Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2018

World Ovarian Cancer Day

Just want to highlight that this is tomorrow and is aimed at raising awareness and highlighting symptoms etc!

Just want to highlight that this is tomorrow and is aimed at raising awareness a...

BeeWild

•6 years ago

2 Replies

Servival rate of cancer patient

What are the servival rate for a patient with total hysterectomy due to cancer

Najmasultana

•6 years ago

5 Replies

Tamoxifen efficacy?

Hi,Platinum based and taxol drugs are not working to control my cancer so I have been put on Tamoxifen. Is anyone else in the group on this drug and how is it...

Hi,Platinum based and taxol drugs are not working to control my cancer so I have...

coalole

•6 years ago

5 Replies

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Cervical smear

Well, you’ve got to laugh 😂. I’ve had a letter inviting me to go for my routine smear test, I rather fancied forwarding the letter to the hospital where I had...

Well, you’ve got to laugh 😂. I’ve had a letter inviting me to go for my routine...

Cropcrop

•6 years ago

17 Replies

Exercise

Is there no end to the awfulness of cancer treatment? Now some doctors in Australia are saying all patients should exercise alongside chemo. This is surely...

Is there no end to the awfulness of cancer treatment? Now some doctors in Austr...

Rachael47

•6 years ago

33 Replies

Not sure what’s going on

I’ve been having low back pain , with bloated full feeling, nausea, bleeding pv which has settled , frequency to urinate , constipation, not much appetite,...

I’ve been having low back pain , with bloated full feeling, nausea, bleeding pv ...

Cathhunt

•6 years ago

8 Replies

Immunotherapy

Hi just wondering if anyone with High grade serous BRACA neg Epethelial Overian Cancer are having any success with Immunotheraphy drugs or trials. Thanks

Hi just wondering if anyone with High grade serous BRACA neg Epethelial Overian ...

sandirara

•6 years ago

5 Replies

Carcinosarcoma (stage 1A): information and advices for this OC type?

Hi everyone, I’m newly diagnosed with OC and wrote a post a few days ago about the need to have chemo for a stage 1A. However, after meeting my oncologist, I...

Hi everyone, I’m newly diagnosed with OC and wrote a post a few days ago about ...

coconut123

•6 years ago

9 Replies

Worried

Hi there. This might be a bit long sorry. I'm a 28 year old female, I've had 2 c-section births in 2010 and 2013. I have a history of anemia and heavy periods....

Hi there. This might be a bit long sorry. I'm a 28 year old female, I've had 2 c...

Mstjf

•6 years ago

5 Replies

Thank you for the support x

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.” (Martin Luther...

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then c...

Beckyjh

•6 years ago

10 Replies

Are you ever told you are NED or in remission with OC?

This may seem a silly question but are you ever told you are NED or in remission with OC? I saw my consultant last week after 6 chemo plus surgery. My latest...

This may seem a silly question but are you ever told you are NED or in remission...

Pendle99

•6 years ago

32 Replies

low folic acid

I am 5 months post chemo and my GP says I now have low folic acid levels. Has anyone else experienced this? Is it ok to take supplements?

I am 5 months post chemo and my GP says I now have low folic acid levels. Has a...

Eriksendi

•6 years ago

9 Replies

Chemo days suck

Well the nausea and lack of appetite has well and truly arrived 😡 missing my fave cuppa tea 😢. Upwards and onwards no pain no gain 🌸xx

Well the nausea and lack of appetite has well and truly arrived 😡 missing my fa...

Samjane

•6 years ago

18 Replies

Plan xyz!!!!

So the biology of my tumour was the reason I wasn’t eligible for the trial. It seems that even though it is ovarian cancer that I have, the tumours are...

So the biology of my tumour was the reason I wasn’t eligible for the trial. It s...

Beckyjh

•6 years ago

39 Replies

Pudendal Neuralgia

Hello lovelies. Has anyone had or had experience with Pudendal Neuralgia? Any advice? 💚

Hello lovelies. Has anyone had or had experience with Pudendal Neuralgia? Any ad...

Joy13

•6 years ago

1 Reply

So, my first date with Caelyx. I hope there's a second date on the cards...

Here is one of my stupid ramblings girls to make you smile a little. Today was my first day with Caelyx, but I'm a past Carbo user. First my heart was...

Here is one of my stupid ramblings girls to make you smile a little. Today was ...

Kryssy

•6 years ago

18 Replies

Udder cream confusion - help!!

Hi girls, Whilst I repose this p.m. with himself waiting upon my every whim, I am looking at the suggestion someone made for udder cream and the expected dry,...

Hi girls, Whilst I repose this p.m. with himself waiting upon my every whim, I a...

