w...

FlowerRose

•3 years ago

8 Replies

1 year on... Recurrence of Borderline Transformed Into Low Grade Ovarian Cancer.

Looking back over my posts over the past 10 years wow I do feel lucky to be here. It has been just over a year since my second diagnosis of Low Grade Ovarian...

Looking back over my posts over the past 10 years wow I do feel lucky to be here...

Jasmine_Rose

•3 years ago

6 Replies

DOXIL Tips

Hi All. I have been on maintenance with Avastin every 3 weeks and then oral Cytoxin was added as Ca-125 continued to climb. I started in the 80’s after...

Hi All. I have been on maintenance with Avastin every 3 weeks and then oral Cyto...

Nadie2018

•3 years ago

7 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2021

Op

Ode to a poo - hope it makes you all smile!

Anxious 😟

Sore mouth, ulcers, avastin.

Emails

Re: Hair colour dye for sensitive skin to cover grey hair regrowth after Chemotherapy?

No contacts

Attitudes to Research in Gynaecology

Rescheduled Op

Questions already!

Bladder Irritation

survival-rates-per-hospital

Starting Rubraca

Platelets dropped to 75 Stopped Rubraca again!

In focus: approaches to symptom management - food and drink

How long does chemo work for

Scared

Next steps on recurrence

Admission to hospital & 13 years since diagnosis

Carbo/caelyx

Hopeful!

NAB PACLITAXEL

Picc line

Ovarian Cancer Podcast

Doxil and Avastin

Sore back

Swallowing my pride and just asking

Lots of muscle pain in arms, maybe Olaparib?

1 year on... Recurrence of Borderline Transformed Into Low Grade Ovarian Cancer.

DOXIL Tips

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