Platelets dropped to 75 Stopped Rubraca again!

[win_56]

Went for my bloods today and unfortunately I have had to stop my daily 800mg of rubraca as platelets are 75 and have to be at least a 100 to continue and Hemaglobin is 90. This too has to be at least 100

My Oncologist is ringing me tomorrow re appointment. I think the lowest dose I can go down to is 600 so i'm hoping when my bloods recover she will give this a go.

I am a little concerned all this stop and starting and dosage reductions since beginning of December as I was not NED following my first recurrence in lymph nodes so i'm hoping the parbs have worked during the time that I have been taking them. I'm asking for a scan tomorrow when she rings me

[Caleda4]

Hi Win,Sorry to hear that you have had to stop Rubraca again. Fingers crossed that you can go into 600mg a day. Everyone reacts differently,but I hope that they will have worked so far.

I have my blood test next Wednesday and a Tel consultation on the Thursday,so I am hoping my bloods will be ok.

Take care,let us know how you get on. X

[win_56 in reply to Caleda4]

Thank you Caleda. I have as s bit upset today if I'm honest.....I wish you all the best next week with your bloods too. X

[Caleda4 in reply to win_56]

Hi Win, I hope that your Consultaion goes well today. I will be thinking of you. xx

[win_56 in reply to Caleda4]

Thanks Caleda, you are always so supportive, and I really appreciate that. I'll let you know how it goes. xx

[Ruebacelle]

So sorry. Platelets i eat papaya daily and drink papaya leaf tea to keep them up altho the protocol i am on now doesn't reduce them so stopped the tea kept the fruit as i like the taste and its rich in papain an enzyme. Red count is trickier but there are foods that boost it you can go online to check thar out but dont worry a lower dose may be all you need. Hugs from france

[win_56 in reply to Ruebacelle]

Ruebacelle, thank you so much for you lovely reply. I will definitely give the papaya a go. I'm hoping my oncologist will restart me on the 600mg dose when my platelets come back up. I will buy some papaya and the tea today. Thanks for the tip. 😊x