Kryssy

•6 years ago

28 Replies

Hair colouring

Hello ladies. I have just stopped wearing my wig and would like to have my haircoloured. How long did you wait after finishing chemo? Morag

Hello ladies. I have just stopped wearing my wig and would like to have my hairc...

govanhill

•6 years ago

10 Replies

No more Avastin

Ok so last week I had a scan, this week I got the results. The avastin as stopped working after 12 lots, the nodule in my chest as grown to 1cm, it was 4mm, my...

Ok so last week I had a scan, this week I got the results. The avastin as stoppe...

Ossett

•6 years ago

12 Replies

Update this is my 6th line of treatment Carbo/Caelyx

Hi Ladies yes I/m back on Carebo/ Caelyx I had it for 5th line with good results, then went on a trial and had to come of chemo the trial drug if it works make...

Hi Ladies yes I/m back on Carebo/ Caelyx I had it for 5th line with good results...

lorraine71-Australia

•6 years ago

54 Replies

Relationship

No new to cancer, Now have had it twice, why is it so hard to find a good partner?

No new to cancer, Now have had it twice, why is it so hard to find a good partne...

StarrBear

•6 years ago

7 Replies

Best to fight in good company🤣

Trying to shoot a star or two (or 'Melon😉) after final shave off and well deserved small glass of red. Have a good night rest All OvCa beautiful Ladies! X

Trying to shoot a star or two (or 'Melon😉) after final shave off and well deser...

MartaCiom

•6 years ago

7 Replies

No more limbo

Hoping everyone is as well as can be expected and has found something to smile about today. Today I’m feeling in high spirits, I have a date for surgery!...

Hoping everyone is as well as can be expected and has found something to smile a...

Selkington

•6 years ago

5 Replies

Niraparb trial

Hi I’m trying to reach out if anyone else is in my situation I started the niraparb trial in January? I started on 300mg which quickly made me very ill? After...

Hi I’m trying to reach out if anyone else is in my situation I started the nirap...

Michellemasson29

•6 years ago

14 Replies

Home

Thankfully home at last, surgery went well upper vaginal vault removed and 3 pelvic lymph nodes removed. apparently tumour gone off to check on margins, this...

Thankfully home at last, surgery went well upper vaginal vault removed and 3 pel...

ellseybellsey

•6 years ago

15 Replies

Wish I had put a whole lot of money on it!! Still, knew it was coming. Hey ho and here we go - again.

Hi-de-hi all you lovely ladies. Well, I would have been a rich woman if I had put a large bet on my cancer being on the march again. Had my PET scan and...

Hi-de-hi all you lovely ladies. Well, I would have been a rich woman if I had...

Kryssy

•6 years ago

57 Replies

Back to Chemo!

Well ladies back on the chemo cycle today after 3 1/2 years clear. Carbo and Caelylx, feeling nervous but positive to kick its arse again. Any advice for the...

Well ladies back on the chemo cycle today after 3 1/2 years clear. Carbo and Cae...

Samjane

•6 years ago

26 Replies

Life expectancy

Hi sorry to be a pest, I have high grade stage 3 serous , and start my carboplatin next week , do they tell you how many years they expect you to survive for ....

Hi sorry to be a pest, I have high grade stage 3 serous , and start my carboplat...

Manchesterlady

•6 years ago

32 Replies

Will breathlessness get worse on flights?

Hello all, I was wondering if any of you who suffer with breathlessness could share your experiences of flying on planes with me? My mum suffers with...

Hello all, I was wondering if any of you who suffer with breathlessness could sh...

microferret

•6 years ago

8 Replies

Mucinous 1c belt and braces treatment plan

Hi all, Only adding this so anyone in the future can see what was suggested for this rare thing (I'm calling it Johnny - when I picture it I keep seeing that...

Hi all, Only adding this so anyone in the future can see what was suggested for ...

lynn6156

•6 years ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2018

World Ovarian Cancer Day

Servival rate of cancer patient

Tamoxifen efficacy?

Cervical smear

Exercise

Not sure what’s going on

Immunotherapy

Carcinosarcoma (stage 1A): information and advices for this OC type?

Worried

Thank you for the support x

Are you ever told you are NED or in remission with OC?

low folic acid

Chemo days suck

Plan xyz!!!!

Pudendal Neuralgia

So, my first date with Caelyx. I hope there's a second date on the cards...

Udder cream confusion - help!!

Hair colouring

No more Avastin

Update this is my 6th line of treatment Carbo/Caelyx

Relationship

Best to fight in good company🤣

No more limbo

Niraparb trial

Home

Wish I had put a whole lot of money on it!! Still, knew it was coming. Hey ho and here we go - again.

Back to Chemo!

Life expectancy

Will breathlessness get worse on flights?

Mucinous 1c belt and braces treatment plan

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